Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Not Very Pleasant, But Help! Pleasee..


romeo77

Recommended Posts

romeo77 Rookie

hey there, im from sydney australia... im 18 years old and i was diagnosed about 6 weeks ago...

i was doing really well , wasnt gaining weight back, but felt pretty good overall...

but theres so much paranoia and anxiety hitting me because of some of my symptoms of the late...

this is gross , but i need to get it off my chest... im having a cereal that has HEAPS of muesli and oats and grains etc..

and when i have this cereal on certain days, my stool is different!!.... i can see HEAPS of parts of the cereal throughout my stool.... and some parts are dark and some parts are light coloured....

i know its so friggin disgusting!!! please dont discard my post cos of this ,trust me im hygenic as hell. !!!:)

but yeh , on other days when i have the cereal its normal...... is this a bad thing?? could it be that the cereal is no good for me cos it cant absorb the oats & muesli etc????

please help ASAP

thankyou anyone who can help me.. :)

dan


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

Dan--Personally, I would stay away from the oats. I dont trust oats, even though some doctors say we can have them. Oats made me ill before I knew anything about celiacs. I dont believe we can have them. Have you checked your cereal--does it contain barley malt? Barley doesnt normally cause a reaction in me, but it is still a gluten we MUST stay away from. I helped my daughter make some "Puppy Chow" a Christmas treat she loves and the cereal has barley in it. I did not eat any of it, but somehow I think I got some in me, I had a nasty tummyache yesterday afternoon--I havent had one in a long time. Just be careful of the cereals..ok. Deb

jerseyangel Proficient

Hi Dan--Yea, I would not eat that cereal any more. Period. Like Deb, oats made me sick years before I had a DX. Not terribly, but enough to not want to eat them. You have not been DX for that long, and you have to be careful to eat simply so that your intestines have a chance to heal. For breakfast, you might choose fruit, rice bread toast, cream of rice, eggs, that kind of thing. Even a tiny amount of a gluten containing food will keep you from healing and actually cause further damage. If you need more ideas for foods, you can search here or you can PM me. As soon as you get all the gluten out, you will begin to heal--and it will get easier the longer you do it.

jenvan Collaborator

Dan-definitely nix the cereal. Know that is does take a while to recover and for your intestines to heal though, and you have only been on the diet for a short time. So, even if you are 100% gluten-free, you may still have 'odd' stools. PS--Take a deep breath and don't be anxious. Most people make mistakes initially, as the diet is pretty complicated...so be patient with yourself and ask for help and seek our resources when you need them--like books, a local support group etc.

KaitiUSA Enthusiast

Trust me we talk about everything on here so it's quite alright lol. Alot of oats are contaminated but besides that some even react to pure oats. I for one stay away from them. I recently had a problem with something labeled gluten free so ate it and then looked over it and it had oats...well I got sick. So stay away from that...it sounds like you were doing pretty well until that hit you.

If you need help with anything feel free to email me :)

tarnalberry Community Regular

Yep, I'm afraid you'll have to ditch the cereal. besides oats, check it for barley malt.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,344
    • Most Online (within 30 mins)
      7,748

    Scottweath
    Newest Member
    Scottweath
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.