Anyone else have twitching muscles, pins and needles, and pain as symptoms?

[CostaDelSoul]

Hello! I have celiac disease and have been following the gluten-free diet for a year.  Early in my diagnosis, I found that whenever I was exposed to gluten I'd have pins and needles or buzzing in different parts in my body but it would resolve in a few days / weeks. Then, one day, my nerves really started acting up. I had a lot of pain in my leg, tingling, buzzing, and twitching muscles all over. It would get better and then get worse. I think I was being regularly exposed to gluten by my fish monger who I recently found out was using the same cloth gloves / cutting board for cutting up fillets (which I was eating 1-2 times a week) as he was for making breaded crab cakes.

It's been about a month since I stopped eating the fish and the twitching hasn't stopped. Has anyone gone through something similar? Did your twitching / nerve symptoms ever go away?

 

Thanks in advance

[Ennis-TX]

I associated my needles feeling and some other issues with malabsorbtion of B-vitamins and Magnesium. It always spiked after a exposure and upping my dosing lessened the severity.
It could have also been my gluten ataxia both correspond along the same time lines, but some of the ataxia symptoms linger for a month or so.
If it is direct correlation to your antibodies and a form of ataxia it might take a little over 6 weeks (I have D issues that start to resolve after week 6) to clear as your antibodies go back down to normal.

My suggestion and I am not a doctor is try try supplementing and double checking your diet. Perhaps talk with your doctor for a medical opinion. If it does not improve any over 6 weeks consider finding a specialist or getting further testing done checking for other complications, nerve damage, brain damage, thyroid, etc.

[cyclinglady]

Nerve damage can take a long time to heal.  A long time.  Maybe never (otherwise all people with spinal injuries would recover).  But most members report improvement over time.    A month into a clean gluten-free diet is not enough time, in my non-medical opinion.  

That said, you may have other autoimmune issues that could cause the same nerve issues.  Consider getting tested.  Ennis was right.  Get your thyroid checked.  I have autoimmune gastritis and Hashimoto’s Thyroiditis which impact my nerves.  I have pins and needles this very instant, but I know I am having a flare-up of my autoimmune Gastritis and my thyroid.   My celiac disease is in remission (per repeat biopsies).