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Dermatitis and inflammation AFTER going gluten free

Stef37

By Stef37
in Dermatitis Herpetiformis

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Stef37 Newbie
Stef37
Posted

Hey, 

Has anybody got dermatitis AFTER going gluten free?

I was diagnosed 6 months ago and my dermatitis started 3 months after going gluten free. 

I dont understand why this is the case. i am pretty sure that i am not getting contaminated.

Issues with inflammation seem to be keeping up and i find it hard to reduce them.

Doing the cleanest diet i can although sometimes i eat too many nuts and honey which i feel might be causing me inflammation. despite this, my diet is pretty much safe. 

Any ideas as to why i have the dermatitis and inflammation still?

 

Thanks

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cyclinglady Grand Master
cyclinglady
Posted

If you have Dermatitis Herpetaformis (DH/Celiac Rash), know that antibodies can lay dormant in your skin, erupting at odd times.  Trying to determine a gluten exposure can drive you crazy.  Read the DH section.  There are lots of tips.  I think you will find that those celiacs who have DH are super sensitive and must take extra precautions. This would include not eating out and avoiding processed foods, even gluten free items as 20 ppm might be too much for you.  

 

Gemme0925 Newbie
Gemme0925
Posted

Hey! 

So I’ve had a similar issue in the past. I’m self diagnosed. 2 years ago I was having major skin issues (dermatitis) for several months and then it went away on its own. Then I dealt with acne and finally decided to go gluten free. A lot of my inflammation and other issues went away quick and completely after about a year of cutting out gluten + using accupuncture. 

 

These last 6 months I was having HORRIBLE dermatitis again + experiencing inflamation and couldn’t figure it out since my diet is so clean. 

I was eating A LOT of nuts. And drinking quite a bit too. 

I cut out nuts completely, did a few weeks no alcohol, still no wine or anything else fermented, and started doing yoga and my dermatitis cleared up almost completely now (it was cover my entirely body and my face and I was in so much pain)

After making these changes it only took about 3 weeks for me to see drastic results. 

 

Maybe this will help you. It takes a long time to figure out what our bodies need sometimes because it could be so different from everyone else. 

Vegetable oils also cause significant inflammation so sticking to olive oil, coconut oil, avocado oil is pretty essential without cheating if you’re experiencing inflammation 

cyclinglady Grand Master
cyclinglady
Posted

 Forgot to add....are you sure those nuts were gluten free (I know dumb question)?  What about increasing your iodine in your diet with all those nuts (if salted)?  Too much iodine can trigger DH.  

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apprehensiveengineer Community Regular
apprehensiveengineer
Posted
On 11/13/2018 at 6:16 PM, cyclinglady said:

 Forgot to add....are you sure those nuts were gluten free (I know dumb question)?  What about increasing your iodine in your diet with all those nuts (if salted)?  Too much iodine can trigger DH.  

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Ditto this... I have yet to find a brand of gluten-free nuts that haven't caused me issues :( . There aren't many gluten-free labelled nuts to begin with. Nearly all nuts have a 'may contain wheat' warning, which I would not take lightly as nuts are often processed on the same lines as pretzels, wheat-containing chips/crackers etc.

There are a few brands I've seen that are gluten-free, but they didn't go so hot for me. I am not really sure why, but I am super sensitive. Now I stick with in-shell nuts, which I wash before cracking. This is an annoying way to buy nuts... but it's all I've got, I guess.

Oddly, Kraft peanut butter seems to be fine, even though it is not labelled gluten-free (Kraft makes no guarantee in absence of a label).

 

Posterboy Mentor
Posterboy
Posted
On 11/13/2018 at 4:01 PM, Stef37 said:

Hey, 

Has anybody got dermatitis AFTER going gluten free?

I was diagnosed 6 months ago and my dermatitis started 3 months after going gluten free. 

I dont understand why this is the case. i am pretty sure that i am not getting contaminated.

Issues with inflammation seem to be keeping up and i find it hard to reduce them.

Doing the cleanest diet i can although sometimes i eat too many nuts and honey which i feel might be causing me inflammation. despite this, my diet is pretty much safe. 

Any ideas as to why i have the dermatitis and inflammation still?

 

Thanks

Stef37,

I haven't had any of your symptom's. . . but I do . ...do a lot of research and if you haven't removed dairy from your diet I would consider removing that next.

Aged cheeses especially have a lot of tyramines in them and could cause a histamine problem.

NUTS also have tryamines in them.

see this SFgate article and this thread about the topic of tyramines.

https://www.celiac.com/forums/topic/122922-very-sick-not-sure-i-want-to-go-through-testing-and-need-advice/?tab=comments#comment-997931

https://healthyeating.sfgate.com/foods-cannot-low-tyramine-diet-9574.html

https://healthyeating.sfgate.com/foods-histamines-tyramines-1208.html

tryamine(s) has been shown to trigger atopic dermatitis at least in one study I found on the topic entitled "Food and food additives in severe atopic dermatitis" link provided below.  if tyramines are the problem in the nuts then you might also have a problem with migraines.

https://www.ncbi.nlm.nih.gov/pubmed/2610332

note dairy is on that list too.

there is old research that shows milk/dairy can also trigger DH.

https://onlinelibrary.wiley.com/doi/abs/10.1111/j.1365-2133.1970.tb15755.x

people need to be aware of this .... so they can trial eliminating dairy from their diet.

recent research shows that cow milk proteins (CMP) can trigger a anit-tTG response in children that could be triggering your dermatitis or DH? symptoms.

https://www.ncbi.nlm.nih.gov/pubmed/29555204

I don't know if this is causing your problem(s) but you can't do what you don't know.

I had a milk allergy as a kid but most adults are thought to grow out of it. . .. but if you don't know to look for it then it could explain your "iodapethic" of an unknown  cause of your DH or dermatitis that you are still trying to isolate including tyramines of which nuts are a good source of tyramines in the diet of people having histamine issues.

I hope this is helpful but it is not medical advice.

“Consider what I say; and the Lord give thee understanding in all things”

2 Timothy 2: 7 

Posterboy by the grace of God,

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