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Important Questions about market prevailing items and rumors

Farooq Haider
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Farooq Haider Newbie
Farooq Haider
Posted

My daughter is 8 years old suffering from celiac disease. I need your advice to please help me with the following foods does it contains gluten or not? Your information shall help us improving her diet. 1. Fruit candies available in market. I took the information from manufacturers and it contains sugar, liquid glucose 43 Be', flavour, citric acid and food colour. 2. Tomatto Kechup and Chilli Garlic Sauce available in market from renound companies. 3. Ice creams available in market of two types. a. Ice made lollies like jet sports, trafic light etc... b. cream made ice creams without biscuits and chocolates in cups. I am very much confused for use of above products as I cannot find anything harmful on lable but market have remours that these products may contain gluten. Your expert openion is required in the regards, Thank you in antispation

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cyclinglady Grand Master
cyclinglady
Posted

I am in the US and assume that you are not based on your description of items like biscuits which we call cookies.  Therefore, I can not say if the items are gluten free or not.  Cross contamination in the manufacturing process is a concern. 

However, most celiacs on this forum will advise you to avoid processed foods, even gluten free ones, and to not eat out until symptoms improve.  The learning curve for the diet is steep, so simple foods, like meats, fish, vegetables, fruit, and rice are most likely best to promote healing.  It makes it easier and gives you time to get familiar with how to read a label. Some celiacs are lactose intolerant, but that often resolves once healed.  Try simple ice cream without a huge ingredient list and items you can not buy in the market (like a weird Gum or flavoring] or make candies or treats yourself.  

Consider her joining a local celiac group.  It can be fun to play with children who have celiac disease too.  It can help you too so that you are not alone.  

I hope she feels better soon!  

kareng Grand Master
kareng
Posted

Labeling laws and practices can vary by country.  You might want to see if there is a Celiac Association in your country. 

You might check Facebook - in the US, a lot of cities have a Facebook Celiac group that talks about locally available food and restaurants.  Check under "Celiac" or Gluten free"  and your largest close city name.  For me its "Gluten Free Kansas City" . 

You might also check with a big Children's hospital in your country.  Even if your child is not a patient, they will likely have a website or pamphlets to send you with good info.

 

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    • trents
      is my cleiac disease gone?

      By trents · Posted

      It would be interesting to see if you were tested again for blood antibodies after abandoning the gluten free diet for several weeks to a few months what the results would be. Don't misunderstand me. I'm not necessarily suggesting you do this but it is an option to think about. I guess I'm saying there is a question in my mind as to whether you actually ever had celiac disease. As I said above, the blood antibody testing can yield false positives. And it is also true that celiac-like symptoms can be produced by other medical conditions.
    • numike
      is my cleiac disease gone?

      By numike · Posted

      Thank you for the reply In the early 2000's I did not have the endoscopy nor the biopsy I do not have those initial records I have only consulted a GI drs in the USA 
    • trents
      is my cleiac disease gone?

      By trents · Posted

      Welcome to the forum, @numike! We sometimes get reports like yours from community members who believe their celiac disease has "gone away." We think there can sometimes be cases of remission but not long term healing and that continued consumption of gluten will eventually result in a relapse. This is the state of our knowledge at this point but there is still a lot we don't know and celiac disease continues to surprise us with new findings on a frequent basis. So, we would not advise you to abandon a strict gluten-free diet. Perhaps you can draw consolation from the fact that at the present time you seem to be able to consume gluten without consequences when in situations where you do not have the option to eat gluten-free. But I would advise you to not generalize your recent experience such that you throw caution to the wind. But I want to go back to what you said about being diagnosed by blood test in the early 2000's. Did you not also have that confirmed with an endoscopy and biopsy of the small bowel lining? Normally, a celiac disease diagnosis is not concluded based on a blood test alone because there can be false positives. What kind of doctor did this testing? Was it done in the U.S. or overseas? In the last few years, it has become common in the U.K. to grant a celiac diagnosis from blood testing alone if the antibody test scores are 10x normal or greater. But that practice has not caught on in the U.S. yet and was not in place internationally in the early 2000's. Do you have a record of the tests that were done, the scores and also the reference ranges for negative vs. positive for the tests?
    • numike
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      I agree, and generally it means that it isn't working in a high enough percentage of participants to continue pursuing it.
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