Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Prelim Tests - What Are The Chances I Have celiac disease?

btf

Recommended Posts

btf Newbie
btf
Posted

My family doctor did IGG and IGA testing after I reported various stomach-related symptoms. One was 74 and the other 123. Stopped gluten 4 days ago. Symptoms are diminishing. What are the chances I have celiac disease?

By the way, if the GI doctor I'm seeing next week tells me I have to resume gluten for further testing and my symptoms come back, I'm kicking him in the knee.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nettiebeads Apprentice
nettiebeads
Posted
My family doctor did IGG and IGA testing after I reported various stomach-related symptoms. One was 74 and the other 123. Stopped gluten 4 days ago. Symptoms are diminishing. What are the chances I have celiac disease?

By the way, if the GI doctor I'm seeing next week tells me I have to resume gluten for further testing and my symptoms come back, I'm kicking him in the knee.

I really don't understand why drs insist on all of the testing. I'm not too up on bloodwork counts, but from what I've read on other posts, your numbers are elevated indicating celiac. That, plus your diet is another diagnostic tool that is indicating celiac. And betcha that if he puts you back on gluten and you follow his orders, your symptoms come back. With a vengence. You didn't mention what stomach related symptoms you have, but if you feel better eliminating gluten, why go for more tests and start healing now? Anyhow, I was dx'd by my good ole' gp by the diet challenge. No stomach problems and no D or C so long as I'm gluten-free.

Annette

VydorScope Proficient
VydorScope
Posted
My family doctor did IGG and IGA testing after I reported various stomach-related symptoms. One was 74 and the other 123. Stopped gluten 4 days ago. Symptoms are diminishing. What are the chances I have celiac disease?

By the way, if the GI doctor I'm seeing next week tells me I have to resume gluten for further testing and my symptoms come back, I'm kicking him in the knee.

You have a postive blood test, and postive diet response, what more you do you need?????

GI doc may want to do a endscopy, to "confirm" the blood test. Personaly I would tell him to stick the tube down his own thoart cause no more gluten for you!

But Im not a doctor, soooo take that as you will :D

jerseyangel Proficient
jerseyangel
Posted

I agree with the others--if it were me, I'd concentrate on getting all of the gluten out of my diet and products. Start healing now, in my opinion, why make yourself sick again for a test when you already have had the blood work and the positive response to the diet?

janep Newbie
janep
Posted

:blink:

I agree with the others--if it were me, I'd concentrate on getting all of the gluten out of my diet and products. Start healing now, in my opinion, why make yourself sick again for a test when you already have had the blood work and the positive response to the diet?

[size=2

Hi. I am brand-spanking new here and this is my first post. I am suspicious that I have celiac, so I am gluten-free. This is day 2. I don't really want to go thru all the testing to see if I officially have it. Last night was the first night I didnt have awful heartburn and acid reflux. In the past few years twice I was rushed to the emergency room (colitis attack)and have had emergency surgery on my stomach (a burst abcess) and the docs said they didnt know what was my problem or why. Never did they say anything about or test for celiac, and I wonder why? I have a lot of other symptoms associated with celiac disease and some of my relatives have gone wheat free or gluten free. I have a son that has schizophrenia and the only way to control it before there were medications developed that would work for him was by eliminating gluten for his diet! Thank you all.

nettiebeads Apprentice
nettiebeads
Posted
:blink:

[size=2

Hi. I am brand-spanking new here and this is my first post. I am suspicious that I have celiac, so I am gluten-free. This is day 2. I don't really want to go thru all the testing to see if I officially have it. Last night was the first night I didnt have awful heartburn and acid reflux. In the past few years twice I was rushed to the emergency room (colitis attack)and have had emergency surgery on my stomach (a burst abcess) and the docs said they didnt know what was my problem or why. Never did they say anything about or test for celiac, and I wonder why? I have a lot of other symptoms associated with celiac disease and some of my relatives have gone wheat free or gluten free. I have a son that has schizophrenia and the only way to control it before there were medications developed that would work for him was by eliminating gluten for his diet! Thank you all.

Hi janep and welcome to the board! It's a shame that the dr's didn't want to know why you were having problems. A good thing about celiac is that it doesn't need expensive meds to control it. Just eating more natural foods (ie eliminating overprocessed junk) that are high in protein content should help quite a bit. Even when I'm 100% gluten-free, if I don't keep my protein above 50 grams a day, I get really tired and sluggish. My dr. dx'd me with the diet challenge only, and that was good enough for me. Keep us posted with your progress!

CMCM Rising Star
CMCM
Posted
My family doctor did IGG and IGA testing after I reported various stomach-related symptoms. One was 74 and the other 123. Stopped gluten 4 days ago. Symptoms are diminishing. What are the chances I have celiac disease?

By the way, if the GI doctor I'm seeing next week tells me I have to resume gluten for further testing and my symptoms come back, I'm kicking him in the knee.

I'm not a person who has a whole lot of faith in the knowledge of doctors when it comes to celiac disease. The truth is, most doctors know little or nothing about it and they haven't treated/diagnosed it before, either. If most of them even know what the heck it is, they probably only know what llittle they know because they read a few paragraphs about it in medical school. They aren't looking for it, celiac disease isn't on their radar screen.

I have a boatload of symptoms that fit the profile, and a mother with diagnosed celiac disease (it nearly killed her before one bright doctor figured it out....back in 1968 or so.) On a gluten free diet, I'm hugely better. However, I obviously have problems with other things as well.....I got real sick after having ONE cappuccino with soy milk in it, and I've known for the last 20 years that dairy causes problems for me. For all these years (until I got to this forum, in fact!!!) I didn't consider celiac disease for myself because I didn't lose weight like my mother did--I always thought you would get thin, and I think a lot of doctors think this too!

So I'm left with the question of whether or not it's a combination of things, or if it's primarily celiac disease which in turn created an environment in which my body doesn't process milk protein, or if I have multiple sensitivities. After the first of January when the mail system settles down and the holidays are over, I'm submitting my Enterolab test samples so I can find out more definitively about the celiac disease, whether or not I have the genes, if I react to the casein protein and so on. This way I will KNOW and don't have to spend time worrying about whether or not my intestines are being damaged by gluten. I'll know just how serious I have to be about my avoidance of gluten I've eliminated the obvious gluten, but I still haven't been scrupulous about the hidden gluten ingredients. The test will end the speculation and tell me what I need to do. Since I have avoided wheat products for the most part for the last few months, and have totally avoided all gluten as much as possible for over a month, a blood test would be an expensive shot in the dark for me at this point. That's why I decided to try the Enterolab test.

Finally, I'm just not going to put myself in the hands of a doctor who is casting blindly about doing test after test and trying to luck into some sort of clarification thru trial and error....and at the expense of my own pocketbook, too!

For those who get severely sick from any gluten exposure, the necessity of dietary changes is obvious. But for those who get somewhat annoying yet tolerable negative results from eating gluten, they probably have a greater need to get some solid answers beyond the diet. For example, if I test positive on the gluten end of things but negative on the casein, I might be able to assume that after a period of gluten free time my intestines might be able to handle limited dairy. If I test with a reaction to casein, I have to proceed differently. I just feel a need to know one way or the other. I need that perspective, and if I definitely have celiac disease, I will have a stronger motivation to stay clear of gluten forever.

What a pain all this is! But I'm glad to have found this forum,I have learned so much from everyone! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KaitiUSA Enthusiast
KaitiUSA
Posted

The blood tests were high so I would definitely think you have celiac. All of the tests were not done but those are high enough and you had symptoms so thats really evidence enough. When you are gluten free you should not do testing because that makes tests inaccurate. If symptoms are now going away that looks like gluten was in fact your problem but do not expect to be 100% better so quick...sometimes it takes months to feel better. You need to be 100% gluten free including products like lotions, shampoos, makeups, etc.

janep Newbie
janep
Posted
Hi janep and welcome to the board! It's a shame that the dr's didn't want to know why you were having problems. A good thing about celiac is that it doesn't need expensive meds to control it. Just eating more natural foods (ie eliminating overprocessed junk) that are high in protein content should help quite a bit. Even when I'm 100% gluten-free, if I don't keep my protein above 50 grams a day, I get really tired and sluggish. My dr. dx'd me with the diet challenge only, and that was good enough for me. Keep us posted with your progress!

Deat Nettiebeads,

Thank you for the welcome. Yes, too much protein can make me feel creepy, and I appreciate the reminder. This is Day 3. Even tho I am eating starches: rice, corn, potatoes, I am CRAVING wheat! The taste and texture of it! The craving tells me that I am allergic or intolerant.

By the way, Nettiebeads, I love beads and do lots of beadwork.

Janep

nettiebeads Apprentice
nettiebeads
Posted
Deat Nettiebeads,

Thank you for the welcome. Yes, too much protein can make me feel creepy, and I appreciate the reminder. This is Day 3. Even tho I am eating starches: rice, corn, potatoes, I am CRAVING wheat! The taste and texture of it! The craving tells me that I am allergic or intolerant.

By the way, Nettiebeads, I love beads and do lots of beadwork.

Janep

Ah, you're the first one that got it!!!! My bead corner in my workroom is getting real crowded. I may have to cut back on my sewing material :o ! Can't live without my beading or my sewing. I actually have three comissioned pieces to work on this coming month. Three tumbled nuggets to be wire-wrapped, which I've never done, and the necklaces to put them on. The lady trusts me for my bead stringing, she's always admiring my peices when I wear them to work. Taught myself to do loomwork when I was 8 or 9. What do you like to do? PM me if you would like. And where are you located?

janep Newbie
janep
Posted
Ah, you're the first one that got it!!!! My bead corner in my workroom is getting real crowded. I may have to cut back on my sewing material :o ! Can't live without my beading or my sewing. I actually have three comissioned pieces to work on this coming month. Three tumbled nuggets to be wire-wrapped, which I've never done, and the necklaces to put them on. The lady trusts me for my bead stringing, she's always admiring my peices when I wear them to work. Taught myself to do loomwork when I was 8 or 9. What do you like to do? PM me if you would like. And where are you located?

Hey, Nettiebeads! Wow, taught yourself to loom when you were a kid? That's amazing. I like to do small seed bead peyote stitch or brick stitch with gemstome bead accents. I have done wire wrapping: it's fun, you'll like it. I am currently in Albuquerque, NM --but we are moving very soon to Grand Junction, CO. Anyhoo, I am noticing that my skin is becoming smooth and soft now that I am off of gluten. Inside my mouth, too. Thanks, Jane

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative...
    2. JudyLou
      - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankle...
    3. marzian
      - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

      This is very exciting news. The research lends itself to preventing the immune system in other autoimmune disorders from getting out of sorts. As someone with a compendium of autoimmune disorders I feel a bit of hope.
    4. Jmartes71
      - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week, in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with...
    5. Scott Adams
      - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Blood Test for Celiac wheat type matters?

      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,140
    • Most Online (within 30 mins)
      7,748
    Staticgypsy
    Newest Member
    Staticgypsy
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Seeking advice on potential gluten challenge

      By trents · Posted

      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Medications

      By Jmartes71 · Posted

      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      Blood Test for Celiac wheat type matters?

      By Scott Adams · Posted

      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
    • Jmartes71
      Airborne Gluten?

      By Jmartes71 · Posted

      I also noticed I get debilitating migraines when I smell gluten, wheat and its not taken seriously when it affects one in every way.Im still begging to properly be heard.I also noticed tolerance level is down the drain with age and life changes. I have been told by incompetent medical that im not celiac or that sensitive. Diagnosed in 1994 by gi biopsy gluten-free ever since along with other lovely food allergies. Prayers
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.