Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mono Diagnosis and Microabscess on Tonsils


powerofpositivethinking

Recommended Posts

powerofpositivethinking Community Regular

So my December hasn't been quite as I had planned ?  Got diagnosed with mono at the beginning of the month, and then had my airway almost swell shut after developing a secondary super bacterial infection and microabscess on my tonsils.  Ended up staying in the hospital for three days for that and because my heart rate was elevated.  Luckily the hospital had decent gluten free food.  Shoutout to Pennsylvania Hospital for that! 

Anyway since with celiac our immune systems are already having a rough time, I'm wondering if anyone has had mono post celiac diagnosis, and if you found anything that really helped you recover faster.  I'm such an on the go person, and mono has knocked my feet out from under me this month.  I am resting and laying around, drinking lots of water but was hoping my fellow GFers had some suggestions.  For reference, I am a 32 year old female.  PS-thankfully my doctor isn't one who tells people you can't have mono past the age of 25.  I was initially misdiagnosed with a sinus infection at an urgent care, and antibiotics were doing nothing.  I went to my primary care doctor, and she ran the mono blood test that showed I am currently in the acute phase of the infection.  Also if this helps anyone, strep throat and mono throat look the same.  I had white patches allllllll over my throat but had two negative strep tests.  So really it was mono throat the whole time, and let me tell you...worst sore throat of my life!  The positive is I had made it to age 32 without ever being admitted to the hospital, so I'll take that as a win!  Please send any and all suggestions my way.  Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

I am so sorry to hear about your Mono.  From what I understand, it takes time to heal even if you do not have celiac disease or other illnesses.  

Just like healing from celiac disease or mending bones from a fracture, you just have to be patient.  Take advantage of it.  When I fractured my back (osteoporosis from celiac disease), I chose to milk it for once in my life.  No bed making for me.  No chores.  Lots of resting, binge watching TV, reading and learning to appreciate being bored.  Soon my back healed. It took time though.  If I recall, it took a year before I was back on my bike willing to risk other fractures.  

I could use a rest like this now!  

Hang in there!  Hugs!  

RMJ Mentor

I had mono in my mid-thirties, pre-celiac diagnosis. My main symptom was extreme tiredness (well, that and a very swollen lymph node in my armpit).  I was out of work for a month.  If you’ve only had it since the beginning of the month you probably just need more time to heal.  You will get over it!

Posterboy Mentor

PowerofPositiveThinking,

Here is a thread that might help you.

https://www.celiac.com/forums/topic/122593-tonsillectomy/?tab=comments#comment-997652

Often taking the amino acid lysine will help mouth sores and swilling with salt water also can help if you can bear it.  Don't swallow the salt water only swill it and spit it back out after 30 seconds or so.

Most Tonsils issues are probably not bacterial in nature but viral.. .. and explains why the antibiotics didn't help you.

Here is the research on it

https://www.ncbi.nlm.nih.gov/pubmed/19488557

also see this new research just this week about how CFS are now thought to be linked to viruses and an overactive/hyper active immune system.

https://www.msn.com/en-us/health/other/chronic-fatigue-syndrome-may-be-due-to-an-overactive-immune-system-study-shows/ar-BBR5ba3

I hope this is helpful but it is not medical advice.

“Consider what I say; and the Lord give thee understanding in all things” this included.

2 Timothy 2:7

Good luck on your continued journey.

Posterboy by the grace of God,

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Sue7171 replied to Ginger38's topic in Related Issues & Disorders
      24

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - sc'Que? commented on Scott Adams's article in Product Labeling Regulations
      1

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

    3. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

    4. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    5. - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,174
    • Most Online (within 30 mins)
      7,748

    Donna K Anderson
    Newest Member
    Donna K Anderson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Sue7171
      My husband just had shingles going on 7 weeks now. We had been putting Vaseline on the blisters and lidocaine cream and he was prescribed an antiviral.  Also he still has the nerve pain it was bad and is getting better it is his upper left torso. His dr prescribed gabapentin 300mg 3x a day and he's also taking naproxen 500ng 2x a day and tylenol 1000mg every 6 hrs. Hope this helps  The lidocaine cream is by tylenol and is available in a large tube on Amazon or at Walmart 
    • xxnonamexx
      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.