Celiac symptoms

[Janie M]

Does anyone get celiac symptoms taking desiccated thyroid medication? 

[cyclinglady]

No.  I have been taking Armour Thyroid for over 20 years.  It is gluten free.  I am also a repeat biopsy-confirmed healed celiac.    Autoimmune thyroiditis is common and is often linked with celiac disease.  Why are you taking thyroid hormone replacement?  

If you have celiac disease and are having abdominal pain, maybe you have a corn intolerance.  In that case, you might need a compounding pharmacy to make your thyroid replacement or use a synthetic version.  Are you experiencing allergic reactions (hives, trouble breathing, etc.)?

[Janie M]

17 hours ago, cyclinglady said:

No.  I have been taking Armour Thyroid for over 20 years.  It is gluten free.  I am also a repeat biopsy-confirmed healed celiac.    Autoimmune thyroiditis is common and is often linked with celiac disease.  Why are you taking thyroid hormone replacement?  

If you have celiac disease and are having abdominal pain, maybe you have a corn intolerance.  In that case, you might need a compounding pharmacy to make your thyroid replacement or use a synthetic version.  Are you experiencing allergic reactions (hives, trouble breathing, etc.)?

I take thyroid replacement for hypothyroidism.  I originally was on generic synthroid which did not help me.  I’m on NP Thyroid which is porcine and has inactive ingredients of mineral oil, dextrose and calcium stearate.  I’m not sure what is troubling my gut, but of course cross contamination is always at the forefront with celiac.  My celiac is controlled with a gluten free diet.    I need my thyroid med to function, so I hope my issue isn’t with it.  

No allergic symptoms.  I’ll talk to my pharmacist about compounding. 

Edited February 20, 2019 by Janie M

[cyclinglady]

NP Thyroid is definitely gluten free per some of our long-term, celiac savvy members (e.g. Gemini, If I recall).  And unlike my Armour, NP even states it is gluten free on their website:

https://npthyroid.com/about/

Again, you might have developed a corn intolerance which might be the dextrose source, but it is so refined.   I doubt this would be an issue, but anything is possible.

Why are you hypothyroid?  Because if you have celiac disease, chances are you have autoimmune thyroiditis.  While my thyroid is managed somewhat with hormone replacement my thyroid antibodies are often still elevated and wreak havioc beyond my thyroid.  My allergist thinks my autoimmune hives are linked to thyroid as well as my autoimmune Gastritis.  It is one reason why I am so strict with my gluten free diet.  If I get a hidden exposure to gluten, it sets off all my antibodies.  In fact, I had GERD after a gluten exposure that did not resolve.  Turns out a repeat endoscopy revealed a healed small intestine, but gastritis biopsies showed Chronic  Autoimmune  Gastritis.  An Autoimmune disorder linked to thyroiditis, aging and women.  That would be ME!  

If you have celiac disease,  when was the last time you had celiac follow-up care (which includes celiac antibodies retesting)?  Many doctors issue a celiac diagnosis, tell you to go gluten free and that is it.  But you need continued care!  

http://www.cureceliacdisease.org/faq/how-often-should-follow-up-testing-occur/

If you do not have a celiac diagnosis, consider testing.  No one should always feel unwell!  I do know that autoimmune Thyroiditis sufferers  try the gluten free diet.  That is great, but they should be screened for celiac disease first because all celiac testing requires you to be on a full gluten diet.  

http://www.cureceliacdisease.org/screening/

 

 

Edited February 20, 2019 by cyclinglady