Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could I still have celiac disease?


Lesluvs37

Recommended Posts

Lesluvs37 Newbie

I recently went to the Gastroenterologist who told me something about possibly having celiac disease something about my upper GI I had in 2016 of there being a small trace of something that could indicate celiac disease. Anyway, he sent me for blood work and everything came back normal, except my glucose was slightly elevated at 103 other than that CMP and CBC was normal and my lipase serum was 54 u/l so could I still have Celiac Disease? 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

If you still eat gluten regularly it would make sense to get a follow up celiac disease blood panel. Definitely talk to your doctor in more detail about you biopsy results, but with the little info you gave us here there’s no way to tell for sure.

Lesluvs37 Newbie

Thanks for your reply ? I guess I should be more specific lol I'm all over the place sometimes. So the upper gi was performed in 2016. The blood work u just picked up today. I have been having horrible tummy issues like constipation, heartburn "gerd" if u will. And just this week my belly has been swollen. I have horrible gas like not burping. But belching. I've always ate bread chips cereal never a problem. But if this could be celiac I dont want it. I will give up all that to not have all this terrible gas and heartburn. Anyways, could Celiac be diagnosed still if my Lipase blood work came out normally. 

kareng Grand Master
4 minutes ago, Lesluvs37 said:

Thanks for your reply ? I guess I should be more specific lol I'm all over the place sometimes. So the upper gi was performed in 2016. The blood work u just picked up today. I have been having horrible tummy issues like constipation, heartburn "gerd" if u will. And just this week my belly has been swollen. I have horrible gas like not burping. But belching. I've always ate bread chips cereal never a problem. But if this could be celiac I dont want it. I will give up all that to not have all this terrible gas and heartburn. Anyways, could Celiac be diagnosed still if my Lipase blood work came out normally. 

Lipase is not a test for Celiac.  Did they do actual Celiac blood tests?  If you have been eating gluten consistently since 2016, you should get the Celiac blood tests.  CBC, etc are not for diagnosing Celiac

Ennis-TX Grand Master

You need the full Celiac blood panel, this disease can develop any time.  The upper GI scope (Endoscope) is normally done after with biopsies to check for damage. Some people do not show on the blood test but will still have the damage. I will give you some info post on the blood test screening and the scope diagnosis. But you need to really see about eating gluten every day and finishing testing properly. 
https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/
https://celiac.org/about-celiac-disease/screening-and-diagnosis/diagnosis/


PS I had the constipation issue before diagnosis, Natural Vitality Calm will help, the issue is from magnesium deficiency. Start with 1/4tsp or 2 grams and up the dose 2g each day til your get loose stools. Then back down 2g. You have to dose to tolerance with this stuff. 

Lesluvs37 Newbie

Thank u all for the Response! I will check with my doctor in a few weeks ? All this info is so new to me, so thank u for all the info❤

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,987
    • Most Online (within 30 mins)
      7,748

    Vmh
    Newest Member
    Vmh
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Then it sounds like the thing you really need to focus more on is being more consistent with the gluten-free diet. Another suggestion I would make is to avoid using a lot of pre-made gluten-free food. Gluten-free facsimile flours are not enriched like their wheat counterpart and are full of empty calories. Focus on naturally gluten free foods that are nutrient and calorie dense. Have you had your vitamin D3 levels checked?
    • Sarawiththeceliac
      I know that but they make my sides hurt , believe me I think I have very poor absorbtion I take iron and it doesn't go up , vitamins and everything else the test results are the same from the last year 
    • trents
      It's normal for the pee to turn yellow when taking large doses of B vitamins, particularly riboflavin (B2). That doesn't mean they are building up in the kidneys. It means the excess is being excreted. The B vitamins are water soluble. 
    • Sarawiththeceliac
      Because since the vitamins are not absorbed due to the inflammation shown by high levels of tTg IGA levels,it will just cause buildup or the kidney will get tired .I already take vitamins and I could see them in my pee the next 4 minutes I don't feel like vitamins are well absorbed I took vitamin b 12 , magnesium and other things and my test results are normal but still not high considering I have been taking them now for almost 3 years .i think there is no point in taking them now since there is a high inflammation I should wait more until maybe I could start to absorb something I already took IV infusion for iron because it by pass the gut due to the poor absorbtion already .
    • Kimmy88
×
×
  • Create New...