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Good news and pumped after upper GI follow-up!

trents
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trents Grand Master
trents
Posted

I was diagnosed with celiac disease about 16 years ago but a couple of upper GI endoscopies within the first three years of diagnosis showed villi blunting still unchanged. I was discouraged then because I was making every effort to eat gluten-free. I had pretty much concluded I had the refractory type of celiac disease. A couple of weeks ago, however, I was referred by primary care to my gastro doc for followup of a FIT stool test that was positive. The FIT test was ordered in response to three episodes of protracted vomiting with a week and a half. I thought I saw what could have been blood in the puke from one of those episodes. Or maybe it was a pimento or a chunk of tomato. It can be difficult to visually discern those things under the circumstances.

Since my gastro doc had already done a colonoscopy back in December he opted for an upper GI this time which showed no lesions. But there were two pieces of unexpected good news:

1. My hiatal hernia measured 2.5 cm intead of 9 cm as it had been measured originally, some years ago. Doc said it is difficult to get accurate measurements on those because of distortion from movement of the scope but he said it certainly had not enlarged any.

2. And the best news was that my villi now looked healthy. That's a big PTL! Since retirement, my efforts at eating gluten free have paid off. I now have more control over where I ate and what I ate than I did in my working years even though I did my best back then.

The reason for the positive FIT test is still uncertain but I probably should have waited longer after my last episode of emesis before taking the test, especially since I'm on a blood thinner. The GI doc thought the positive FIT was likely caused by trauma from the vomiting.

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cyclinglady Grand Master
cyclinglady
Posted

What fantastic news!  

I think your GI is probably correct in that all that vomiting could have caused the blood in your test, especially since you just had a colonoscopy in January.  Will he have you repeat the test in a few months?  

Like you, I think my health has improved, the stricter I have become with my gluten free diet.  For me, it includes avoiding processed foods as much as possible and eating out at only dedicated gluten-free restaurants.   

icelandgirl Proficient
icelandgirl
Posted

I'm so excited for you!  So great to get news that your villi are healthy!!

trents Grand Master
trents
Posted
  • Author

I assume you mean the FIT when you inquire about the GI doc repeating the test. He did not mention that and I got the impression he's not a real fan of the FIT since a positive result can be produced by so many things that are just transitory in nature. But I'm sure my primary would be open to it.

cyclinglady Grand Master
cyclinglady
Posted
12 hours ago, trents said:

I assume you mean the FIT when you inquire about the GI doc repeating the test. He did not mention that and I got the impression he's not a real fan of the FIT since a positive result can be produced by so many things that are just transitory in nature. But I'm sure my primary would be open to it.

Does your primary offer it every year?  If so, consider taking it again.  I am not a doctor, but I would think it would be prudent.  Again, with a clean colonoscopy, I think you do not need one for another 10 years and that FIT test was probably tripped by other issues (like all that vomiting you described and being on a blood thinner).  

 

healthysquirrel Enthusiast
healthysquirrel
Posted

So glad for you about the good news. YAY!

trents Grand Master
trents
Posted
  • Author
4 hours ago, cyclinglady said:

Does your primary offer it every year?  If so, consider taking it again.  I am not a doctor, but I would think it would be prudent.  Again, with a clean colonoscopy, I think you do not need one for another 10 years and that FIT test was probably tripped by other issues (like all that vomiting you described and being on a blood thinner).  

 

Not sure if my primary offers the FIT annually but I'm sure she would be willing to order it again seeing as how it was positive recently. Yes, it would be prudent. I agree.

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