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Myspace

DragonQueen

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LqrMan Newbie
LqrMan
Posted

I just joined that group too. There are at least 5 other groups for celiacs on my space as well. Some guy even started a group for GLUTEN LOVERS...lol...how sad.

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Moongirl Community Regular
Moongirl
Posted

eww that pretty sad....but hey if he really likes it that much.... :huh: let him eat all he wants

jerseyangel Proficient
jerseyangel
Posted
Woo hoo! I'm in! Patti-what’s your my space address?

It's My Space/pattinsj--I'm flying by the seat of my pants over there! This board is the only time I've been involved in an online group. I joined up so I could be a part of the Celiac group that Bronco started. Now I really have to get a picture! We bought a digital camera, so now I have no more excuses :D If I need help, can I count on you? :huh:

jenvan Collaborator
jenvan
Posted

Sure thing Patti..I'll help you out! Its not hard...I'm still a baby as far as myspacers go, but I can only be a slave to one site at a time :)

Claire Collaborator
Claire
Posted

broncobux- thanks for the help. As I said, I am very used to computers - work hours a day here but this just didn't work. I finally took the URL, pasted it into a doc and made it inactive and then activated it from that location. With that it worked fine. I did sign up but don't know how much I will get there. It it will take a bit to get used to it and I already spend too much time here!

Too many plates in the air! Thanks again. Claire

KaitiUSA Enthusiast
KaitiUSA
Posted

I just now found this thread...I will join today:)

my space.com/kaitiusa

KaitiUSA Enthusiast
KaitiUSA
Posted

I can't get to the link..it keeps saying this page can't be displayed

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VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted

Sorry Claire,

I misread your post -- I thought it said "I am NOT computer savvy" -- my fault -- now my former post looks condescending...

:(

No offense I hope

Welcome to the group Kaiti and Brit!

We now have 13 -- keep em coming!!

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

Did you gues delete your group? I searched on MySpace and found many other Celiac groups but not this one.

jerseyangel Proficient
jerseyangel
Posted

No--it's there. It's called Gluten Free Freaks.

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

I found "Gluten Free Freaks" easily this time, thank you.

num1habsfan Rising Star
num1habsfan
Posted

if anyone wants to add me (that I havent already found) my name/page on there is num1habsfan :P

~lisa~

  • 1 month later...
Kayla Nichole Newbie
Kayla Nichole
Posted

YAY I joined.....thats how I actually found this site, from a group in myspace, its the first one when you type in "Celiac" you guys should join it also.....you can never be in to many groups B)

jenvan Collaborator
jenvan
Posted

Welcome here Kayla!

Archived

This topic is now archived and is closed to further replies.

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      By trents · Posted

      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
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      Rectal pain

      By Celiac and Salty · Posted

      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously!
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      Guinness, can you drink it?

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      By MogwaiStripe · Posted

      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
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