Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feeling Sick But Still Hungry


gointribal

Recommended Posts

gointribal Enthusiast

I am new to Celiac so I have weird things happening, but I was wondering if any one else was too?! If I eat gluten I feel wicked sick, get gas, bloated, my vision is blured, I feel like I am going to throw up but I still am hungry! I don't know what it is or if its just me, but does anyone else have this too?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MACE Rookie

I GET ALOT OF WHAT YOU ARE SAYING, BUT FOR ME I THINK IF I GET SOME GLUTEN IT SETS OFF SOME KIND OF CRAVING WHERE I WANT MORE AND MORE TO EAT. IF I STAY WITHOUT GLUTEN I DO NOT SEEM TO GET HUNGERY MUCH AT ALL, IN FACT I HAVE TO REMIND MYSELF TO EAT. BEFORE GOING GLETEN FREE I WAS ALWAYS HUNGERY. THEN I WAS EATING ALOT OF PASTA ETC. AND COULD NEVER GET ENOUGH TO EAT. THAT IS ONE OF THE FIRST THINGS I NOTICED WAS THAT I WAS NOT SO HUNGERY AFTER GETTING OFF OF THAT STUFF.

sorry about the caps, forgot i had them on and do not want to retype it all.

jerseyangel Proficient

Yes--it dosen't seem to make any sense, but even if I am sick from a gluten reaction, I still get hungry and also very thirsty. I think it seems strange, because we tend to equate the upset stomach, D and the rest of the symptoms as an illness--as the flu would be. The gluten reaction is, as we know, an autoimmune reaction--not a virus or a bacteria--so maybe that's why it dosen't affect our appetites the way we expect. I don't know--just my thoughts :)

CeliaCruz Rookie

Makes perfect sense to me. When your immune system senses that gluten is in your system, it reacts as if being poisoned and clears everything (even the non-glutenous stuff) out of your digestive system really fast. That's what the diarrhea is. Subsequently, there's no food in your digestive system and so a signal is sent that new food is needed and that's where the hunger pangs and cravings come from. Yeah, you'd think that after this really nasty painful experience you'd hardly want anything else to eat, but actually you need some food in you to replace the stuff you just "lost".

jerseyangel Proficient

Yea--that's why the hunger almost feels urgent--like "I need to eat now", rather than, "mmm, I could eat something....."

elonwy Enthusiast

I get the same thing with Gluten. I want to keep eating even though it feels terrible. ACK! Its aweful. I just gave myself chills thinking about it.

Elonwy

Carriefaith Enthusiast
I am new to Celiac so I have weird things happening, but I was wondering if any one else was too?! If I eat gluten I feel wicked sick, get gas, bloated, my vision is blured, I feel like I am going to throw up but I still am hungry! I don't know what it is or if its just me, but does anyone else have this too?
Yes, I also feel like that after I accidentally eat gluten. I'm feeling that way right now actually, after getting glutened earlier in the week.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CeliaCruz Rookie
I get the same thing with Gluten. I want to keep eating even though it feels terrible. ACK! Its aweful. I just gave myself chills thinking about it.

Oh yeah! Back when I thought I only had a wheat allergy I'd cheat from time to time. If I was good and abstained from wheat altogether, it wasn't that hard to stay away. But if I ate something with wheat in it, I'd crave more of the same for at least a few days later. It's like what they say happens to a sober alcoholic if he has a single drink -- it's only a matter of time before he goes on a bender!

purpleJennie Newbie

Hello............I'm new to this forum and look forward to learning more about this illness and how everyone's coping.

I've just been diagnosed with gluten intolerance, but don't experience the most common symptoms. I have no stomach/bowel problems. I do have a history of depression, endometriosus, osteoarthritis, etc..... My dilemna is the fact that I don't feel any different when not eating gluten. It's difficult for me to abide by this diet when I don't get any instance "consequences". I hope I'm explaing myself...I'm so confused!! I'm hungry a lot, am sticking to the diet, and have gained 4 lbs.!! What the heck! :o

Any suggestions/thought are appreciated.

Rachel--24 Collaborator

Dunno whats wrong with me but when I'm glutened I'm not hungry at all...I dont want to eat anything for the first couple days and THEN all of a sudden I'm starving and cant get enough. Initially though...those first days.....the thought of eating scares me. :blink:

purpleJennie, welcome to the board!

I don't get much of the classic symptoms either so you're not alone there. How long have you been on the diet? If you've only just started you may notice changes that you didn't realize were related to gluten.

purpleJennie Newbie
Dunno whats wrong with me but when I'm glutened I'm not hungry at all...I dont want to eat anything for the first couple days and THEN all of a sudden I'm starving and cant get enough. Initially though...those first days.....the thought of eating scares me. :blink:

purpleJennie, welcome to the board!

I don't get much of the classic symptoms either so you're not alone there. How long have you been on the diet? If you've only just started you may notice changes that you didn't realize were related to gluten.

Thanks for the reply...............I've been on this diet for about 10 days and because I don't have immediate consequences, i.e., gastric stuff, etc., I'm having a difficult time rationalizing this diet. I went to a gluten free store today and purchased a bunch of stuff. Everything is so darned expensive! Yikes :unsure:

I'm not feeling much different than I did when I was queen of fiber, but I have been sleeping much better..........

I saw on your info that you were diagnosed through Entero Labs.....I was too!!!

frenchiemama Collaborator

I get that too. I will get SOOO hungry, completely famished, and then if I eat anything I feel sick right away. It's very odd.

carriecraig Enthusiast

Before I was diagnosed, I was so hungry all of the time, even though I was eating at least 6 small meals a day. I was eating more then my husband who is almost 2x my weight. When eating gluten, your body isn't absorbing an nutirents, so it craves more food to try and compensate.

When i get glutened now, I am really hungry for about a week after it happens.

rache Apprentice

i was glutened over the weekend and i think ive been more hungry now that i feel sick than when im gluten free! its strange how that works.

  • 3 years later...
sonear Newbie

I have felt the same and wonder if the hunger is due to the nutritional deficiencies that come with celiac. I am totally gluten-free for 6 months but still struggling with regaining my health. Sometimes I feel like I am starving but nothing sounds good. I wander the kitchen in a kind of tortured trance before sending myself off to bed. I guess this is why some celiacs gain weight rather than lose it.

StacyA Enthusiast
Hello............I'm new to this forum and look forward to learning more about this illness and how everyone's coping.

I've just been diagnosed with gluten intolerance, but don't experience the most common symptoms. I have no stomach/bowel problems. I do have a history of depression, endometriosus, osteoarthritis, etc..... My dilemna is the fact that I don't feel any different when not eating gluten. It's difficult for me to abide by this diet when I don't get any instance "consequences". I hope I'm explaing myself...I'm so confused!! I'm hungry a lot, am sticking to the diet, and have gained 4 lbs.!! What the heck! :o

Any suggestions/thought are appreciated.

Keep a journal of what you eat and what your symptoms are (even rating them based on a 1-10 scale), and maybe seeing it on paper will help you not only find a pattern but also discourage 'cheating'.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,557
    • Most Online (within 30 mins)
      7,748

    kghorne3
    Newest Member
    kghorne3
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.