Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feeling Sick But Still Hungry


gointribal

Recommended Posts

gointribal Enthusiast

I am new to Celiac so I have weird things happening, but I was wondering if any one else was too?! If I eat gluten I feel wicked sick, get gas, bloated, my vision is blured, I feel like I am going to throw up but I still am hungry! I don't know what it is or if its just me, but does anyone else have this too?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MACE Rookie

I GET ALOT OF WHAT YOU ARE SAYING, BUT FOR ME I THINK IF I GET SOME GLUTEN IT SETS OFF SOME KIND OF CRAVING WHERE I WANT MORE AND MORE TO EAT. IF I STAY WITHOUT GLUTEN I DO NOT SEEM TO GET HUNGERY MUCH AT ALL, IN FACT I HAVE TO REMIND MYSELF TO EAT. BEFORE GOING GLETEN FREE I WAS ALWAYS HUNGERY. THEN I WAS EATING ALOT OF PASTA ETC. AND COULD NEVER GET ENOUGH TO EAT. THAT IS ONE OF THE FIRST THINGS I NOTICED WAS THAT I WAS NOT SO HUNGERY AFTER GETTING OFF OF THAT STUFF.

sorry about the caps, forgot i had them on and do not want to retype it all.

jerseyangel Proficient

Yes--it dosen't seem to make any sense, but even if I am sick from a gluten reaction, I still get hungry and also very thirsty. I think it seems strange, because we tend to equate the upset stomach, D and the rest of the symptoms as an illness--as the flu would be. The gluten reaction is, as we know, an autoimmune reaction--not a virus or a bacteria--so maybe that's why it dosen't affect our appetites the way we expect. I don't know--just my thoughts :)

CeliaCruz Rookie

Makes perfect sense to me. When your immune system senses that gluten is in your system, it reacts as if being poisoned and clears everything (even the non-glutenous stuff) out of your digestive system really fast. That's what the diarrhea is. Subsequently, there's no food in your digestive system and so a signal is sent that new food is needed and that's where the hunger pangs and cravings come from. Yeah, you'd think that after this really nasty painful experience you'd hardly want anything else to eat, but actually you need some food in you to replace the stuff you just "lost".

jerseyangel Proficient

Yea--that's why the hunger almost feels urgent--like "I need to eat now", rather than, "mmm, I could eat something....."

elonwy Enthusiast

I get the same thing with Gluten. I want to keep eating even though it feels terrible. ACK! Its aweful. I just gave myself chills thinking about it.

Elonwy

Carriefaith Enthusiast
I am new to Celiac so I have weird things happening, but I was wondering if any one else was too?! If I eat gluten I feel wicked sick, get gas, bloated, my vision is blured, I feel like I am going to throw up but I still am hungry! I don't know what it is or if its just me, but does anyone else have this too?
Yes, I also feel like that after I accidentally eat gluten. I'm feeling that way right now actually, after getting glutened earlier in the week.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CeliaCruz Rookie
I get the same thing with Gluten. I want to keep eating even though it feels terrible. ACK! Its aweful. I just gave myself chills thinking about it.

Oh yeah! Back when I thought I only had a wheat allergy I'd cheat from time to time. If I was good and abstained from wheat altogether, it wasn't that hard to stay away. But if I ate something with wheat in it, I'd crave more of the same for at least a few days later. It's like what they say happens to a sober alcoholic if he has a single drink -- it's only a matter of time before he goes on a bender!

purpleJennie Newbie

Hello............I'm new to this forum and look forward to learning more about this illness and how everyone's coping.

I've just been diagnosed with gluten intolerance, but don't experience the most common symptoms. I have no stomach/bowel problems. I do have a history of depression, endometriosus, osteoarthritis, etc..... My dilemna is the fact that I don't feel any different when not eating gluten. It's difficult for me to abide by this diet when I don't get any instance "consequences". I hope I'm explaing myself...I'm so confused!! I'm hungry a lot, am sticking to the diet, and have gained 4 lbs.!! What the heck! :o

Any suggestions/thought are appreciated.

Rachel--24 Collaborator

Dunno whats wrong with me but when I'm glutened I'm not hungry at all...I dont want to eat anything for the first couple days and THEN all of a sudden I'm starving and cant get enough. Initially though...those first days.....the thought of eating scares me. :blink:

purpleJennie, welcome to the board!

I don't get much of the classic symptoms either so you're not alone there. How long have you been on the diet? If you've only just started you may notice changes that you didn't realize were related to gluten.

purpleJennie Newbie
Dunno whats wrong with me but when I'm glutened I'm not hungry at all...I dont want to eat anything for the first couple days and THEN all of a sudden I'm starving and cant get enough. Initially though...those first days.....the thought of eating scares me. :blink:

purpleJennie, welcome to the board!

I don't get much of the classic symptoms either so you're not alone there. How long have you been on the diet? If you've only just started you may notice changes that you didn't realize were related to gluten.

Thanks for the reply...............I've been on this diet for about 10 days and because I don't have immediate consequences, i.e., gastric stuff, etc., I'm having a difficult time rationalizing this diet. I went to a gluten free store today and purchased a bunch of stuff. Everything is so darned expensive! Yikes :unsure:

I'm not feeling much different than I did when I was queen of fiber, but I have been sleeping much better..........

I saw on your info that you were diagnosed through Entero Labs.....I was too!!!

frenchiemama Collaborator

I get that too. I will get SOOO hungry, completely famished, and then if I eat anything I feel sick right away. It's very odd.

carriecraig Enthusiast

Before I was diagnosed, I was so hungry all of the time, even though I was eating at least 6 small meals a day. I was eating more then my husband who is almost 2x my weight. When eating gluten, your body isn't absorbing an nutirents, so it craves more food to try and compensate.

When i get glutened now, I am really hungry for about a week after it happens.

rache Apprentice

i was glutened over the weekend and i think ive been more hungry now that i feel sick than when im gluten free! its strange how that works.

  • 3 years later...
sonear Newbie

I have felt the same and wonder if the hunger is due to the nutritional deficiencies that come with celiac. I am totally gluten-free for 6 months but still struggling with regaining my health. Sometimes I feel like I am starving but nothing sounds good. I wander the kitchen in a kind of tortured trance before sending myself off to bed. I guess this is why some celiacs gain weight rather than lose it.

StacyA Enthusiast
Hello............I'm new to this forum and look forward to learning more about this illness and how everyone's coping.

I've just been diagnosed with gluten intolerance, but don't experience the most common symptoms. I have no stomach/bowel problems. I do have a history of depression, endometriosus, osteoarthritis, etc..... My dilemna is the fact that I don't feel any different when not eating gluten. It's difficult for me to abide by this diet when I don't get any instance "consequences". I hope I'm explaing myself...I'm so confused!! I'm hungry a lot, am sticking to the diet, and have gained 4 lbs.!! What the heck! :o

Any suggestions/thought are appreciated.

Keep a journal of what you eat and what your symptoms are (even rating them based on a 1-10 scale), and maybe seeing it on paper will help you not only find a pattern but also discourage 'cheating'.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    4. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.