Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Severe Nausea Has Me Bed Bound

CharlesBronson
 Share

Recommended Posts

CharlesBronson Enthusiast
CharlesBronson
Posted

Hello All,

I had a reaction to food right after the New Year (thinking it was too much avocado), and I've been sick ever since. The nausea is really severe, and I'm barely able to eat anything at all. I've basically been laying down for over a month now... Losing hope. 

I'm not able to see my GI Doc until this summer for another scope of my guts, so my family doctor gave me an Rx for Metoclopramide, but the list of side effects is insane - including mental and physical ones. I'm already too ill for any other side effects. 

Does anyone have some tips on dealing with chronic nausea or an alternative medicine without so many severe side effects? 

Thank you

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Any chance of getting an appointment sooner (cancellation)?  ?    

Any chance of you living in a place like California where you can legally get marijuana?  I hear that it helps with nausea.  

My heart goes out to you.  

CharlesBronson Enthusiast
CharlesBronson
Posted
  • Author

Thank you CyclingLady :) 

I'm on the cancelation list, so here's hoping.

I so, so wish I could tolerate cannabis. I had a prescription years ago for the pain and nausea and it worked wonders, but nearly made me lose my mind... panic, paranoia, delusions. Unfortunately I'm just not able to use it :( 

I guess I'm just a really bad case of Celiac or there is something else in my gut that a scope will reveal. 

 

MisterSeth Enthusiast
MisterSeth
Posted
18 hours ago, CharlesBronson said:

Thank you CyclingLady :) 

I'm on the cancelation list, so here's hoping.

I so, so wish I could tolerate cannabis. I had a prescription years ago for the pain and nausea and it worked wonders, but nearly made me lose my mind... panic, paranoia, delusions. Unfortunately I'm just not able to use it :( 

I guess I'm just a really bad case of Celiac or there is something else in my gut that a scope will reveal. 

 

celiac and/or crones. don't eat the cannabis just smoke it. I had a similar run in with cannabis a few years back where i ended up blaming it for my entire psychological state. 

turns out 1: i was getting gaslighted by multiple people who were aware i had been smoking pot

2: I was smoking way too much because i was forgetting i took a dose

cannabis doesn't cause delusions or psychosis or anything like schizophrenia. every time I heard that claim there was either cocaine, alcohol, mushrooms or a toxic relationship involved

GFinDC Veteran
GFinDC
Posted
(edited)

Hi Charles,

Nausea can be a symptom of gallbladder issues also.  Maybe you can get a different GI to check your gallbladder?  Gallbladder problems can occur with celiac disease.

https://www.healthline.com/health/gallbladder-problems-symptoms

Edited by GFinDC
cyclinglady Grand Master
cyclinglady
Posted
19 minutes ago, GFinDC said:

Hi Charles,

Nausea can be a symptom of gallbladder issues also.  Maybe you can get a different GI to check your gallbladder?  Gallbladder problems can occur with celiac disease.

https://www.healthline.com/health/gallbladder-problems-symptoms

Dang GFinDC!  You are so on top of things!  And me, I had a non-functioning gallbladder that became infected.  I guess I just try to block out those memories.  Good call. ?

GFinDC Veteran
GFinDC
Posted

Hmm, I have gall stones myself CL but no symptoms from them so far.  I am thinking Charles should get to a doctor pretty quick tho as an infection like you had could be dangerous.  And it could be something else too.  Charles, please do get somewhere for a check soon as these things are not always so fun when we wait too long.  Several forum members have  reported having their gallbladders removed prior to a celiac diagnosis and some afterwards.  Doctors sometimes confuse the symptoms of gallbladder disease and celiac disease.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MisterSeth Enthusiast
MisterSeth
Posted

i would get nausea every time i ate for a long time and it seemed to go away once i managed to expand my stomach. just a lot of potatoes and beans

Awol cast iron stomach Experienced
Awol cast iron stomach
Posted

Minced fresh ginger in hot water as "tea" often helped me. I also tried accupucture and still use it as needed for inflammation and symptoms. 

As other said it's helpful to rule out gallbladder problems as well.

Best wishes

CharlesBronson Enthusiast
CharlesBronson
Posted
  • Author

Hello All

Thanks again for the information and suggestions. I truly appreciate it :)

Yes, I did have my gallbladder through an ultrasound and all is well as far as it's concerned. 

And, I did manage to convince my Doctor that I need to see him ASAP, so I should be booked in something within the next 30 days (and not July). 

What should I be checking at this point? I'm kind of at a loss...

I want another scope/biopsy, but outside that I'm not sure what to ask for. 

Any suggestions? 

NNowak Collaborator
NNowak
Posted

It seems you have a flare that surfaced around the New Year. Nausea has been a constant through my lifetime, so I’ve learned a few things. Peppermint essential oil in a diffuser or dabbed on the inside of your wrists (use a carrier oil like sesame if you use on skin), raspberry tea, ginger tea, bone broth soup (Kettle and Fire has several varieties).  Micro dosing (2.5 to 5) with an indica strain of cannabis AND hefty dose of CBD will completely address the nausea without euphoria or paranoia. Use a tincture for the THC so you can start with a TINY bit - work up slowly to the 2.5). If taken an hour before bedtime, you will sleep well and awaken with no nausea. CBD and THC together are more effective at reducing inflammation and addressing pain than most pharmaceuticals available, without the negative side effects. 
 

Good luck!

MisterSeth Enthusiast
MisterSeth
Posted
16 hours ago, CharlesBronson said:

Hello All

Thanks again for the information and suggestions. I truly appreciate it :)

Yes, I did have my gallbladder through an ultrasound and all is well as far as it's concerned. 

And, I did manage to convince my Doctor that I need to see him ASAP, so I should be booked in something within the next 30 days (and not July). 

What should I be checking at this point? I'm kind of at a loss...

I want another scope/biopsy, but outside that I'm not sure what to ask for. 

Any suggestions? 

i know this is dumb input but make sure its not thirst. dehydration can make your stomach burn. i think you also need potassium to hydrate your organs if that's the case

cyclinglady Grand Master
cyclinglady
Posted
On 2/22/2020 at 8:58 PM, CharlesBronson said:

Hello All

Thanks again for the information and suggestions. I truly appreciate it :)

Yes, I did have my gallbladder through an ultrasound and all is well as far as it's concerned. 

And, I did manage to convince my Doctor that I need to see him ASAP, so I should be booked in something within the next 30 days (and not July). 

What should I be checking at this point? I'm kind of at a loss...

I want another scope/biopsy, but outside that I'm not sure what to ask for. 

Any suggestions? 

An ultrasound typically checks for gallstones, but it can not determine whether or not your gallbladder is functioning (emptying).  I had my gallbladder out after it ceased to function (0% ejection rate).  It was actually infected.  I never had gallstones.  Ultrasound tests were always normal.  Ask for a HIDA test.  

CharlesBronson Enthusiast
CharlesBronson
Posted
  • Author
1 hour ago, cyclinglady said:

An ultrasound typically checks for gallstones, but it can not determine whether or not your gallbladder is functioning (emptying).  I had my gallbladder out after it ceased to function (0% ejection rate).  It was actually infected.  I never had gallstones.  Ultrasound tests were always normal.  Ask for a HIDA test.  

Thanks again for all the info CyclingLady! 

I will ask for the HIDA test and get checked for autoimmune gastritis like you said before.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,168
    • Most Online (within 30 mins)
      7,748
    watsonjennifer12
    Newest Member
    watsonjennifer12
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...