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Got Glutened

bluelotus

By bluelotus
in Coping with Celiac Disease

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bluelotus Contributor
bluelotus
Posted

Hi all,

I was doing fairly well, but got glutened somewhere. It sucks, my tummy hurts and had all the normal celiac disease symptoms. I really hate this stupid disease. Sorry, just wanted to moan to someone.........oh....my tummy. :(

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Carriefaith Enthusiast
Carriefaith
Posted

I'm sorry that you're feeling sick :( Did your food get contaminated?

bluelotus Contributor
bluelotus
Posted
  • Author

Thanks for the sympathy.... I would guess its CC, everything I ate was typical. I hate being glutened...feels like little needles in my tummy. Best wishes to all others that are sick out there tonight.

Carriefaith Enthusiast
Carriefaith
Posted

I get sick from cross contamination very easily. I really have to limit a lot of "gluten free" mainstream foods and even a few "gluten free" foods because of cross contamination issues. Some products that make me sick are Humpty Dumpty chips, Butterball products, Maple Leaf all beef hot dogs, and Bob's Red Mill flaxseed.

bluelotus Contributor
bluelotus
Posted
  • Author

Just in case - here's what I've had in the past day that might be risky b.c I have them less often (though don't recall getting sick) - Silk soymilk raspberry smoothie, Ian's gluten free fish sticks. Also have had 'homemade' gluten-free bread from a Gluten-free pantry mix to go with my homemade soup. I am not suggesting that any of these brands are the problem per se, I eat such a varied diet that it is hard to pin down an item as making me sick. But, if anyone has had problems with any of these, I'd be interested.

Oh....my tummy :(

Rachel--24 Collaborator
Rachel--24
Posted

I dont know about any of the foods you ate....just wanted to say sorry you feel sick. :(

gabby Enthusiast
gabby
Posted

Sometimes gluten-free does not mean there's no gluten in it. I had to learn this the hard way. Eg. potatoes do not contain gluten, and a potato chip manufacturer can say that his potato chips are naturally gluten-free. But go back to the company and ask them if the chips are produced in a gluten-free facility....many times they are NOT!

the only way to know is to contact the company. If they don't get back to you with a very clear Yes or No, then do not eat the food.

I had this happen with some organic almond butter. The label said it contained only roasted almonds. But it kept giving me trouble. I finally contacted the company and they said they didn't add anything to the almonds. But when I pressed them further, I asked them if they roasted their own nuts...they said no, they bought them already roasted from another facility. Did this other facility process gluten-containing foods inthe same factory? Well, they weren't sure.

And there was my answer. I don't eat the almond butter anymore...and the problems went away. I've had similar experiences with all sorts of 'gluten-free' products.

Just call or e-mail the companies. They are pretty friendly and it is a really useful resource.

One more thing...I've been gluten free about two years, and just started being unable to handle soy and dairy just these last couple months. If everything you are eating is gluten-free, eliminate the soy and dairy, then add them back in and see if they are the culprits.

Hope this helps,

If you do figure it out, please post here so we can all learn from your experience!

thanks,

Gabby

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bluelotus Contributor
bluelotus
Posted
  • Author

Thanks, Gabby and Rachel. Gabby, I haven't contacted Ian's, but Silk does list their smoothies as gluten-free on their website. Ian's gluten-free fish sticks label themselves as gluten-free on the package. Then again, I am very sensitive to CC, so maybe both or one of the two companies has CC problems. I've got tons going on this week, but maybe I can give them a call sooner or later.

Thanks again for your support. Feeling a little better today, but pretty run down. Oh, and Gabby, I can't tolerate dairy either (found out its casein by testing myself - I miss cheese :( ) I hope soy's not next!

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