Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

pattic

Test Results - All Negative

Rate this topic

Recommended Posts

Hi guys! just sharing. quick background for those who haven't read my prior posts.

Lifelong symptoms (I'm 41.999!). Nutritionist recommended wheat free 9 years ago. I went gluten free. Felt much better.

2 years ago had colonoscopy (mom had cancer, dr told me to have it done). He saw no reason to be gluten free, so I ate everything for several months, till my old symptoms re-appeared. Have been gluten free since.

Just had celiac disease panel (antigen Igg, Iga, Ige?? - paper upstairs, too lazy to get it!), and DQ2 and 8. It was negative for the DQ2 and 8; panel numbers were all 1's & 2's (negative).

I'm not going back to eating gluten again, but wanted some opinions on these results. No, I don't have any other food allergy that I'm aware of (I say that because being gluten-free without changing anything else in my diet works). I do have psoriasis, which is an autoimmune disease.

Any thoughts or opinions????? Please share!

Share this post


Link to post
Share on other sites
Guest nini

I say that positive dietary response is a more valid test result than any blood test or biopsy... the tests are good screening tools, but are imperfect. They miss too many of the cases of gluten intolerance and early stages of celiac disease.

Share this post


Link to post
Share on other sites

thanks nini!

that's what you told me before the test too - sticking to your guns - LOL.

I do agree and staying gluten-free is already a way of life, and is certainly better than feeling yucky all the time! guess you'll be seeing me around here a lot anyway! :)

thanks for your input!

Share this post


Link to post
Share on other sites

Your story hits home with me. Looking back, I've had symptoms most of my life. I'm 42, had serious health problems and went wheat free (mostly gluten-free too) and eliminated lots of other foods almost 10 years ago. I got better. Tried to add spelt back into my diet and had more health problems. Went gluten-free and got better. My doctor decided I should have the Celiac panel and gene test done in December, after being firmly gluten-free for over a month and barely eating any for almost 10 years. The panel came back negative, no surprise, and I was negative for DQ2 and DQ8. So no diagnosis, but I KNOW that I can't have gluten. It would be nice to have a diagnosis, but I just tell myself it really doesn't matter, since I know my body better than anyone else and I also care about my health more than any doctor possibly could. You and I could both have Celiac, possibly with a different genetic marker or just be gluten intolerant for whatever reason. Someday we'll look back and think how dumb everyone was for not figuring it out.

Oh, and I also have psoriasis. I've had two times in my life when it went completely away. Once it was gone for almost 2 years when I ate only fish, rice, fruits, vegetables and sunflower seeds for a year and slowly added other foods in (still avoid eggs, soy, dairy and red meat). The other time was when I was on massive doses of prednisone. I'm trying to get back to a really restricted diet, no traces of dairy or eggs, nothing fried at all, no sugar, more fish and see if it will help. I was hoping that totally gluten-free would clear it up, but it hasn't.

Share this post


Link to post
Share on other sites
Guest nini

LOL! Yep I'm sticking to my guns! LOL!!!!

Feel free to PM or e-mail me with any questions that come up...

Share this post


Link to post
Share on other sites
Hi guys! just sharing. quick background for those who haven't read my prior posts.

Lifelong symptoms (I'm 41.999!). Nutritionist recommended wheat free 9 years ago. I went gluten free. Felt much better.

2 years ago had colonoscopy (mom had cancer, dr told me to have it done). He saw no reason to be gluten free, so I ate everything for several months, till my old symptoms re-appeared. Have been gluten free since.

Just had celiac disease panel (antigen Igg, Iga, Ige?? - paper upstairs, too lazy to get it!), and DQ2 and 8. It was negative for the DQ2 and 8; panel numbers were all 1's & 2's (negative).

I'm not going back to eating gluten again, but wanted some opinions on these results. No, I don't have any other food allergy that I'm aware of (I say that because being gluten-free without changing anything else in my diet works). I do have psoriasis, which is an autoimmune disease.

Any thoughts or opinions????? Please share!

Well, supposedly not all the celiac/gluten sensitivity genes have been identified. You might also consider the possibility of casein sensitivity. For myself, even though I tested with both the celiac gene and the gluten sensitivty one, my most major food reactions were from dairy. I was told to not only eliminate gluten but also dairy, and was told that dairy could cause the same intestinal damage as gluten. That damage leads to the "leaky gut" syndrome, and then when the proteins get into the blood they are attacked by the body and the whole autoimmune thing gets going.

If you felt better not eating gluten, that's your body telling you not to eat gluten. I've read some things lately stating that conservatively speaking, they are beginning to think that fully 50% of the population is probably gluten sensitive to some degree.

All in all, even if you don't have a firm diagnosis, if you feel better not eating gluten (and/or dairy too) then that's what you should do. By the way, psoriasis is frequently linked to dairy. This is true for my daughter, and also my mother in law.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • April 17, 2019 Until April 27, 2019
      0  
      April 17-27, 2020   For the past few years many of you have asked us to arrange a River Boat Cruise that will allow us to visit Amsterdam's famous Keukenhof Gardens at its prime time of the blossoming of the millions of Tulips and Hyacinths - alongside the windmills of the Netherlands.  With the participation of a minimum of 20 persons we have arranged an All-Inclusive Cruise from Antwerp to Amsterdam.  This cruise will not be offered to the public until January, 2019 and always sells out quickly.   THERE WILL BE NO MONEY REQUIRED NOR COMMITMENT FROM YOU until we have all the final costs and details.  If you are at all interested check out our website for as many of the details that we have as of this time.   We need your request to be placed on a list of interested participants so we can present that number to Uniworld to show we have the sincere interest in this All-Inclusive Bob & Ruth's Gluten-free Cruise.   PLEASE CHECK OUT OUR WEBSITE FOR THE DETAILED INFORMATION THAT WE HAVE AS OF THIS TIME.   http://bobandruths.com
    • April 24, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • May 04, 2019 Until May 05, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
×
×
  • Create New...