Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Where Is The Hidden Gluten?


Guest MyKidsMom

Recommended Posts

Guest MyKidsMom

After sticking to a relatively few boring staples I have decided to try some old favorites that I believe to be safe. There are 3 recipes that make me sick and I am not sure why. Can you help me figure it out? The common ingredients are Heinz Ketchup, C & H brown sugar & apple cider vinegar that does not state it has any natural flavoring. What brand of vinegar does everyone else use? The also have hamburger beef in them, but I eat beef elsewhere and it does not bother me, although per blood test I am supposed to have an allergy to it. I am puzzled!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

Well Mom, I can't tolerate tomatoes, could be the ketchup--I also have problems with hamburger beef--it's too greasy for me. Sometimes you have to stick to a bland diet for sometime so that your tummy can heal. I have been gluten-free now for 4 1/2 years. In the summer of 2004 I found I couldn't tolerate soy products, then in Dec of that same year I found I could no longer tolerate corn--was this pass summer that I found tomatoes to be another intolerance. My sister is a celiac too and she has been gluten-free for 5 yrs next month--she doesnt have any of these other intolerances. I have decided I have to be extreme in everything. When I get a migraine, it has to last 4 days, I can't have just gluten intolerances, have to have others--I have neuropathy because of the celiacs and I cant have it just in my feet, it's in my whole body. We are all different--keep trying, you will find what's right for you. Trial and error! Deb

Timber4est Rookie

One of the first things my nutritionist told me was NO mayo, mustard and ketchup. She said that more times than not the last ingredient listed is "natural flavors" and in those flavors are hidden gluten.

We purchase Heinz in our house, and I did go to their website, this is what they have to say about their products.

Where can I find gluten-free products?

Heinz Ketchup does not contain any gluten (the distilled vinegar used is from corn sources). Also, Wine Vinegar, Distilled White Vinegar and Apple Cider Vinegar are gluten-free. Please note that Heinz Organic Ketchup and Apple Cider Flavored Vinegar are not gluten-free.

Heinz Hot & Spicy Ketchup Kick'rs is gluten-free as well. As for our other Heinz products, we are not able to guarantee that all ingredients would be gluten-free, since the source of an ingredient may change from time to time. We understand how difficult it can be finding foods that meet the requirements of a restricted diet, and we continue to look for ways to meet the dietary needs of our consumers.

As for beef patties. When the Mad Cow scare hit, just one state over from us and a few heads of cattle here local to us, I purchased a meat grinder to make my own patties. Something my family does not know is that the friday night grill is not fully beef. I purchase real lean beef (anything with round in the name) and blend it 50/50 with turkey.

The other night I had not purchased enough turkey breast, so I added 50% round beef, 25% turkey breast and 25% rice. This the family did notice but said it wasn't so bad.

If you have a kitchen aid mixer, you can purchase the meat grinder attachment, but I have a countertop grinder that I crank by hand. It is real easy to use and you can use it for many other things.

hez Enthusiast

The ingredients you listed appear to be safe. Could it be a cross contamination issue? Is the sugar old or new? Could the lid of the ketchup come in contact with gluten? Maybe your body is still healing. For me foods that were gluten-free would sometimes send me to the bathroom early on.

Hez

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    4. - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

    5. - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,190
    • Most Online (within 30 mins)
      7,748

    Atl222
    Newest Member
    Atl222
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.