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How Long Did It Rtake You To Recover After Diagnosis?

sillyyak

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sillyyak Enthusiast
sillyyak
Posted

I called my doctor today bevause I have nt been feeling well and he seemed to think it was not a good sign that I still have symptoms. It is been about 3 months How long did it take you?

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nikki-uk Enthusiast
nikki-uk
Posted

My husband has been gluten-free now for 16 months and he's still recovering,-admittedly he was very ill by the time of diagnosis though.

It can take some adults up to 2 years for their gut to heal and the villi to fully grow back.

After 6 months gluten-free my husband had seen no improvement in his health at all,and unfortunately a biopsy revealed that there was only very slight recovery of his villi.

As my hubbie was also seriously underweight the doc decided to put him on steroids to help his gut recover,and also help him with his appetite.

Once on the steroids for a while he started to get his energy back,appetite returned and he generally started to feel better.

Another biopsy at 1yr gluten-free revealed that he is healing,but for some reason alot slower than they'd hope.

He's got a way to go,but it's a slow process!

I guess for some,they are lucky in that they feel almost immediatley better on a gluten-free diet.

But unfortunately for some it just takes longer before they feel the benefit.

I believe my hubbie has had this disease since childhood,but was not diagnosed until he was 40 yrs old-so there's alot of damage to undo!

Good luck :) !

loraleena Contributor
loraleena
Posted

It can take a lot longer than that. I am at 6 months and am doing much better, but still have days where I just feel like sh*t!. Also, you may want to think about possibilities of other food intolerances especially dairy. Often this goes along with celiac. Good luck.

AmandaD Community Regular
AmandaD
Posted

I was diagnosed by biospy Sept. 5 and while things seem to be better, I still have setbacks on some days. And I know for a fact that at three months post-dx I was just STARTING to feel like things were change. Think - really it's only been a matter of weeks.

AmandaD

Sillyak - Did you have the ttg test and endoscopy to determine it was celiac?

I called my doctor today bevause I have nt been feeling well and he seemed to think it was not a good sign that I still have symptoms. It is been about 3 months How long did it take you?
jerseyangel Proficient
jerseyangel
Posted

I have been gluten-free for 8 months now--I felt better after 4 months, but I still get tired easily. I have a lot of reflux and upper GI gas that has actually gotten worse over the last 2 months. I am reacting to all grains now, as well. I don't know if all of this is my body's way of straighening itself around after years of gluten exposure or what. I have read that it can take 6 months to 2 years, and in some cases, longer. In my case, I was sick for about 20 years. That may explain the up and down nature of my recovery. On a positive note, the D is gone and in that respect, I'm normal for the first time since I can remember.

julie5914 Contributor
julie5914
Posted

It's been six months, and though I feel better than I did six months ago, I still have a long way to go. My labs were redone, and they were still a long way off from normal. I will try again in another 6 months. I had to cut out dairy as well to start really feeling better with digestive stuff. I still get muscle aches, tired easily, etc.

mouse Enthusiast
mouse
Posted

It has been two years for me (today is my diagnosis anniversary). In the beginning I started to improve right away and I thought that I would keep improving at that same rapid pace. It did not happen that way. But, I was sick for about 30 years before the fast downward slide. I still am having a hard time with the energy. Today is such a day and I have to go get groceries and do the wash. I took all my vitamins this morning (as usual) and nothing. So, I then just took a gluten-free energy tea pill that I hope kicks in soon. I think the younger you are the quicker the recovery time.

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sillyyak Enthusiast
sillyyak
Posted
  • Author

Yes I had the blood tests and endoscoy confirming Celiac. In fact, this was the last test they ran on me after repeatedly telling me "all tests are normal. we cannot find anything". Unbeleiveable.

I go back for more blood work next week and then an endocopsy followup again soon.

Jen H Contributor
Jen H
Posted

Are we supposed to have an endoscopy repeated after a certain period of time to see if we are healing or do we base our healing on our success with the diet? Nikki-uk, you mentioned that your husband had repeat endoscopies. Is that true in the U.S. too?

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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
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