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Canadians?

EMSPrincess

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lorka150 Collaborator
lorka150
Posted

yay! i'm looking forward to this.

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  • Replies 223
  • Created
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2Boys4Me Enthusiast
2Boys4Me
Posted

Another Canadian...Calgary, Alberta.

  • 2 weeks later...
smacky Newbie
smacky
Posted

I'm Canadian. I'm originally from Toronto but I'm now in Hamilton.

kareena Newbie
kareena
Posted

Hi to all

I just joined your site oh about 5 min ago. :D Yes i am from Ontario Canada (Guelph) I was told i was celiac when i was seventeen. i took me a while to be willing to go without gluten ( it helped that i found out you can claim your food on incom tax). i have 3 children (14, 10 and 10 yes twins) part of the reason i kinda began eating gluten again. i'm not sure if any of them have this disease or not. I'm curently dating a vegan so if anyone out there has any suggestions please feel free to let me know good dinners for the vegan/celiac ( this food must not caontain anything that has a head)

Thanks for your help

Kareen :)

Robix Apprentice
Robix
Posted

Hi! Me too me too!

I am in Montreal! Anyone else from Montreal? Am desperately seeking an informed GI! I went to my GP with a list of about 12 symptoms and she treated each one separately...need a good doctor who can truly help me figure this out.

So happy to meet all you other canadians! Was looking for a canadian support site but you had to pay to be a member, and it didn't have half the info this one does. Well just have to be a well-informed minority! ;)

lorka150 Collaborator
lorka150
Posted
Hi to all

I just joined your site oh about 5 min ago. :D Yes i am from Ontario Canada (Guelph) I was told i was celiac when i was seventeen. i took me a while to be willing to go without gluten ( it helped that i found out you can claim your food on incom tax). i have 3 children (14, 10 and 10 yes twins) part of the reason i kinda began eating gluten again. i'm not sure if any of them have this disease or not. I'm curently dating a vegan so if anyone out there has any suggestions please feel free to let me know good dinners for the vegan/celiac ( this food must not caontain anything that has a head)

Thanks for your help

Kareen :)

hi kareen!

i am from Niagara, but go to school in Waterloo. There are a lot of great resources - in both places. i have a lot of great vegan recipes on hand. let me know how i can help!

kareena Newbie
kareena
Posted

Hey thanks any help will do but you know what i'm wishing to for is a rice and cheese (vegan) based pizza crust haven't had pizza in sooooooo long my mom use to have a copy but over time and many folds i can't read a darn thing on it.

Thanks kareena

hi kareen!

i am from Niagara, but go to school in Waterloo. There are a lot of great resources - in both places. i have a lot of great vegan recipes on hand. let me know how i can help!

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lorka150 Collaborator
lorka150
Posted

you can make cheese from nutritional yeast, or buy galaxy foods vegan cheese.

re: the crust, mine doesn't have rice, as i am allergic. i use other flours, so maybe someone else can help you better in that department.

Deej Newbie
Deej
Posted

It's so good to find this site and to see so many Canadians. I've been reading all day and your product posts are so helpful - thank you!

I'm a native Edmontonian, spent 16 fabulous years in Vancouver, but now I'm back in Edmonton.

sasha1234 Newbie
sasha1234
Posted
now I'm back in Edmonton.

can you believe the snow last night?!?!? BAH!

Deej Newbie
Deej
Posted
:angry: I know, I know! Ugggh.
Robix Apprentice
Robix
Posted

Deej,

Hi there, just noticed you were diagnosed as pernicious anemia in 96- i was dx in 92. Do you have the deficiency or the absorption problem (ie on monthly injections)?

SO many of my symptoms which I always just attributed to the pernicious anemia am now wondering if it was celiac disease, and am also wondering if the pernicious anemia came from the celiac disease or vice versa.

Am new to this board and am trying to figure this all out, without any insight or help in any way from any of the doctors I have ever had. Neither my hematologist, nor my GP nor my family doctor have ever had any time to give me information or help me manage this better.

Would love to hear if you have any to share! (am a canadian too, a montrealer!)

Deej Newbie
Deej
Posted

Hi yourself!

As I understand it, it's an absorption problem. But I'm not sure. I was already on the gluten-free diet (about three months if I remember correctly) when I started having symptoms similar to a heart attack. Blood test in emergency determined I was dangerously low on B12. I ended up with a very elevated homocysteine (it was very scary - the cardiologist was nervous). I was on weekly B12 shots for about a year and then moved to once a month (plus taking oral folic acid and B6).

I'm new to this board, too (just joined today) but I found a thread about it on the related diseases board.

It's a confusing disease, isn't it?

Felidae Enthusiast
Felidae
Posted
can you believe the snow last night?!?!? BAH!

Hey, I love the snow. I had a great cross country ski today. Finally we get some winter.LOL

sasha1234 Newbie
sasha1234
Posted
Hey, I love the snow. I had a great cross country ski today. Finally we get some winter.LOL

Sweet. I like snow I just had to shovel.

Lynxear Rookie
Lynxear
Posted

Well.....I only think I am mildly celiac but that wheat intolerance is the root cause of other problem...so not sure that I qualify here.

I was born and raised in Winnipeg...lived in Toronto for 8 years and for the past 18 years I now live in Calgary....I like it here very much.

Felidae Enthusiast
Felidae
Posted
Sweet. I like snow I just had to shovel.

Yeah, I am in a condo so I don't have to deal with the tiring part of the great snowfall that we got. That's probably part of why I don't mind it too much.

kareena Newbie
kareena
Posted

Lynxear...... well this may not be the best site but i'm sure it will help. My housemate has a friend that is wheat intorerant and we pass on suggestions to each other quite often.

Lynxear Rookie
Lynxear
Posted
Lynxear...... well this may not be the best site but i'm sure it will help. My housemate has a friend that is wheat intorerant and we pass on suggestions to each other quite often.

Well if you have suggestions for another site I will listen....but I am finding some good stuff here for me.

I definately am not "full blown" celiac. I don't have to religiously read labels...for example I love Asian food but I don't have to be carefull about the type of soy sauce used. But I do feel a bloat when I eat bread and pasta.

I have very high blood fats and diabetes (type II) and I found that eliminating wheat flour from my diet has helped both in the past....but that was when I lived in Thailand where wheat is not part of a traditional Thai. As soon as I went back on a western diet I have returned to those problems, big time.

I don't know if high blood fats is a celiac problem yet but I was surprised to find narcolepsy was. I am "borderline" narcoleptic as well. I have always felt that there was a root cause for my little health problems and that I was being only treated for symtoms...not cause.

I do struggle with a wheat free diet...I can do it for a while but in a western diet it is difficult for me. I eat out often and eliminating pizza, sandwiches, pasta, wraps makes menu choices rather small. I feel like a drunk who has been sober for a few months ....then tries one drink....then another...soon he is a lush again. Well bread is my alcohol.

Friendly people here ...

kareena Newbie
kareena
Posted
Well if you have suggestions for another site I will listen....but I am finding some good stuff here for me.

I definately am not "full blown" celiac. I don't have to religiously read labels...for example I love Asian food but I don't have to be carefull about the type of soy sauce used. But I do feel a bloat when I eat bread and pasta.

I have very high blood fats and diabetes (type II) and I found that eliminating wheat flour from my diet has helped both in the past....but that was when I lived in Thailand where wheat is not part of a traditional Thai. As soon as I went back on a western diet I have returned to those problems, big time.

I don't know if high blood fats is a celiac problem yet but I was surprised to find narcolepsy was. I am "borderline" narcoleptic as well. I have always felt that there was a root cause for my little health problems and that I was being only treated for symtoms...not cause.

I do struggle with a wheat free diet...I can do it for a while but in a western diet it is difficult for me. I eat out often and eliminating pizza, sandwiches, pasta, wraps makes menu choices rather small. I feel like a drunk who has been sober for a few months ....then tries one drink....then another...soon he is a lush again. Well bread is my alcohol.

Friendly people here ...

Well i know i don't feel it as bad as some but i also know what the worst case can be so i try to stay away from gluten all i can i really enjoy the tiai food so that is a help for me. i'll talk to my housemate and ask her to get hold heather and see if she goes on line.

qwertyui Rookie
qwertyui
Posted

I'm from just outside Toronto too!

Canadian Karen Community Regular
Canadian Karen
Posted

Welcome! I'm in Clarington region.......

This is a great board with lots of great people here.....

Karen

kareena Newbie
kareena
Posted

ok ... so i have a question from anyone in the London, ON area.

I use to live there when i found out i was celiac. the health food store just off Richmond St. was great!!!! i think it was one block down from Oxford St. (next to the dool house not sure if it is still there near Wendys) they carried a product by a woman a named Marilyn ( not sure of the last name) i guess my question is can you still get her products they were the best ( i do believe that she has passed away from cancer not 100% sure of that) and if not did anyone take over the business and if it is available how can i get some?

Thanks for the help

lorka150 Collaborator
lorka150
Posted
ok ... so i have a question from anyone in the London, ON area.

I use to live there when i found out i was celiac. the health food store just off Richmond St. was great!!!! i think it was one block down from Oxford St. (next to the dool house not sure if it is still there near Wendys) they carried a product by a woman a named Marilyn ( not sure of the last name) i guess my question is can you still get her products they were the best ( i do believe that she has passed away from cancer not 100% sure of that) and if not did anyone take over the business and if it is available how can i get some?

Thanks for the help

Here is the contact for the celiac chapter in London, maybe she can help:

CCA London Chapter President: Anita Zubko 519 657 2537

kareena Newbie
kareena
Posted
Here is the contact for the celiac chapter in London, maybe she can help:

CCA London Chapter President: Anita Zubko 519 657 2537

thanks for the info

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      High DGP-A with normal IGA

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      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
    • trents
      Finding gluten free ingredients

      By trents · Posted

      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
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