Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Canadians?

EMSPrincess

Recommended Posts

lorka150 Collaborator
lorka150
Posted

yay! i'm looking forward to this.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 223
  • Created
  • Last Reply
2Boys4Me Enthusiast
2Boys4Me
Posted

Another Canadian...Calgary, Alberta.

  • 2 weeks later...
smacky Newbie
smacky
Posted

I'm Canadian. I'm originally from Toronto but I'm now in Hamilton.

kareena Newbie
kareena
Posted

Hi to all

I just joined your site oh about 5 min ago. :D Yes i am from Ontario Canada (Guelph) I was told i was celiac when i was seventeen. i took me a while to be willing to go without gluten ( it helped that i found out you can claim your food on incom tax). i have 3 children (14, 10 and 10 yes twins) part of the reason i kinda began eating gluten again. i'm not sure if any of them have this disease or not. I'm curently dating a vegan so if anyone out there has any suggestions please feel free to let me know good dinners for the vegan/celiac ( this food must not caontain anything that has a head)

Thanks for your help

Kareen :)

Robix Apprentice
Robix
Posted

Hi! Me too me too!

I am in Montreal! Anyone else from Montreal? Am desperately seeking an informed GI! I went to my GP with a list of about 12 symptoms and she treated each one separately...need a good doctor who can truly help me figure this out.

So happy to meet all you other canadians! Was looking for a canadian support site but you had to pay to be a member, and it didn't have half the info this one does. Well just have to be a well-informed minority! ;)

lorka150 Collaborator
lorka150
Posted
Hi to all

I just joined your site oh about 5 min ago. :D Yes i am from Ontario Canada (Guelph) I was told i was celiac when i was seventeen. i took me a while to be willing to go without gluten ( it helped that i found out you can claim your food on incom tax). i have 3 children (14, 10 and 10 yes twins) part of the reason i kinda began eating gluten again. i'm not sure if any of them have this disease or not. I'm curently dating a vegan so if anyone out there has any suggestions please feel free to let me know good dinners for the vegan/celiac ( this food must not caontain anything that has a head)

Thanks for your help

Kareen :)

hi kareen!

i am from Niagara, but go to school in Waterloo. There are a lot of great resources - in both places. i have a lot of great vegan recipes on hand. let me know how i can help!

kareena Newbie
kareena
Posted

Hey thanks any help will do but you know what i'm wishing to for is a rice and cheese (vegan) based pizza crust haven't had pizza in sooooooo long my mom use to have a copy but over time and many folds i can't read a darn thing on it.

Thanks kareena

hi kareen!

i am from Niagara, but go to school in Waterloo. There are a lot of great resources - in both places. i have a lot of great vegan recipes on hand. let me know how i can help!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lorka150 Collaborator
lorka150
Posted

you can make cheese from nutritional yeast, or buy galaxy foods vegan cheese.

re: the crust, mine doesn't have rice, as i am allergic. i use other flours, so maybe someone else can help you better in that department.

Deej Newbie
Deej
Posted

It's so good to find this site and to see so many Canadians. I've been reading all day and your product posts are so helpful - thank you!

I'm a native Edmontonian, spent 16 fabulous years in Vancouver, but now I'm back in Edmonton.

sasha1234 Newbie
sasha1234
Posted
now I'm back in Edmonton.

can you believe the snow last night?!?!? BAH!

Deej Newbie
Deej
Posted
:angry: I know, I know! Ugggh.
Robix Apprentice
Robix
Posted

Deej,

Hi there, just noticed you were diagnosed as pernicious anemia in 96- i was dx in 92. Do you have the deficiency or the absorption problem (ie on monthly injections)?

SO many of my symptoms which I always just attributed to the pernicious anemia am now wondering if it was celiac disease, and am also wondering if the pernicious anemia came from the celiac disease or vice versa.

Am new to this board and am trying to figure this all out, without any insight or help in any way from any of the doctors I have ever had. Neither my hematologist, nor my GP nor my family doctor have ever had any time to give me information or help me manage this better.

Would love to hear if you have any to share! (am a canadian too, a montrealer!)

Deej Newbie
Deej
Posted

Hi yourself!

As I understand it, it's an absorption problem. But I'm not sure. I was already on the gluten-free diet (about three months if I remember correctly) when I started having symptoms similar to a heart attack. Blood test in emergency determined I was dangerously low on B12. I ended up with a very elevated homocysteine (it was very scary - the cardiologist was nervous). I was on weekly B12 shots for about a year and then moved to once a month (plus taking oral folic acid and B6).

I'm new to this board, too (just joined today) but I found a thread about it on the related diseases board.

It's a confusing disease, isn't it?

Felidae Enthusiast
Felidae
Posted
can you believe the snow last night?!?!? BAH!

Hey, I love the snow. I had a great cross country ski today. Finally we get some winter.LOL

sasha1234 Newbie
sasha1234
Posted
Hey, I love the snow. I had a great cross country ski today. Finally we get some winter.LOL

Sweet. I like snow I just had to shovel.

Lynxear Rookie
Lynxear
Posted

Well.....I only think I am mildly celiac but that wheat intolerance is the root cause of other problem...so not sure that I qualify here.

I was born and raised in Winnipeg...lived in Toronto for 8 years and for the past 18 years I now live in Calgary....I like it here very much.

Felidae Enthusiast
Felidae
Posted
Sweet. I like snow I just had to shovel.

Yeah, I am in a condo so I don't have to deal with the tiring part of the great snowfall that we got. That's probably part of why I don't mind it too much.

kareena Newbie
kareena
Posted

Lynxear...... well this may not be the best site but i'm sure it will help. My housemate has a friend that is wheat intorerant and we pass on suggestions to each other quite often.

Lynxear Rookie
Lynxear
Posted
Lynxear...... well this may not be the best site but i'm sure it will help. My housemate has a friend that is wheat intorerant and we pass on suggestions to each other quite often.

Well if you have suggestions for another site I will listen....but I am finding some good stuff here for me.

I definately am not "full blown" celiac. I don't have to religiously read labels...for example I love Asian food but I don't have to be carefull about the type of soy sauce used. But I do feel a bloat when I eat bread and pasta.

I have very high blood fats and diabetes (type II) and I found that eliminating wheat flour from my diet has helped both in the past....but that was when I lived in Thailand where wheat is not part of a traditional Thai. As soon as I went back on a western diet I have returned to those problems, big time.

I don't know if high blood fats is a celiac problem yet but I was surprised to find narcolepsy was. I am "borderline" narcoleptic as well. I have always felt that there was a root cause for my little health problems and that I was being only treated for symtoms...not cause.

I do struggle with a wheat free diet...I can do it for a while but in a western diet it is difficult for me. I eat out often and eliminating pizza, sandwiches, pasta, wraps makes menu choices rather small. I feel like a drunk who has been sober for a few months ....then tries one drink....then another...soon he is a lush again. Well bread is my alcohol.

Friendly people here ...

kareena Newbie
kareena
Posted
Well if you have suggestions for another site I will listen....but I am finding some good stuff here for me.

I definately am not "full blown" celiac. I don't have to religiously read labels...for example I love Asian food but I don't have to be carefull about the type of soy sauce used. But I do feel a bloat when I eat bread and pasta.

I have very high blood fats and diabetes (type II) and I found that eliminating wheat flour from my diet has helped both in the past....but that was when I lived in Thailand where wheat is not part of a traditional Thai. As soon as I went back on a western diet I have returned to those problems, big time.

I don't know if high blood fats is a celiac problem yet but I was surprised to find narcolepsy was. I am "borderline" narcoleptic as well. I have always felt that there was a root cause for my little health problems and that I was being only treated for symtoms...not cause.

I do struggle with a wheat free diet...I can do it for a while but in a western diet it is difficult for me. I eat out often and eliminating pizza, sandwiches, pasta, wraps makes menu choices rather small. I feel like a drunk who has been sober for a few months ....then tries one drink....then another...soon he is a lush again. Well bread is my alcohol.

Friendly people here ...

Well i know i don't feel it as bad as some but i also know what the worst case can be so i try to stay away from gluten all i can i really enjoy the tiai food so that is a help for me. i'll talk to my housemate and ask her to get hold heather and see if she goes on line.

qwertyui Rookie
qwertyui
Posted

I'm from just outside Toronto too!

Canadian Karen Community Regular
Canadian Karen
Posted

Welcome! I'm in Clarington region.......

This is a great board with lots of great people here.....

Karen

kareena Newbie
kareena
Posted

ok ... so i have a question from anyone in the London, ON area.

I use to live there when i found out i was celiac. the health food store just off Richmond St. was great!!!! i think it was one block down from Oxford St. (next to the dool house not sure if it is still there near Wendys) they carried a product by a woman a named Marilyn ( not sure of the last name) i guess my question is can you still get her products they were the best ( i do believe that she has passed away from cancer not 100% sure of that) and if not did anyone take over the business and if it is available how can i get some?

Thanks for the help

lorka150 Collaborator
lorka150
Posted
ok ... so i have a question from anyone in the London, ON area.

I use to live there when i found out i was celiac. the health food store just off Richmond St. was great!!!! i think it was one block down from Oxford St. (next to the dool house not sure if it is still there near Wendys) they carried a product by a woman a named Marilyn ( not sure of the last name) i guess my question is can you still get her products they were the best ( i do believe that she has passed away from cancer not 100% sure of that) and if not did anyone take over the business and if it is available how can i get some?

Thanks for the help

Here is the contact for the celiac chapter in London, maybe she can help:

CCA London Chapter President: Anita Zubko 519 657 2537

kareena Newbie
kareena
Posted
Here is the contact for the celiac chapter in London, maybe she can help:

CCA London Chapter President: Anita Zubko 519 657 2537

thanks for the info

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,857
    • Most Online (within 30 mins)
      7,748
    LowellFrancis
    Newest Member
    LowellFrancis
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Ibuprofen

      By Rogol72 · Posted

      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
      Celiac and dermatitis herpetiformis has taken Me from Me

      By trents · Posted

      Is this man the father of your children?
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.