Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Canadians?

EMSPrincess

Recommended Posts

lorka150 Collaborator
lorka150
Posted

yay! i'm looking forward to this.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 223
  • Created
  • Last Reply
2Boys4Me Enthusiast
2Boys4Me
Posted

Another Canadian...Calgary, Alberta.

  • 2 weeks later...
smacky Newbie
smacky
Posted

I'm Canadian. I'm originally from Toronto but I'm now in Hamilton.

kareena Newbie
kareena
Posted

Hi to all

I just joined your site oh about 5 min ago. :D Yes i am from Ontario Canada (Guelph) I was told i was celiac when i was seventeen. i took me a while to be willing to go without gluten ( it helped that i found out you can claim your food on incom tax). i have 3 children (14, 10 and 10 yes twins) part of the reason i kinda began eating gluten again. i'm not sure if any of them have this disease or not. I'm curently dating a vegan so if anyone out there has any suggestions please feel free to let me know good dinners for the vegan/celiac ( this food must not caontain anything that has a head)

Thanks for your help

Kareen :)

Robix Apprentice
Robix
Posted

Hi! Me too me too!

I am in Montreal! Anyone else from Montreal? Am desperately seeking an informed GI! I went to my GP with a list of about 12 symptoms and she treated each one separately...need a good doctor who can truly help me figure this out.

So happy to meet all you other canadians! Was looking for a canadian support site but you had to pay to be a member, and it didn't have half the info this one does. Well just have to be a well-informed minority! ;)

lorka150 Collaborator
lorka150
Posted
Hi to all

I just joined your site oh about 5 min ago. :D Yes i am from Ontario Canada (Guelph) I was told i was celiac when i was seventeen. i took me a while to be willing to go without gluten ( it helped that i found out you can claim your food on incom tax). i have 3 children (14, 10 and 10 yes twins) part of the reason i kinda began eating gluten again. i'm not sure if any of them have this disease or not. I'm curently dating a vegan so if anyone out there has any suggestions please feel free to let me know good dinners for the vegan/celiac ( this food must not caontain anything that has a head)

Thanks for your help

Kareen :)

hi kareen!

i am from Niagara, but go to school in Waterloo. There are a lot of great resources - in both places. i have a lot of great vegan recipes on hand. let me know how i can help!

kareena Newbie
kareena
Posted

Hey thanks any help will do but you know what i'm wishing to for is a rice and cheese (vegan) based pizza crust haven't had pizza in sooooooo long my mom use to have a copy but over time and many folds i can't read a darn thing on it.

Thanks kareena

hi kareen!

i am from Niagara, but go to school in Waterloo. There are a lot of great resources - in both places. i have a lot of great vegan recipes on hand. let me know how i can help!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lorka150 Collaborator
lorka150
Posted

you can make cheese from nutritional yeast, or buy galaxy foods vegan cheese.

re: the crust, mine doesn't have rice, as i am allergic. i use other flours, so maybe someone else can help you better in that department.

Deej Newbie
Deej
Posted

It's so good to find this site and to see so many Canadians. I've been reading all day and your product posts are so helpful - thank you!

I'm a native Edmontonian, spent 16 fabulous years in Vancouver, but now I'm back in Edmonton.

sasha1234 Newbie
sasha1234
Posted
now I'm back in Edmonton.

can you believe the snow last night?!?!? BAH!

Deej Newbie
Deej
Posted
:angry: I know, I know! Ugggh.
Robix Apprentice
Robix
Posted

Deej,

Hi there, just noticed you were diagnosed as pernicious anemia in 96- i was dx in 92. Do you have the deficiency or the absorption problem (ie on monthly injections)?

SO many of my symptoms which I always just attributed to the pernicious anemia am now wondering if it was celiac disease, and am also wondering if the pernicious anemia came from the celiac disease or vice versa.

Am new to this board and am trying to figure this all out, without any insight or help in any way from any of the doctors I have ever had. Neither my hematologist, nor my GP nor my family doctor have ever had any time to give me information or help me manage this better.

Would love to hear if you have any to share! (am a canadian too, a montrealer!)

Deej Newbie
Deej
Posted

Hi yourself!

As I understand it, it's an absorption problem. But I'm not sure. I was already on the gluten-free diet (about three months if I remember correctly) when I started having symptoms similar to a heart attack. Blood test in emergency determined I was dangerously low on B12. I ended up with a very elevated homocysteine (it was very scary - the cardiologist was nervous). I was on weekly B12 shots for about a year and then moved to once a month (plus taking oral folic acid and B6).

I'm new to this board, too (just joined today) but I found a thread about it on the related diseases board.

It's a confusing disease, isn't it?

Felidae Enthusiast
Felidae
Posted
can you believe the snow last night?!?!? BAH!

Hey, I love the snow. I had a great cross country ski today. Finally we get some winter.LOL

sasha1234 Newbie
sasha1234
Posted
Hey, I love the snow. I had a great cross country ski today. Finally we get some winter.LOL

Sweet. I like snow I just had to shovel.

Lynxear Rookie
Lynxear
Posted

Well.....I only think I am mildly celiac but that wheat intolerance is the root cause of other problem...so not sure that I qualify here.

I was born and raised in Winnipeg...lived in Toronto for 8 years and for the past 18 years I now live in Calgary....I like it here very much.

Felidae Enthusiast
Felidae
Posted
Sweet. I like snow I just had to shovel.

Yeah, I am in a condo so I don't have to deal with the tiring part of the great snowfall that we got. That's probably part of why I don't mind it too much.

kareena Newbie
kareena
Posted

Lynxear...... well this may not be the best site but i'm sure it will help. My housemate has a friend that is wheat intorerant and we pass on suggestions to each other quite often.

Lynxear Rookie
Lynxear
Posted
Lynxear...... well this may not be the best site but i'm sure it will help. My housemate has a friend that is wheat intorerant and we pass on suggestions to each other quite often.

Well if you have suggestions for another site I will listen....but I am finding some good stuff here for me.

I definately am not "full blown" celiac. I don't have to religiously read labels...for example I love Asian food but I don't have to be carefull about the type of soy sauce used. But I do feel a bloat when I eat bread and pasta.

I have very high blood fats and diabetes (type II) and I found that eliminating wheat flour from my diet has helped both in the past....but that was when I lived in Thailand where wheat is not part of a traditional Thai. As soon as I went back on a western diet I have returned to those problems, big time.

I don't know if high blood fats is a celiac problem yet but I was surprised to find narcolepsy was. I am "borderline" narcoleptic as well. I have always felt that there was a root cause for my little health problems and that I was being only treated for symtoms...not cause.

I do struggle with a wheat free diet...I can do it for a while but in a western diet it is difficult for me. I eat out often and eliminating pizza, sandwiches, pasta, wraps makes menu choices rather small. I feel like a drunk who has been sober for a few months ....then tries one drink....then another...soon he is a lush again. Well bread is my alcohol.

Friendly people here ...

kareena Newbie
kareena
Posted
Well if you have suggestions for another site I will listen....but I am finding some good stuff here for me.

I definately am not "full blown" celiac. I don't have to religiously read labels...for example I love Asian food but I don't have to be carefull about the type of soy sauce used. But I do feel a bloat when I eat bread and pasta.

I have very high blood fats and diabetes (type II) and I found that eliminating wheat flour from my diet has helped both in the past....but that was when I lived in Thailand where wheat is not part of a traditional Thai. As soon as I went back on a western diet I have returned to those problems, big time.

I don't know if high blood fats is a celiac problem yet but I was surprised to find narcolepsy was. I am "borderline" narcoleptic as well. I have always felt that there was a root cause for my little health problems and that I was being only treated for symtoms...not cause.

I do struggle with a wheat free diet...I can do it for a while but in a western diet it is difficult for me. I eat out often and eliminating pizza, sandwiches, pasta, wraps makes menu choices rather small. I feel like a drunk who has been sober for a few months ....then tries one drink....then another...soon he is a lush again. Well bread is my alcohol.

Friendly people here ...

Well i know i don't feel it as bad as some but i also know what the worst case can be so i try to stay away from gluten all i can i really enjoy the tiai food so that is a help for me. i'll talk to my housemate and ask her to get hold heather and see if she goes on line.

qwertyui Rookie
qwertyui
Posted

I'm from just outside Toronto too!

Canadian Karen Community Regular
Canadian Karen
Posted

Welcome! I'm in Clarington region.......

This is a great board with lots of great people here.....

Karen

kareena Newbie
kareena
Posted

ok ... so i have a question from anyone in the London, ON area.

I use to live there when i found out i was celiac. the health food store just off Richmond St. was great!!!! i think it was one block down from Oxford St. (next to the dool house not sure if it is still there near Wendys) they carried a product by a woman a named Marilyn ( not sure of the last name) i guess my question is can you still get her products they were the best ( i do believe that she has passed away from cancer not 100% sure of that) and if not did anyone take over the business and if it is available how can i get some?

Thanks for the help

lorka150 Collaborator
lorka150
Posted
ok ... so i have a question from anyone in the London, ON area.

I use to live there when i found out i was celiac. the health food store just off Richmond St. was great!!!! i think it was one block down from Oxford St. (next to the dool house not sure if it is still there near Wendys) they carried a product by a woman a named Marilyn ( not sure of the last name) i guess my question is can you still get her products they were the best ( i do believe that she has passed away from cancer not 100% sure of that) and if not did anyone take over the business and if it is available how can i get some?

Thanks for the help

Here is the contact for the celiac chapter in London, maybe she can help:

CCA London Chapter President: Anita Zubko 519 657 2537

kareena Newbie
kareena
Posted
Here is the contact for the celiac chapter in London, maybe she can help:

CCA London Chapter President: Anita Zubko 519 657 2537

thanks for the info

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      nothing has changed

      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get...
    2. nanny marley
      - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me I tryed lol , another was to have another blood test after...
    3. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel. they offered me an endoscopic biopsy ...
    4. par18
      - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test...
    5. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748
    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      nothing has changed

      By asaT · Posted

      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      IBS-D vs Celiac

      By nanny marley · Posted

      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Is it gluten?

      By par18 · Posted

      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.