Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bloating

emcmaster

Recommended Posts

emcmaster Collaborator
emcmaster
Posted

Hi - I'm new here and had a question or two...

I have been experiencing severe, severe bloating for 2 years now. I was diagnosed with IBS, then rediagnosed with hypothyroidism. Once my doctor started upping my meds for the hypothyroidism, I felt great - no stomach problems whatsoever. That only lasted about 3 months (coincidentally, during that time I was on a different diet and eating very little flour/wheat products, though I was eating oats) and now I am not only back to square one, I feel 10x worse than I did before.

My bloating is so severe, I have bought maternity clothes to wear at the really bad times. My waist will go from 28-29" to 39-40" in less than half an hour. It's painful and uncomfortable, not to mention embarassing.

Has anyone had any experience with this? Or any suggestions? I would really appreciate this. I'm at the end of the rope.

Thanks :)

Elizabeth

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ianm Apprentice
ianm
Posted

I would get bloating big time. As long as I stay gluten-free it is not a problem. Sometimes even a miniscule amount of gluten will bloat me up like a balloon.

emcmaster Collaborator
emcmaster
Posted
  • Author
I would get bloating big time. As long as I stay gluten-free it is not a problem. Sometimes even a miniscule amount of gluten will bloat me up like a balloon.

Thank you so much for letting me know. I'm going to start on the diet tomorrow and go to my doctor to get tested as well.

I appreciate your taking the time to reply!

Lisa Mentor
Lisa
Posted

Elizabeth:

I wanted to add first that if you intend to be tested for Celiac Disease, do not go gluten free. Your tests will not be accurate. You may or may not have celiac disease. There are over 200 symptoms of Celiac and I would encourage you to read as many posts here on this site to see if you have the symptoms. There is a search site here and you can look up almost everything you want to know.

PLease research this yourself on this site as many doctors are not as knowlegeable as most people here on this site. It is a new to alot of Primary Doctors.

It you do have Celiac Disease, it is truely not something to mess with. A strict gluten free diet it the only cure. Otherwise, it can lead to a variety of very serious incureable diseases.

If you have a problem with bloating I would recommend Zantac, it is gluten free and it daily helps me as I also have a hiatal hernia which creates bloating and gas., in addition to Celiac.

Hope this will be helpful to you. Lisa B.

lemonade Enthusiast
lemonade
Posted
Elizabeth:

I wanted to add first that if you intend to be tested for Celiac Disease, do not go gluten free. Your tests will not be accurate. You may or may not have celiac disease. There are over 200 symptoms of Celiac and I would encourage you to read as many posts here on this site to see if you have the symptoms. There is a search site here and you can look up almost everything you want to know.

PLease research this yourself on this site as many doctors are not as knowlegeable as most people here on this site. It is a new to alot of Primary Doctors.

It you do have Celiac Disease, it is truely not something to mess with. A strict gluten free diet it the only cure. Otherwise, it can lead to a variety of very serious incureable diseases.

If you have a problem with bloating I would recommend Zantac, it is gluten free and it daily helps me as I also have a hiatal hernia which creates bloating and gas., in addition to Celiac.

Hope this will be helpful to you. Lisa B.

bloating is definatley a problem for me...I am pregnant with a baby elephant.

Lemonade

emcmaster Collaborator
emcmaster
Posted
  • Author
Elizabeth:

I wanted to add first that if you intend to be tested for Celiac Disease, do not go gluten free. Your tests will not be accurate. You may or may not have celiac disease. There are over 200 symptoms of Celiac and I would encourage you to read as many posts here on this site to see if you have the symptoms. There is a search site here and you can look up almost everything you want to know.

PLease research this yourself on this site as many doctors are not as knowlegeable as most people here on this site. It is a new to alot of Primary Doctors.

It you do have Celiac Disease, it is truely not something to mess with. A strict gluten free diet it the only cure. Otherwise, it can lead to a variety of very serious incureable diseases.

If you have a problem with bloating I would recommend Zantac, it is gluten free and it daily helps me as I also have a hiatal hernia which creates bloating and gas., in addition to Celiac.

Hope this will be helpful to you. Lisa B.

Thank you so much for your help, Lisa. I will continue to eat gluten until I can get a blood test scheduled and will try the diet regardless of my test results.

Thank you for taking the time to reply!

Elizabeth

bloating is definatley a problem for me...I am pregnant with a baby elephant.

Lemonade

I feel the same way. My stomach makes me look at least 9 months pregnant most of the time. Too bad they don't make cycling tights for pregnant women - I would definitely buy some as it is quite uncomfortable to wear regular ones right now!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,118
    • Most Online (within 30 mins)
      7,748
    Cwbtex
    Newest Member
    Cwbtex
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      I did ... But aren't we going to be vitamin deficienct if we are not eating due to being sick ?? If the food we eat is gluten free and we have other sensitivities , how do we get out of the cycle??  Thank you 
    • Colleen H
      Heat intolerant... Yikes

      By Colleen H · Posted

      Anyone else get pins and needles. ??? Burning feeling ? Heat makes it so much worse 😔  Winter is here.  I had to lower my thermostat because I couldn't take that hot air feeling 😔  Hopefully it goes away soon     
    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      I assume that you already know that genetic testing for celiac disease cannot be used to confirm a celiac diagnosis. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. It can be used to rule out celiac disease with a high degree of confidence, however, in the case where the genetic testing is negative for the genes. Until and unless you are actually diagnosed with celiac disease I would not raise this as an issue with family. However, if you are diagnosed with celiac disease through blood antibody testing and/or endoscopy with positive biopsy I would suggest you encourage first degree relatives to also purse testing because there is a significant chance (somewhere betwee 10% and almost 50%, depending on which studies you reference) that they will also have or will develop active celiac disease. Often, there are symptoms are absent or very minor until damage to the small bowel lining or other body systems becomes significant so be prepared that they may blow you off. We call this "silent celiac disease". 
    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      If you were off gluten for two months that would have been long enough to invalidate the celiac blood antibody testing. Many people make the same mistake. They experiment with the gluten free diet before seeking formal testing. Once you remove gluten from the diet the antibodies stop being produced and those that are already in circulation begin to be removed and often drop below detectable levels. To pursue valid testing for celiac disease you would need to resume gluten consumption equivalent to the amount found in 4-6 slices of wheat bread daily for at least two weeks, preferably longer. These are the most recent guidelines for the "gluten challenge". Without formal testing there is no way to distinguish between celiac disease and gluten sensitivity since their symptoms overlap. However, celiac disease is an autoimmune disorder that damages the small bowel lining, not true of gluten sensitivity. There is no test available for gluten sensitivity so celiac disease must first be ruled out. By the way, elevated liver enzymes was what led to my celiac diagnosis almost 25 years ago.
    • trents
      High DGP-A with normal IGA

      By trents · Posted

      Then it does not seem to me that a gluten-related disorder is at the heart of your problems, unless that is, you have refractory celiac disease. But you did not answer my question about how long you had been eating gluten free before you had the blood antibody test for celiac disease done.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.