Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mcd Fries 2: The Phone Calls :)


ryebaby0

Recommended Posts

Rachel--24 Collaborator

I think people should just trust what their body is telling them. If they've had problems with the fries...stay away from them. If you have never experienced symptoms from eating the fries and you *know* how your body responds to gluten..then I'd guess its safe to eat the fries. I'm sure plenty of people who've been eating the fries with no problems have also had follow-up biopsies or bloodwork showing that they've healed. If you are not getting sick from the fries but are still in doubt....why not get some bloodwork done after eating the fries for a few months.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Canadian Karen Community Regular
I think people should just trust what their body is telling them. If they've had problems with the fries...stay away from them. If you have never experienced symptoms from eating the fries and you *know* how your body responds to gluten..then I'd guess its safe to eat the fries. I'm sure plenty of people who've been eating the fries with no problems have also had follow-up biopsies or bloodwork showing that they've healed. If you are not getting sick from the fries but are still in doubt....why not get some bloodwork done after eating the fries for a few months.

There are plenty of people who are totally asymptomatic yet the damage is still being done. I think the fact of whether or not you have a reaction to them cannot be used to determine whether or not damage is being done. But I agree, anyone who has had follow-up biopsies or bloodwork after stuffing their face with McD's fries for three months, I would like to hear from you!

Karen

casnco Enthusiast
I think people should just trust what their body is telling them. If they've had problems with the fries...stay away from them. If you have never experienced symptoms from eating the fries and you *know* how your body responds to gluten..then I'd guess its safe to eat the fries. I'm sure plenty of people who've been eating the fries with no problems have also had follow-up biopsies or bloodwork showing that they've healed. If you are not getting sick from the fries but are still in doubt....why not get some bloodwork done after eating the fries for a few months.

Great suggestion

VydorScope Proficient
If you are not getting sick from the fries but are still in doubt....why not get some bloodwork done after eating the fries for a few months.

I can not imagine the vast quantiy of fries you would have to eat to get enough gluten to be detected in the blood test, meanwhile your eating posion. Heck even if hteres not gltuen in them, that much fires would be very unhealthy :blink::huh::blink:

No thanks! :o

casnco Enthusiast

I think the most important thing here for all of us to remember isn't if we can eat fries at McD's or not. The most important thing is make sure the information they give us is correct. I can live without fries. On the road I can stop at the convenience mart for chips. Or take fruit on trips. When I travel I can make other arrangements. I just want to know when I go into any resturant and tell them I need gluten free or I research their web site before patronizing them I learn what is correct.

Lets just start an email/letter writing campaign stateing our needs.

Becky6 Enthusiast

This is frustrating! But every time dh would take my daughter there she would have issues the next day. I think that was the problem! The other problem is that they said years ago that the beef was removed because vegetarians had a issue with that. Now it is back! Terrible!

VydorScope Proficient

I have been thinking about this, and trying to come up with a postion that supportes eating the fires... lest look at this..

POSTION ONE "I trust McDondals"

PROBLEM - Thier Website says fries contain GLUTEN, not only wheat, but gluten specficly. It says it is in the "Natural Flavoring" . Fries are also no longer on thier gluten-free menu. If you choose to trust McDonalds then you cant eat thier fries. Some ppl have been told otherwise when they called in, but I suspect that has more to do with the newness of this information then anything else.

POSTION TWO "I do not trust McDonalds"

Umm then why you eating there to begin with?

And well here I gets stuck cause every other postion falls back on these two.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator
There are plenty of people who are totally asymptomatic yet the damage is still being done. I think the fact of whether or not you have a reaction to them cannot be used to determine whether or not damage is being done.

Yes, this is why I said if you *know* what your reaction to gluten is and you dont react to the fries they may be completely safe for you. If you are asymptomatic then obviously you have no idea what the fries may or may not be doing to you so in that case you'd have to make a personal decision about whether or not you're willing to risk your health over the fries.

I think it all boils down to one thing in the end....personal choice. Some people will continue to eat the fries...others wont. Without undeniable proof of gluten in the fries we really dont know enough to say with 100% certainty that the fries are going to cause damage to Celiacs. We also dont know with 100% certainty that its safe for Celiacs to eat the fries. Until we know more about it its really going to be a personal choice we'll have to make.

psawyer Proficient

Thanks, Rachel. I do react to gluten in small amounts. I have gas and explosive diarreah. I have never had a reaction after eating McDonalds hash browns or fries. That does not prove that they are gluten-free. Scientifically you can not prove a negative. But, to me, it does mean that my body does not react, so if there is any gluten it is it an extremely low level. I think that I take a greater risk of bodily harm, or death, each time I drive my car. FWIW. P.

Rachel--24 Collaborator

Thanks Peter,

This was my point exactly.

Just because you don't react to the fries doesnt prove them to be 100% gluten-free. On the other hand just because someone else does react to the fries doesnt mean they are unsafe for all Celiacs. You just gotta do whats best for you. Also someone may react to the fries for a reason totally unrelated to gluten or because that particular batch got contaminated by a nugget in the fryer.

Merika Contributor

This splitting hairs over is-the-gluten-still-there-or-not with some cooking method reminds me of the laws in Europe which say (as I understand, not living there) that anything with less than .05 somethings of gluten in it can be labelled gluten free. Hence, European wheat starch is considered gluten free because it is a high quality starch that has had 99.9% of the wheat protein removed. It is believed there that a minute amount of gluten will not harm a celiac. YMMV (your mileage may vary).

To me, it sounds like the fries are made with gluten and always were, and they're just now labelling them as such. It's also possible the supplier sends the same flavor item to packaged food manufacturing places and so is sending blanket notifications to all their customers.

I think the medical jury is still out as to how pure something needs to be for a celiac to safely eat it. Personally, I'm not going anywhere near any gluten AT ALL :o I don't care if someone says it's safe.

Merika

VydorScope Proficient
Thanks Peter,

This was my point exactly.

Just because you don't react to the fries doesnt prove them to be 100% gluten-free. On the other hand just because someone else does react to the fries doesnt mean they are unsafe for all Celiacs. You just gotta do whats best for you. Also someone may react to the fries for a reason totally unrelated to gluten or because that particular batch got contaminated by a nugget in the fryer.

Oh I agree, if your comfrotable with Mcdonalds saying there is gluten in the fries, but believe it to be low enough not to bother you (ingoring CC), then go head and eat them. In the ned its YOUR body, and has to be your descion.

Personly, my son has never not reacted to them and I refuse to do that to him, myself... I never had them while being gluten-free so I can not say for sure I guess, so I probably need edit my post where I imply other wise. Since my son reacts and he seems to get everything like that from me, I am assuming that I will also react.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,915
    • Most Online (within 30 mins)
      7,748

    marcusdarrell1
    Newest Member
    marcusdarrell1
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Thank you, a little expensive but glad to have this source. 
    • Xravith
      @knitty kitty  Thank you very much for the advice. I did the exam this morning, my doctor actually suggested me to take something called "Celiac duo test" in which I first do the genetic test and if it's positive, then I'll have to do the antigen blood test. I have to attend 1 month until my results are ready, so I have some weeks to increase the amount of gluten I eat daily. It will be hard because my health is not the best right now, but I also did a blood test to cheek my nutritional deficiencies. The results will arrive on Tuesday, so I can ask my doctor what should I do to control my symptoms and blood levels during this month. For now I'm resting and paying attention to what I eat— at least I don’t look like a vampire who just woke up, like I did yesterday. I'm still scared because is the first time I've felt this sick, but this is the right moment to turn things around for the better.  I realized that if I eat gluten at lunch I cannot finish the day properly, I become severely tired and sometimes my stomach hurts a lot - let's not talk about the bloating that starts later. Do you think is it ok to eat gluten just in the morning, like some cookies and slices of bread for breakfast? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.