Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Testing/ Son Is Going In For Biopsy & Blood Testing

skurtz

Recommended Posts

ianm Apprentice
ianm
Posted

Skurtz you are way out of line here. This forum is a place where people with celiac can come and share their knowledge and experiences with this disease. You have asked many questions and have been given good and sound advice from people who have had far more experience with celiac than you. If you don't like the answers you are getting then why are you wasting everyone's time by asking questions? Nini is one of the most knowledgeable members of this forum and for you to make a personal attack on her is simply uncalled for.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


skurtz Explorer
skurtz
Posted
  • Author

I may have asked for insight but I suggest you look back at nini remarks it is her who has made the personal attacks. As I stated before I do appreciate the help But I FEEL that She has PERSONALLY ATTACKED ME, with sarcastic remarks. Hey whatever that is how I FELT!!!!!!!!!!!!!!!!!!!!!!!!!!! & your right I probably have received good sound advice & Im sure everyone or just about everyone knows more then me about Celiac. Im just trying to the best for my kids & whatever.

Rachel--24 Collaborator
Rachel--24
Posted

I don't see anything sarcastic in Nini's posts. Perhaps you misunderstood her intentions? As far as I know she was just quoting information that the learned from a Celiac Specialist who spoke in her recent support group meeting. All we are trying to do here is give people the most information we can so that they can make informed decisions. I believe knowledge is power and when it comes to our health we should learn all we can.

JMO.

skurtz Explorer
skurtz
Posted
  • Author

maybe I did misunderstand , I do however agree with the 2nd part of your reply.

Guest nini
Guest nini
Posted

I just went back through this entire thread and no where on here could I see anything that could even be remotely construed as sarcastic. I was simply trying to help. When I stated my opinion I added specifically on there that it was my opinion. The rest of the info was from a renowned Celiac Specialist. A Dr. with a very busy Gastroenterology practice that speaks to support groups around the country and is a reference source for many of the books on Celiac that are out now. She spoke at our meeting last week and I was simply trying to relay some of the infomation that she shared. In no way was it my opinion, nor was it ever an attack.

You specifically stated that unless I was an expert you were going with the advice you are getting from your sons NURSE. Fine. I was just trying to help you with answering the questions I thought you were asking.

I spent 33 years of my life very ill and am only trying to help prevent others from going that long without a dx. If you do not want to benefit from my experience that is your choice, but you are taking chances with your sons health. Again. I was only trying to help, but I guess you didn't really want my help, since you kept confusing me with Rachel anyway.

skurtz Explorer
skurtz
Posted
  • Author

I AM SORRY, I took your comments as a direct hit like Im not trying to do what is BEST for my SON.

I do appreciated the info or I wouldnt have been asking. Once again I am sorry

Guest nini
Guest nini
Posted

apology accepted. it's easy to misconstrue someone's intentions in an online forum, but I promise you, my intentions were only to help by directly answering the specific questions you asked to the best of my ability.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,159
    • Most Online (within 30 mins)
      7,748
    Werae71
    Newest Member
    Werae71
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Blood tests low iGA 4 years later digestive issues

      By trents · Posted

      Welcome to the forum, @Mmoc! Please include the reference ranges for the IGA and the TTG tests in your next post if you have access to them. We cannot comment much otherwise as different labs use different reference ranges for these tests and also different units of measurement. There are no universal standards as of yet so the raw test numbers are not always helpful. Having said that, if your IGA (what we usually call "total IGA") is low, the TTG-IGA score will be skewed and cannot be trusted. Other kinds of tests for celiac disease would need to be run, particularly those in the IGG family of tests. Perhaps this will be helpful:  
    • Mmoc
      Blood tests low iGA 4 years later digestive issues

      By Mmoc · Posted

      Hi there any advice welcomed. I have had 4 years of symptoms ranging from immune related anaphylactic symptom sudden onset food allergy to peppers/paprika/chilli/capsicum family derivatives. all these allergies fizzled out and following a food challenge test in hospital I reintroduced them a few months ago. Since then my digestive system is a mess. i have since noticed that 4 years ago when testing for iga allergies my iga level was .62 and my ttg was less than .1 (due to symptoms I was probably eating very plainly at that time). should I insist on being retested for celiac? I’ve since read two indicators for celiac include: sensitive to spicy foods when in flare up tooth enamel weakness and symmetrical discolouration patches on teeth which I have had since childhood on my two front teeth     thanks
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.