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Testing/ Son Is Going In For Biopsy & Blood Testing


skurtz

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ianm Apprentice

Skurtz you are way out of line here. This forum is a place where people with celiac can come and share their knowledge and experiences with this disease. You have asked many questions and have been given good and sound advice from people who have had far more experience with celiac than you. If you don't like the answers you are getting then why are you wasting everyone's time by asking questions? Nini is one of the most knowledgeable members of this forum and for you to make a personal attack on her is simply uncalled for.


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skurtz Explorer

I may have asked for insight but I suggest you look back at nini remarks it is her who has made the personal attacks. As I stated before I do appreciate the help But I FEEL that She has PERSONALLY ATTACKED ME, with sarcastic remarks. Hey whatever that is how I FELT!!!!!!!!!!!!!!!!!!!!!!!!!!! & your right I probably have received good sound advice & Im sure everyone or just about everyone knows more then me about Celiac. Im just trying to the best for my kids & whatever.

Rachel--24 Collaborator

I don't see anything sarcastic in Nini's posts. Perhaps you misunderstood her intentions? As far as I know she was just quoting information that the learned from a Celiac Specialist who spoke in her recent support group meeting. All we are trying to do here is give people the most information we can so that they can make informed decisions. I believe knowledge is power and when it comes to our health we should learn all we can.

JMO.

skurtz Explorer

maybe I did misunderstand , I do however agree with the 2nd part of your reply.

Guest nini

I just went back through this entire thread and no where on here could I see anything that could even be remotely construed as sarcastic. I was simply trying to help. When I stated my opinion I added specifically on there that it was my opinion. The rest of the info was from a renowned Celiac Specialist. A Dr. with a very busy Gastroenterology practice that speaks to support groups around the country and is a reference source for many of the books on Celiac that are out now. She spoke at our meeting last week and I was simply trying to relay some of the infomation that she shared. In no way was it my opinion, nor was it ever an attack.

You specifically stated that unless I was an expert you were going with the advice you are getting from your sons NURSE. Fine. I was just trying to help you with answering the questions I thought you were asking.

I spent 33 years of my life very ill and am only trying to help prevent others from going that long without a dx. If you do not want to benefit from my experience that is your choice, but you are taking chances with your sons health. Again. I was only trying to help, but I guess you didn't really want my help, since you kept confusing me with Rachel anyway.

skurtz Explorer

I AM SORRY, I took your comments as a direct hit like Im not trying to do what is BEST for my SON.

I do appreciated the info or I wouldnt have been asking. Once again I am sorry

Guest nini

apology accepted. it's easy to misconstrue someone's intentions in an online forum, but I promise you, my intentions were only to help by directly answering the specific questions you asked to the best of my ability.


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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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