Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dermtitis Herpetiformis


skurtz

Recommended Posts

skurtz Explorer

Is dermititis heretiformis caused by an allergy???????


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

No....DH is not an allergy. Its caused by gluten intolerance/celiac disease. I'm pretty sure it can be diagnosed by a dermatologist with a skin biopsy. People with DH must adhere to the gluten free diet to avoid the rash.

skurtz Explorer

rachel thanks i just found out at dertologic disease database that IT IS AN ALLERGY TO GLUTEN A PROTEIN FOUND IN WHEAT & OTHER GRAINS. www.aocd.org

thanks again

Claire Collaborator

I am not familiar with the source you posted but am familiar with DH (I do not have it) It is no more an allergy than celiac is an allergy - though it also is often spoken of as such.

You can't accept everything you read on the internet. You need to cross reference a subject until you find out what perhaps 10 sources tell you - rather than one.

I recently challenged a website on false information on buckwheat. See below:

To: drkaslow@drkaslow.com

Subject: Comment

I was surprised to find a very critical error on your webpage Open Original Shared Link

In the second paragraph the following statement is made:

DIETARY FACTORS: Food additives, impaired simple carbohydrate (glucose) metabolism, and food allergies/sensitivities. The most common intolerances are gluten-containing grains (wheat, oat, rye, millet, buckwheat, arrowroot, etc) and casein (a milk protein).

Millet, buckwheat, arrowroot are gluten free products and listed by all leading authorities as acceptable for celiac patients - those most intolerant of grains.

Buckwheat is not a grain at all - it is berry.

We need all the reliable information we can get. It is very confusing to come upon a good site that is promoting false information.

RESPONSE:

You are correct. We had updated this for our own patients but are having trouble updating the website…

Jeremy E. Kaslow, MD

714-565-1032

Gluten is the cause of DH. As I understand it the anitbodies actually clump in the blood vessels which iniitiates a skin reaction. It is said that DH is a definitve celiac diagnosis. It takes a long time to heal - a couple of years usually. Intestinal damage takes one to two years.

The internet is wonderful but you have to be wary. Claire

Claire Collaborator

I continue on the same subject - Claire:

Dermatitis Herpetiformis    

Dermatitis herpetiformis (DH) is not a skin allergy. Rather, DH is a chronic, extremely itchy rash consisting of papules and vesicles. Although it is often confused with skin allergies, it is actually associated with Celiac Disease (celiac disease), a sensitivity of the intestine to gluten foods in the diet. celiac disease is also not a foold allergy, but rather a disease of the intestines.

Full article at Food and Allergy Foundation of America

Open Original Shared Link

Timber4est Rookie

I have a question, all my life from time to time small sections of my skin (on my face and neck, back of my hands or tops of my feet) would all of a sudden swell, turn read, fever to the touch and form a rash. It comes and goes never stays and when the swelling goes down and the localized "fever" is gone and the rash is gone, I am left with skin that looks like a peeling from a bad sunburn. Is this what it looks like? I have gone to severl dermatologist who have no clue what it is when it happens.

Perhaps next time I should have them biopsy it.

Deborah

Claire Collaborator

This doesn't sound like DH - which doesn't mean that it is not. A biopsy is definitely the way to go.

Ask specifically that they look for DH. If the doctor gets cocky and says there is no need to test for that you might have to lie a little - say one of your parents had celiac. I have a friend whose doctor wouldn't even consider DH - until she fudged the truth. Test was positive.

Good luck. Claire


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      16

      My only proof

    2. - Dakota01 commented on Scott Adams's article in Winter 2026 Issue
      1

      Are Gluten-Free Processed Foods Making You Sick? (+Video)

    3. - JoJo0611 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Awaiting Biopsy results

    4. - cristiana replied to emzie's topic in Related Issues & Disorders
      1

      Stomach hurts with movement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,455
    • Most Online (within 30 mins)
      7,748

    Suelle
    Newest Member
    Suelle
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Doterra is a life saver and yes I feel like im waiting because Im getting yes you are celiac, no your not celiac. Im so FRUSTRATED, exhausted and tired of explaining to medical why I feel this way.Im stressed because my body isn't feeling well.Yes I am and no it's not just a food allergy as downplayed with doctors Ive seen.I even went to the " celiac  specialist " Dr Fernandez-Becker who down played my ailments and stated im not and then yes I am I even had one her " care team" ask my why do you want that diagnosis. UNMMMMM. I don't want it, its been my life confirmed in 1994.Menopause intensified extra sensitivity and medical has down played my sibo, ibs, CELIAC, now im having skin and eye issues. I thought help was available but its been a complete medical disaster. 
    • JoJo0611
      I have had my endoscopy this morning with biopsies. My consultant said that it looked like I did have coeliac disease from what he could see. I now have to wait 3 weeks for the biopsy results. Do I continue eating gluten till my follow appointment in three weeks.  
    • cristiana
      Hi @emzie and welcome to the forum. Perhaps could be residual inflammation and bloating that is causing sensitivity in that area.  I was diagnosed with coeliac disease in 2013 and I remember some years ago my sister telling me around that time that she had a lady in her church, also a coeliac, who  had real pain when she turned her torso in a certain direction whilst doing exercises, but otherwise was responding well to the gluten-free diet. As far as I know is still the picture of health. I often end up with pain in various parts of my gut if I eat too much rich food or certain types of fibre (for some reasons walnuts make my gut hurt, and rice cakes!) and and as a rule, the pain usually hangs around for a number of days, maybe up to a week.   When I bend over or turn, I can feel it.  I think this is actually due to my other diagnosis of IBS, for years I thought I had a rumbling appendix but I think it must have just been IBS.  Reading the experiences of other sufferers, it seems quite typical.  Sensitized gut, build up of gas - it stands to reason that the extra pressure of turning can increase the pain. When I am glutened I get a burning, gnawing pain in my stomach on and off for some days - it isn't constant, but it can take up a few hours of the day.  I believe this to be gastritis, but it seems to hurt irrespective of movement.   Anyway, you are doing the right thing to seek a professional opinion, though, so do let us know how you get on.   Meanwhile, might I suggest you drink peppermint tea, or try slices of fresh ginger in hot water? A lot of IBS sufferers say the former is very helpful in relieving cramps, etc, and the latter is very soothing on the stomach. Cristiana
    • emzie
      Hi! One of the usual symptoms I have with a gluten flare up has deviated a bit and I thought I'd search for advice/opinions here. Also to see if anyone goes through similar stuff. Monday all of a sudden I got really bad pain in my stomach (centre, right under the chest, where the duodenum would be located). I ended up having to throw up for 2 hours, my body was trying to get rid of something from all sides and it was just horrible. Since then I havent been nauseous anymore at all, but the pain has stayed and it always worsens the moment i start moving. The more I move the more it hurts, and when i rest longer it seems to dissapear (no movement). I've had this before, but years ago I think around when I first got diagnosed with coeliac, where each time I moved, my stomach would hurt, to the point where I went to the ER because doctors got freaked out. That only lasted 1 night though, and Now it's already wednesday, so 3 days since then, but the pain persists and remains leveled. it doesn't get crazy intense, but it's still uncomfortable to the point I cant really go out because Im afraid itll turn into a giant flare up again. I couldn't think of where I could possibly have been glutened at this bad of a level and why it hasn't passed yet. I went to the GP, and as long as I have no fever and the pain isnt insane then its fine which I havent had yet. Tomorrow im also seeing a gastroenterologist specialized in IBS and coeliac for the first time finally in years, but I thought I'd ask on here anyway because it still hasnt dissapeared. It also hurts when someone presses on it. Maybe it's just really inflamed/irritated. I'm just frustrated because I'm missing out on my uni lectures and I do a sports bachelor, so I can't get behind on stuff & next to that i'm also going to go to the beach with my boyfriend's family this weekend: ( 
    • Flash1970
      Hi. So sorry to hear about your shingles. There is a lidocaine cream that you can get at Walmart that will help numb the pain.  That's what I used for mine. It can't be put near your eyes or in your ears. I hope your doctor gave you valacyclovir which is an antiviral.  It does lessen the symptoms. If it is in your eyes,  see an ophthalmologist.  They have an antiviral eye drop that can be prescribed.  Shingles in the eye could cause blindness.  I was unsure whether you have celiac or not.  If you do,  follow the diet.  I believe that extra stress on your body does affect everything. Shingles can recur. If you start getting the warning signs of nerves tingling,  see the dr and start taking the valacyclovir to prevent a breakout. If I sound technical,  I am a retired pharmacist. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.