Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Casein Topic


gointribal

Recommended Posts

gointribal Enthusiast

If I think I have a problem with casein what tests should i ask my dr to do? Also should I go see a GI dr to get these tests done? My drs have not been too helpful and my insurance runs out in about three months :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

I'm not aware of doctors testing for casein intolerance. You can test through Enterolab or York or Great Smokies I believe. I could be wrong but thus far I havent heard of any doctor testing for it. They will test for lactose intolerance though.

Felidae Enthusiast

We don't have any tests for casein intolerance in Canada (that I know of) and I can't afford those labs such as York. So you can strictly eliminate all dairy from your diet and then after a few weeks try to reintroduce it. For example, most hard cheeses don't have any lactose, so if you eat some hard cheese and react it is likely to the casein.

gointribal Enthusiast
We don't have any tests for casein intolerance in Canada (that I know of) and I can't afford those labs such as York. So you can strictly eliminate all dairy from your diet and then after a few weeks try to reintroduce it. For example, most hard cheeses don't have any lactose, so if you eat some hard cheese and react it is likely to the casein.

I've been thinking its a lactose problem but my blood test were negative. I've done the lactose free milk and I got sick, so then I thought it was just a milk allergy. So whats the difference between a milk allergy and a casein intolerance? I am so lost!?!?

gointribal Enthusiast

what cheese is gluten free and lactose free? Any at all?

Felidae Enthusiast

Most cheeses are gluten-free. But in Canada we have one large manufacturer that won't guarantee any of their dairy products gluten-free. Most swiss cheeses and some gouda's are lactose free. A milk allergy, like any true allergy will cause an anaphalaxis reaction, such as hives, breathing diffuculties and so on. A casein intolerance like other intolerances may cause digestive problems, such as diarrhea, constipation, nausea, etc. I had midterms so I haven't been on here for awhile, sorry for the delayed response.

ebrbetty Rising Star

I just had a blood test for milk/casein allergy..came back neg.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenvan Collaborator

If you want to order testing and are willing to pay some, great plains labs did my casein/intol testing. My insurance, anthem, paid for part of it also.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

    2. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    3. - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    4. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,340
    • Most Online (within 30 mins)
      7,748

    Abbyyoung417
    Newest Member
    Abbyyoung417
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.