Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thank You And Migraines

Faithperson

Recommended Posts

Faithperson Newbie
Faithperson
Posted

First of all, thank you thank you thank you to all who are involved with contributing to this message board. I'm recently diagnosed with celiac disease (blood work and upper endoscomy biopsy confirmed) and very much looking forward to healing up and getting better. I was, among other things, a cyclist, karate practitioner, and a generally overall highly active person, and over the past seven years have became weaker and weaker, sicker and sicker, my iron stores depleted and tensions headaches after working out morphed into migraines nearly half the days out of every month. Finally, thanks to the nurse practitioner intent on figuring out what was wrong with me, I have clear answer. Now comes the interesting part, living gluten free. I am hopeful the migraines will get better; the neurologist thinks it's possible. Any testimonials out there?

I am so glad to finally figure out what the problem is.

ae

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rachel--24 Collaborator
Rachel--24
Posted

Hi,

Welcome to the board. :)

My migraines went away shortly after starting the diet. I was taking perscription pain meds daily for a year. Since the day I started the diet I havent taken any meds at all. :)

EmilyLMT Rookie
EmilyLMT
Posted

Hello Faithperson, first of all welcome to the site! This is a wonderful resource of information!

Second, I firmly believe that the gluten free diet will assist with your migraines and your iron depletion. Good luck and keep us posted on your status!

Thanks,

Emily

judy05 Apprentice
judy05
Posted
First of all, thank you thank you thank you to all who are involved with contributing to this message board. I'm recently diagnosed with celiac disease (blood work and upper endoscomy biopsy confirmed) and very much looking forward to healing up and getting better. I was, among other things, a cyclist, karate practitioner, and a generally overall highly active person, and over the past seven years have became weaker and weaker, sicker and sicker, my iron stores depleted and tensions headaches after working out morphed into migraines nearly half the days out of every month. Finally, thanks to the nurse practitioner intent on figuring out what was wrong with me, I have clear answer. Now comes the interesting part, living gluten free. I am hopeful the migraines will get better; the neurologist thinks it's possible. Any testimonials out there?

I am so glad to finally figure out what the problem is.

ae

Hi Faithperson,

Welcome to the board. I also suffered from migraines for many years, haven't had one in over a year. Sometimes I think one is going to start and then it doesn't. I've been gluten-free for 2 years and CF for a year and a half. My Dr. thought they stopped because I went through menopause, but I think it was the gluten. My Dr told me that I could eat gluten because I don't have the gene. All I have to remember is how I suffered with migraines and the urge to eat gluten goes away real fast.I hope you will have the same luck, let us know, we love success stories, it reaffirms what we know to be true.

julie5914 Contributor
julie5914
Posted

Hi and Welcome - glad you found out what was wrong!

My migraines are less and less, and you have half the battle won by knowing that it is both tension and celiac. (or tension caused by celiac - my muscles are so messed up!)

I'm 7 months out, and I have to do yoga and get massages sometimes to keep my shoulders and neck from tensing up so much that I get a migraine. That, along with a gluten free diet has gotten them down to once a month or less. I also take magnesium and calcium at night and my one-a-day for women (extra iron) in the morning. Since being on the diet, I am still short in energy, but my iron stores have increased dramatically.

Firegirl43 Contributor
Firegirl43
Posted

I still get them but slowly they tell me it will get better

floridanative Community Regular
floridanative
Posted

I was intrigued by this title. My husband's ex-boss had to go on disibility due to severe migraines after missing so much work for two years. The last time we saw him (Dec. 2004) he kept his leather jacket on inside the house but I knew he was as thin as a rail even with his thick jacket on. To find out what was bringing on the migraines the doctor made him eat nothing but oatmeal and he felt better. The latest evidence suggest that some oatmeals do not have cross contamination issues as you know. There may have been some severe depression going on as well. Does anyone know if someone could have only migraines and depression and possibly have Celiac? We're pretty sure this guy was never tested for it but if there's any chance I could help him I'd like to mention it to him. My husband thinks it can't hurt.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


psawyer Proficient
psawyer
Posted

I used to get migraines occasionally. Certainly not daily, maybe more like once a month. I have not had one since going on the diet over five years ago. With all the other changes, I did not realize for some time that they had stopped.

fritzicurls Rookie
fritzicurls
Posted

Migraines can be caused by magnesium deficiency. Take 200 mg of a good magnesium every hour until the migraine goes away. Should be no surprise since celiac can't absorb. Lots of celiac symptoms overlap with magnesium deficiency symtpoms.

fritzicurls

jknnej Collaborator
jknnej
Posted

I get migraines and unfortunately going gluten-free hasn't helped. I take Relpax, though, and it works.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,549
    • Most Online (within 30 mins)
      7,748
    Blough
    Newest Member
    Blough
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.