Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Video Endoscopy Capsule

4tomorrow

Recommended Posts

4tomorrow Apprentice
4tomorrow
Posted

I have posted a few questions on here. I believe that I am at the very least gluten intolerant. I have been living on bananas, turkey/chicken, and rice cakes for days. I am taking librax also. I ate one of those small packages of blueberry muffins tonight and was in terrible pain for hours.

I am trying Heather VanVorous IBS diet to prove to myself and others that I don't have IBS. My pain is about 2-3 in. above my navel.

Enterolab received my kit last Wednesday, so I'm hoping for my results soon but I know that they are busy.

My GI is convinced I don't have celiac but noted that she saw "flattening of the mucosal folds in the duodenum, which are consistent with Celiac disease". My biopsy came back fine as did my blood tests.

So, on to my point. Will there be any evidence that could prove/disprove my theory of celiac by the video capsule endoscopy? I was just wondering if anyone else had had one done.

Disclaimer: I did a search and did not find anything relevant to this.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nancym Enthusiast
Nancym
Posted

I doubt it because they look at those biopsy slides with a microscope. Are you going to swallow a camera? :D How cool is that!

4tomorrow Apprentice
4tomorrow
Posted
  • Author

Yes, it's the size of a large vitamin. I'll have a belt on that it transmits too. It'll take about 55,000 pics of my small intestine. I would love to get a copy of it.

Canadian Karen Community Regular
Canadian Karen
Posted

I found this about it:

Open Original Shared Link

I have heard of it before, but don't know of anyone who has had this done.....

Karen

4tomorrow Apprentice
4tomorrow
Posted
  • Author

Thanks for the research. I'll let everyone know what happens with it. It should be really interesting.

Guest nini
Guest nini
Posted

one of the ladies in our support group had this done as a follow up to make sure she was complying with the diet. I can't remember exactly what she said they found, but I do remember that it sounded really cool!

jenvan Collaborator
jenvan
Posted

Go here and scroll down to see pill cam images of Celiac: Open Original Shared Link

Open Original Shared Link I can't find the article, but I read one on the pill cam being an inferior means to diagnosing Celiac. I would say the endoscopy/biopsy is better. The pill cam is not a microscope and can only show regular images. Sometimes that means showing Celiac, other times it does not. I like the biopsy b/c it tells you a lot of things the pill cam can't, like increased lymphocytes etc. I think of the article I'll let you know. It does seem like the pill cam is becoming more popular though. I had a friend who did it and thought it was fun :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

My mom had it done last year. She had been hospitalized after a fall, and her hemiglobin was very low, and they couldn't figure out why. She had a colo. and endo., but there's a portion of the intestine that is not viewed by either of those, so she swallowed the camera. She then had to wear a little 'battery pack' looking thing for several hours afterwards, and then go back to the drs. Her's showed nothing abnormal. I wouldn't think it would be useful in dx. Celiac, as any damage seen is through a microscope. That said, my dr. saw 'changes' during my endo. and told me to begin the diet that day.

mmaccartney Explorer
mmaccartney
Posted

I have had the test performed. My GI Doc called it a Camera Endoscopy. He suggested it after ALL my testing showed absolutely nothing wrong with me, (bloodwork, Upper GI series, endoscopy, colonscopy). basically just swallow a pill sized camera and wear a vest that records the pictures. It took about 6 hours and was absoultely painless. the vest was a tad uncomfortable, but compared to an upper endoscopy or a colonoscopy I'll take it any day.

As someone pointed out though, no biospies can be taken BUT it shows parts of your intesties that are normally only visible through surgery! My GI doc indicated that the picture showed simliar patterns and "folds" that are consistent with celiac sprue. based on that we did another upper endoscopy and got a biopsy. That showed negative for celiac. However I don't know if he biposied the correct location (he indicated that the inflammation and "folds" he noticed were about 1.5 hours into the digestive process dont know if that location is visible through endoscopy or not...), did the lab use a microscope? How good is the lab at dx for celiac?? I don't have any of those answers.

He also did the test to rule out Chron's disease which is what my insurance company also wanted to hear to cover the ~$1500 test. My attitude, it sure as heck beat exploratory surgery!!!!!

Nancym Enthusiast
Nancym
Posted

Just curious... how is the camera retrieved? Or is it? :D

Why must I always be the one to ask the difficult questions?!?! :P

jenvan Collaborator
jenvan
Posted

It comes out the other end :)

Guest nini
Guest nini
Posted
It comes out the other end :)

ewwwwwww :lol:

Nancym Enthusiast
Nancym
Posted
It comes out the other end :)

I was sort of figuring that. But doesn't it take days for it to pass? Or does it get through in those 6 hours? And do they retrive it and reuse it? :D Oh dear... I really shouldn't think so hard.

jerseyangel Proficient
jerseyangel
Posted

No. they don't retrieve it--it just 'goes' away ;)

4tomorrow Apprentice
4tomorrow
Posted
  • Author

I'd say if they were reusable they would have a VERY hard time getting anyone to swallow it. :P

Nancym Enthusiast
Nancym
Posted
I'd say if they were reusable they would have a VERY hard time getting anyone to swallow it. :P

LOL! I should say so! I figured maybe the open it up, yank the camera out and put it inside another capsule.

This is the coolest technology! Reminds me of when they miniaturized guys and injected them into someone blood stream in some movie.

celiac3270 Collaborator
celiac3270
Posted

To my knowledge:

The video capsule endoscopy takes images, but the main problem is that it can't take intestinal samples, which are the CRITICAL part of an endoscopy, moreso than the images. So it is an inferior means.

elfkin Contributor
elfkin
Posted

My husband had this done. They said they didn't find anything. He also had exploratory surgery - nothing there either. I wonder if they did the right blood test on him for celiac? They said it was negative. They said that he had reflux, mild colitis, severe IBS or viseral hypersensitivity, and possibly allergies. :blink:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Churley
      - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    3. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    4. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    5. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,347
    • Most Online (within 30 mins)
      7,748
    Carla Mort
    Newest Member
    Carla Mort
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Churley
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Churley · Posted

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.