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It Takes Time To Heal


Claire

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Claire Collaborator

I posted this once but it never showed up so here goes again. If you see this twice please excuse. Claire

RECOVERY OF HEALTH OF THE INTESTINE TAKES TIME AFTER STARTING GLUTEN-FREE DIET

In this study, 158 people with celiac disease had their small intestines examined after starting a gluten-free diet. After 2 years, 65% of the people had healed intestines; after 5 years, 85.3% had healed, and beyond that 89.9% had healed. Children recovered up to 95% within 2 years and 100% in the years after. For 10.1% of people, there was little or no recovery of health of the intestine.

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mommida Enthusiast

This link could be helpful in a lot of the other posts too.

Thank you for posting.

Laura

Guest BERNESES

Claire- Thank you SO much for posting this. I know it's not great news but it's definitely reassuring to those of us who aren't progressing as quickly as we thought we would. . I know that I expected the gluten-free diet to work miracles over night, and while it might for some, it takes a lot longer for others. Thank you! You made my night with this one. Sigh.... (of relief)

Claire Collaborator
Claire- Thank you SO much for posting this. I know it's not great news but it's definitely reassuring to those of us who aren't progressing as quickly as we thought we would. . I know that I expected the gluten-free diet to work miracles over night, and while it might for some, it takes a lot longer for others. Thank you! You made my night with this one. Sigh.... (of relief)

So glad this was a good post for you. Hope it is for others too. So many people here seem to be struggling with this issue. So many with such high hopes and then getting discouraged when it doesn't quite work out that way. That discouragement causes a lot of very negatives feelings - not good for recovery. This piece shouldn't discourage people from checking into exacerbating food intolerances as a cause of their discomfort as well. Claire

jerseyangel Proficient

Claire--I found the article most interesting and encouraging, also. I have an appt. with an allergist, who's nurse told me on the phone tests for food allergies and also does the RAST test. I told her I was a Celiac who seems to be having issues with other foods. I go the 1st. week of March. I've looked into the independant labs--I may still try going that route, but deceided to go and talk to this dr. first. Thanks for posting the article :)

tiredofdoctors Enthusiast

Wow -- what an eye-opening article. It's good that your body can heal -- but this idea that a lot of MD's have -- that you'll be "fine" in a few months -- according to some things I've read, some things I've heard -- was certainly shot down. Jersey Angel -- find out if your allergist is also an IMMUNOLOGIST. Usually it is a combined specialty. If that is the case, I would talk in-depth about the immunology portion of your disease as well. Allergies are one thing -- immunology issues are quite another. Found this out the hard way. Good luck to you. Will be keeping you in my thoughts and prayers.

thomas3000 Rookie

I think that article is interesting of course, but lacking in vital information. As I have said before, most if not all people with celiac disease have some type of infection(s) that delays healing. That's where testing for GI pathogens come into play.Using Hawthorne Berry extract and L-glutamine will speed up the healing process. I started a thread on this topic called "Radio program on Gluten Intolerance" and Dr. Bill Timmins ND explains this in great detail...


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Guest BERNESES

Thomas- I started taking LGlutamine and I HIGHLY recommend it. I will listen to the radio program you posted later- thank you for doing that.

Claire Collaborator

Hi Thomas.

Most non-technical articles on celiac are not 'thorough' - even wrong on some of the specifics and long on omission but some, like this one, contain a gem that makes up for any shortcomings. The posted paragraph is information badly needed by many on this forum who are discouraged because they set high expectations for 'recovery' that are not supported by the evidence.

Celiacs with neurological issues need to watch the intake of L-glutamine - if they even take it at all. Claire

jerseyangel Proficient
Wow -- what an eye-opening article. It's good that your body can heal -- but this idea that a lot of MD's have -- that you'll be "fine" in a few months -- according to some things I've read, some things I've heard -- was certainly shot down. Jersey Angel -- find out if your allergist is also an IMMUNOLOGIST. Usually it is a combined specialty. If that is the case, I would talk in-depth about the immunology portion of your disease as well. Allergies are one thing -- immunology issues are quite another. Found this out the hard way. Good luck to you. Will be keeping you in my thoughts and prayers.

Lynne--Thank you for the good advice--I will certainly keep it in mind when talking to the doctor :)

ebrbetty Rising Star

claire, thank you for posting the link...I came on here tonight thinking I'm going to give up on the gluten-free diet starting tomorrow. My blood work came back borderline positive the first week of Jan [after years of severe daily stomach pain] ..I've been gluten-free since and was about 80% gluten-free for 4 weeks before the blood tests.

I'm still having stomach pain everyday, not as bad as before but its still a problem, even gluten-free bread hurts. my family thinks I should give it more time, and after reading that article I might continue the diet, but I think I should be feeling a whole lot better at this point.

would someone please tell me where the post on the radio program is?

thanks, Betty

i canary Rookie

Claire,

Thank you for posting this article. I'm taking a long time to heal and was beginning to wonder why.

Canary

I posted this once but it never showed up so here goes again. If you see this twice please excuse. Claire

RECOVERY OF HEALTH OF THE INTESTINE TAKES TIME AFTER STARTING GLUTEN-FREE DIET

In this study, 158 people with celiac disease had their small intestines examined after starting a gluten-free diet. After 2 years, 65% of the people had healed intestines; after 5 years, 85.3% had healed, and beyond that 89.9% had healed. Children recovered up to 95% within 2 years and 100% in the years after. For 10.1% of people, there was little or no recovery of health of the intestine.

Open Original Shared Link

Claire Collaborator
claire, thank you for posting the link...I came on here tonight thinking I'm going to give up on the gluten-free diet starting tomorrow. My blood work came back borderline positive the first week of Jan [after years of severe daily stomach pain] ..I've been gluten-free since and was about 80% gluten-free for 4 weeks before the blood tests.

I'm still having stomach pain everyday, not as bad as before but its still a problem, even gluten-free bread hurts. my family thinks I should give it more time, and after reading that article I might continue the diet, but I think I should be feeling a whole lot better at this point.

would someone please tell me where the post on the radio program is?

thanks, Betty

Don't give up the gluten-free diet! Some of the results of neglected or untreated celiac are very, very serious p far worse than anything you have right now. Do investigate other causes of your discomfort. Food intolerance really flare up after going gluten-free - so consider that you have more than one thing going on and probably did even before going gluten-free. Claire :rolleyes:

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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
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      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
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