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Is this disease dabilitating?

Jrscott1970
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Jrscott1970 Rookie
Jrscott1970
Posted

Im not sure what to think. Is Celiac a debilitating disease or once youre diagnosed and handle it accordingly,, does life go on as usual? On the Celiac Foundation website I read this, The treatment burden of celiac disease is comparable to end-stage renal disease, and the partner burden is comparable to caring for a patient with cancer

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cyclinglady Grand Master
cyclinglady
Posted

Life goes on as usual. 

What researchers have found is that many celiac disease patients do feel like they have end stage renal disease or cancer.  That is because the burden of treatment falls on the patient.  I think it is the only illness where the treatment is the responsibility of the patient.  Every bite of food, medication or a kiss, can contain gluten that will trigger an autoimmune response.  It can be lonely too.  Granted a doctor can support you by offering up tests to insure you are not malnourished, but there is no pill to take.  No cure.

I think we are lucky.  There are no medicines, which can have severe side effects.    However, I do acknowledge that lifestyles must be changed, but it can be done.  Who would have thought so many people would stay home for the last month or so?  

Jrscott1970 Rookie
Jrscott1970
Posted
  • Author

Thank you for your response. I will be getting tested next week some time. I was just diagnosed with type 2 diabetes, and they thought my episodes of nausea/vomiting, diarrhea, cold appendages, fluttering muscles, weakness, fatigue and confusion and passing out were sugar. But after getting sugar normal, these symptoms remained. With further discussion my doctor is thinking possible Celiac. After only months of adjusting to type 2 diabetes, I now am looking at this. I've been strong, and energetic my whole life, now I'm operating at about 50-60%. Its a little unnerving. 

knitty kitty Grand Master
knitty kitty
Posted

Jrscott1970, 

Ask your doctor to test for thiamine deficiency.  There's a correlation between thiamine deficiency and diabetes.  

Here's an article.....

http://www.hormonesmatter.com/diabetes-thiamine-treatment-opportunity/

And another....

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3376872/#!po=17.3469

I have Type Two Diabetes and Celiac Disease. I've experienced all the symptoms you listed.  I was misdiagnosed and given medications to treat the symptoms without investigation of an underlying cause.  Had a horrible time.  

Long story short, it turned out that I had a severe thiamine deficiency which has been corrected with high dose thiamine, benfotimine, and magnesium.  I no longer need prescription medications, including metformin (which depletes thiamine).

Please ask your doctor to check your thiamine level.  

I hope this helps!

 

 

 

 

Posterboy Mentor
Posterboy
Posted
21 hours ago, Jrscott1970 said:

Thank you for your response. I will be getting tested next week some time. I was just diagnosed with type 2 diabetes, and they thought my episodes of nausea/vomiting, diarrhea, cold appendages, fluttering muscles, weakness, fatigue and confusion and passing out were sugar. But after getting sugar normal, these symptoms remained. With further discussion my doctor is thinking possible Celiac. After only months of adjusting to type 2 diabetes, I now am looking at this. I've been strong, and energetic my whole life, now I'm operating at about 50-60%. Its a little unnerving. 

JrScott,

I think Knitty Kitty has given you good advise.

Try taking some Benfotiamine....it can help with some of the diabetic issues that might be being confused for GI problems....

It is fat soluble and should b taken with with meals.....Here is a link about it....entitled "The multifaceted therapeutic potential of benfotiamine."

https://www.ncbi.nlm.nih.gov/pubmed/20188835

I would also suggest some Chromium Poly....it can help you use the Insulin your are producing....

Or If you don't have an allergy to yeast then take/using some brewers yeast is a good way to get chromium in your diet...

Here is a couple articles that might help you.....try to stay off Metformin if you can....I have managed my Type II diabetes without medicines and without complications so far in large part because I found Chromium and Thiamine...

http://www.hormonesmatter.com/metformin-mitochondrial-damage/

https://www.opednews.com/articles/1/Thiamine-The-Paradigm-Shi-by-Jeffrey-Dach-121028-862.html?p=1&f=Thiamine-The-Paradigm-Shi-by-Jeffrey-Dach-121028-862.html

Your doctor might check your Vitamin D levels too!

I hope this is helpful but it is is not medical advise.

Posterboy,

jen21 Newbie
jen21
Posted
On 5/7/2020 at 5:03 PM, Jrscott1970 said:

Im not sure what to think. Is Celiac a debilitating disease or once youre diagnosed and handle it accordingly,, does life go on as usual? On the Celiac Foundation website I read this, The treatment burden of celiac disease is comparable to end-stage renal disease, and the partner burden is comparable to caring for a patient with cancer

Do not drink echinacea tea because it can highten autoimmune disease. also if you go full gluten free you should be ok. Because if you decided to ignore the disease you could get cancer of the small intestines

Friend from church ignored it for years after she found out and got cancer in her intestines

GFinDC Veteran
GFinDC
Posted
On 5/7/2020 at 8:25 PM, Jrscott1970 said:

Thank you for your response. I will be getting tested next week some time. I was just diagnosed with type 2 diabetes, and they thought my episodes of nausea/vomiting, diarrhea, cold appendages, fluttering muscles, weakness, fatigue and confusion and passing out were sugar. But after getting sugar normal, these symptoms remained. With further discussion my doctor is thinking possible Celiac. After only months of adjusting to type 2 diabetes, I now am looking at this. I've been strong, and energetic my whole life, now I'm operating at about 50-60%. Its a little unnerving. 

Hi JRScott

Recovery from celiac disease damage may take a few years.  But it can happen if we are careful with our diet.  The gluten-free diet can fit well with T-2 diabetes IMHO.  It can be helpful to cut way back on carbs and sugar when going gluten-free.   Those foods can cause gas and bloating in the bowels which can be unpleasant and painful.

Your energy levels may improve after some intestinal healing.  We need to be able to absorb nutrients to feel well.  Plus when the immune response subsides our bodies don't have the extra burden of fighting gluten.  So that helps.

Healing our guts also helps with absorbing trace minerals and vitamins.  Your doctor should test you for nutrient deficiencies now and in a year.  It's good to see if progress is showing up on the tests.

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