Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

DH Outbreak, Iodine, and Certified gluten-free Oats

Jennifer Lynn
 Share

Recommended Posts

Jennifer Lynn Newbie
Jennifer Lynn
Posted

Hello Celiac.com Community!

I am new to the site and forum and I am eager to hear feedback from folks. I am experiencing a DH outbreak and I have been strictly gluten-free for over 4 years. Two things have changed recently: 

1. I began iodine supplements a few months ago for hypothyroidism as directed by my functional MD. (I did not experience an DH outbreak until two months after starting the supplement.)

2. I enjoyed homemade gluten-free certified oats a couple of days a week over the last month. 

 

I have a few questions:

1. Is it possible to develop DH after being on iodine for some time, irrespective of following a strict gluten-free diet?

2. Can certified gluten-free oats cause a DH outbreak?

3. Do folks experience DH outbreaks without any triggers such as cross-contamination and/or iodine use? Can stress alone induce DH?

 

Thank you in advance!

Warmly,

Jennifer 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Hey, Jennifer!  

I do not have DH.  I encourage you to browse through the DH section of the forum to see if others who have DH have experienced your issues.

 Oats?   Back in the day, oats were not recommended at all.  Then researchers realized that only a few celiacs react to oats (gluten reaction) and they advised waiting for at least six months before trialing them.    Then there has been all the oat controversy (mechanical vs purity grown oats) which you can research on your own.   In some countries, like Australia,  oats are still banned:

https://www.coeliac.org.au/uploads/65701/ufiles/Position_Statements/CAPSOats.pdf

Oats may very well be the culprit.  

If you are hypothyroid, why not just take thyroid hormone replacement?  What is the cause of your hypothyroidism?  I assume that because you have celiac disease, you have Hashimoto’s.  Have you had your thyroid antibodies tested?   I have been on thyroid replacement for 20 years.  Taking iodine supplements when your own body is attacking your thyroid is way off base in my non-medical opinion. It is rare for anyone in the US to be iodine deficient.  Rare.  While a gluten free diet has calmed my celiac disease and even caused my thyroid to go back to normal size and my thyroid nodules to disappear, I still need thyroid hormone replacement.  

I sincerely hope those members who have DH will chime in!  

Hopeful1950 Explorer
Hopeful1950
Posted

Hi, I have DH.  I went undiagnosed for 8 years and it was horrible.  I am 9 years gluten-free, very strict, and I still break out here and there.  In my experience anything with iodine in any quantity and with any regularity can cause it.  Also povidone in medications.  It is my understanding that DH can stay in your skin for up to 10 years “dormant” (for lack of a better word) just waiting to blister.  It is frustrating for sure.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,995
    • Most Online (within 30 mins)
      7,748
    Jojolina14
    Newest Member
    Jojolina14
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wends
      Finally got in to doctor to get my referral and I lucked out and got into Gastro the same day - question about different transglutaminase results

      By Wends · Posted

      Hi Cameo674. just read your post. Well wishes to a correct diagnosis so that you can get on track to healing and feeling better. Personally I know it’s good to have the eosinophilic disorder ruled out too, as this can show anti-ttg igA antibodies too. But usually without the anti-gliadin antibodies unless gliadin is an allergen for you. Thanks for posting the link to look up SNPs rs… numbers on another post. Was useful. Looking at your result, ”Celiac Associated HLD-DQ Typing: DQA1* Value: 05; DQA1*DQA11 Value: 05; DQB1* Value: 02; DQB1-DQB11 Value: 02; Celiac Gene Pairs Present Value: Yes; Celiac HLA Interpretation Value: These genes are permissive for celiac disease.  However, these genes can also be present in the normal population. Testing performed by SSOP.  So google failed me.  I think these results basically say I have genes, but everybody has these genes so this test was just to confirm that there is a vague possibility?  Maybe this test result explains why I do not have the horrible symptoms most individuals with celiac have?  I told the GI my assumption is that I am just gluten intolerant since I do not have the pain? So maybe this test explains why I have antibodies?” To me it reads.that you carry the high risk HLADQ2.5 haplotype.      
    • AnnaNZ
      Gluten Sensitivity

      By AnnaNZ · Posted

      Hello. Do you mind saying what symptoms led the doctors to test for bacteria in your blood?
    • trents
      Gluten Sensitivity

      By trents · Posted

      So you you ate wheat products every single day for 50 years without a problem but then in the 90's you discovered that wheat was your problem. That's confusing to me. It seems contradictory. Did you have a problem or not?
    • The Logician
      Gluten Sensitivity

      By The Logician · Posted

      I spent my first 50 years eating wheat products every single day with no ill affects. Being a 6’2” Italian you can imagine what my diet was like and believe me I had an appetite that wouldn’t quit. In the 90’s once I discovered the wheat was my problem I avoided it and no longer had IBS.  I seriously doubt I have celiac but I appreciate your input and will let you know if I have a problem with wheat again. I’ve been eating things I’ve longed for for decades and have never felt better.
    • trents
      Gluten Sensitivity

      By trents · Posted

      I would say two things and then I'm done. Many celiacs have been misdiagnosed for years with IBS. Testing for celiac disease requires regular and significant consumption of gluten for weeks/months in order to be valid.
×
×
  • Create New...