Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Egd / How Many Have Been Diag With Candida Besides Celiac Or Gluten Intolerance


skurtz

Recommended Posts

danikali Enthusiast

Rachel,

I'm soooooooooooooooo sorry that you've been going through all of this! I mean, we are all sick on here, but from what I've read, you have had the worst case senario that I can think of, or that I know of. And you're positive about everything! I need to be more like you!

So, from what I understand, you're doctor told you that yes, we all have infections, but for most of us, through staying gluten-free, time, patience and the good old elimination diet, we can heal ourselves, but for people like you, the situation is just too chaotic to handle on your own.

I know that it's really my fault for the way that I feel. I looked over my food journal and realized I've been adding WAY too many foods all at once. And of course, as soon as I started having a better day these past two weeks, I ADDED NUTS! Even though I thought they bothered me, I read somewhere that most roasted nuts are made with MSG. So I was like, RAW nuts! Yeay! And I went to town only to hate myself for it all over again. I went to the begining of my journal and yes, been there done that. I should have known. When I start feeling better for some reason I deney the fact that I can't have all of these other foods either, and eat them and then have to kick myself. Well, not anymore. It's such a vicious cycle....probably like being an alcoholic or drug addict. But I can't do it anymore, I want my life back.

So today starting at lunch time I decided, once and fod all, this is it. I need to start the elimination diet, stick to it and start living again. It's not life when you keep making yourself sick every 5 minutes! So I'm going to have pears, mangos and avocado for the weekend or until I start feeling better. I'm picking these foods because I know that the foods that you eat the least have the lowest chance of being an intolerant food for you. And I love these foods and I know they are all easy on the digestive tract. So I had pears today and it helped my stomach ease up and the back pains are subsiding. And I'm going to the diatician on Tuesday, so hopefully she will be a good coach for me and help me with what easy foods to try next.

Anyway, I'm very happy that you know you are in good hands. And thank you for all of the info. and encouragement and motivation. Look! You're helping people already and you're not even in the medical field (yet)!!! hahaa..........


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 51
  • Created
  • Last Reply
Rachel--24 Collaborator
I'm soooooooooooooooo sorry that you've been going through all of this! I mean, we are all sick on here, but from what I've read, you have had the worst case senario that I can think of, or that I know of. And you're positive about everything! I need to be more like you!

:lol::lol: Believe me...I have my "moments". Just ask the people who know me! I usually just go to bed on those days and try to start fresh the next day. Its not always easy. I think all the research I do takes my mind off things and sometimes I'll be like "oh yeah...I'm still sick." When I'm at the doctors I sometimes forget I'm the patient and I'm just eager to learn so I feel more like a student. :lol: I probably annoy the hell out of him.

I'm glad you're thinking positive. Once you really commit yourself to getting your health back I've discovered theres really no limit to what you can do to help yourself get better. I used to smoke, work too hard, skip meals, stay up late, eat all fast food. I never learned how to cook and didnt eat anything that didnt come in a box or package. I dont do any of those things now and I cook all of my meals. Maybe I just went into "survival" mode. I dunno but all I can say is if *I* can do these things...anyone can do it.

Also..I have goals for myself so if I get frusterated I think about what I could lose if I just give up....that keeps me motivated. :) I dont think I'm worst case scenario cuz I see people on here that suffer from diseases they should never have gotten if they'd been properly diagnosed. So far I havent developed any diseases or serious conditions and I'm still young so I should be able to heal and get on with my life. If I had continued to be neglected by the doctors in my HMO there is no doubt in my mind I'd end up with more serious problems.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748

    giuseppe gamerra
    Newest Member
    giuseppe gamerra
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.