Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gotta Motivate My Family...


elye

Recommended Posts

elye Community Regular

Hey, Guys,

This thread is somewhat related to jodikris's last one...I've been "officially" celiac for about six months, and finally getting on to the challenging diet. I am getting my kids tested this month. Here's where I need your help: I've been after my brother and sister to be tested, but they keep brushing me off, not realizing how serious this thing is...and believe me, I've harped on and on about the potential dangers of this kind of long-term intestinal damage. The problem is, they haven't seen or experienced the horrid complications, and they aren't doing any research on the subject like I do. I'm going to pick up Dangerous Grains and insist they read it. I thought I'd also ask you all to offer up some hard evidence, through personal experiences, of what this untreated disease can do. I know people have relatives who have battled with osteoperosis and cancers, and if I can get some poignant cautionary tales, I'm printing them off post haste.

Thanks a lot!

Emily


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



zip2play Apprentice

It is my experience, as with anything that pertains to food, decisions are very personal. If I were you, I would offer up information to your siblings and then let it be. Your stongly suggesting they read that book may very well backfire. They wouldn't be the only Celiac people to go undiagnosed. It is a personal decision and if people fear the resutls, they will run and RUN FAST! Just keep offering up the information if they are interested, beyond that, let it be!

Good luck! Let us know what you find out about your children!

Monica

Guest nini

Dangerous grains is a good place to start, but it is really hard to convince family. I've been after my sister and mom to get tested for over 2 years now, my sisters kids are even showing symptoms, as well as my mom and my sister, and they won't listen to me.

I think you have to focus on YOU, get YOU healthy first, then work on motivating the rest of your family.

It may be easier for you after your kids are tested (even if their results are negative) to take your entire family gluten free at least at home you won't have to worry about cross contamination issues if you make your entire kitchen gluten free. That is if you can convince your family to go along with it.

My daughter and I are both celiac and on the diet. We both react pretty immediately if we are exposed to gluten, but not always in the same way. My husband is not, though he tried it for awhile. Despite the fact that he was A LOT healthier while he was gluten free, he decided the diet was TOO HARD and he's not committed to sticking with it. He even read Dangerous Grains and understands that you don't have to be celiac for gluten to affect you. Since he has gone off the gluten-free diet, he has gained too much weight, has terrible acid reflux that wakes him up in the middle of the night, snores like a bear (this actually went away when he was gluten-free) and his arthritis pain has flared up so bad that he doesn't even want to get out of bed. But do you think he will consider going back on the gluten-free diet? NOPE. I can't convince him. I wish I knew how.

Random Guy Apprentice

my mother has celiac

i have 3 siblings

one is going to be tested soon when he was going in for a checkup anyway

one hasn't given it much thought - too budy to deal with anything that's not an immediate crisis or really fun

one isn't going to be tested ever

what can i do?

the only thing I can do is let them know that having celiac and knowing it, and staying gluten free isn't so bad. if i make a huge issue out of what a pain in the neck it is, that won't motivate them. but if i emphasize the many things i eat that i love so much, they may see that it's no big deal

(this may be difficult to do being that i'm going skiing with my sister for a few days, and brining all my food to be safe)

but i don't think i can make anyone do anything they don't want to do. i'm just not that overtly persuasive.

Nancym Enthusiast

There's that old saying, "You can lead a horse to water but you can't make it drink". This is particularly true when it comes to trying to convince your family they have a hereditary health issue that affects their diet.

My best advice is, give it up. Don't harp on it or them it'll just create friction and probably won't change their minds.

penguin Community Regular

If they live close to you, I would say to invite them over for dinner. A LOT. Cook them beautiful gluten-free meals and rave about how great you're doing now that you're gluten-free. Create a utopia! :D

Otherwise, the other posters are right, not a whole lot you can do without drugging them and dragging them to the dr :blink:

tarnalberry Community Regular

I agree - you can't make them get tested, or try the diet. You can invite them over and only have gluten-free items at your own house, of course, and can let them know that you're handling it well and it's been very helpful - and that may help them understand the true nature of the diet better, but other than that, there's not a lot you can do.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



num1habsfan Rising Star

I wish I could give you advice. I know its like no use trying to convince my family to get tested or and after 3 years, they still dont even fully support the gluten-free life i try to live.

Hope you can convince them somehow!

~lisa~

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    2. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    5. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,328
    • Most Online (within 30 mins)
      7,748

    VerafromNJ
    Newest Member
    VerafromNJ
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.