Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Saying Goodbye to Udi's & Glutino Products


anonymousplease

Recommended Posts

anonymousplease Apprentice

I am pretty fed up with certified gluten free foods made it dedicated gluten free facilities that also use oats.

If you think you've had a reaction to Udi's bread or Glutino crackers you're not crazy. It's happened to me and it took me a long time to figure out the source via process of elimination.

I react to oats the same way that I do to gluten. I'm sensitive to cross contamination and fall into the category of people that can say "even 1 crumb is enough to make me sick." I know not everyone is this way and that we are all different but because of my sensitivities eating Udi's or Glutino products has become a risk. 

Glutino & Udi's products are both made in the same facility as oats with the possibility of cross contamination. I'm sure there are others but I call out these two brands specifically because they are pretty huge in the gluten free community, available everywhere in the United States and make many many products.You might eat their products daily, like I did for a while, and sometimes have a reaction and other times not. But that's the thing about cross contamination...such a small amount can end up in one loaf of bread and not in another, at the same facility, made minutes apart. Cross contamination is accidental. Certified gluten free oats test free from gluten but cause a similar reaction in ultra sensitive people. 

It's a really difficult thing to cut out two brands and all of their products that I have come to rely on over the last 10 years but it must be done if I want to continue to heal.

I encourage others to pay close attention while consuming anything made by these brands if you're hyper sensitive like myself.

I hope that the use of oats in gluten free products dies down a little in the near future, or at least that a label is placed on products declaring that they are made in the same facility as oats.

  • 1 year later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Glutenfreegurrrl Newbie
On 5/19/2020 at 10:30 PM, anonymousplease said:

I am pretty fed up with certified gluten free foods made it dedicated gluten free facilities that also use oats.

If you think you've had a reaction to Udi's bread or Glutino crackers you're not crazy. It's happened to me and it took me a long time to figure out the source via process of elimination.

I react to oats the same way that I do to gluten. I'm sensitive to cross contamination and fall into the category of people that can say "even 1 crumb is enough to make me sick." I know not everyone is this way and that we are all different but because of my sensitivities eating Udi's or Glutino products has become a risk. 

Glutino & Udi's products are both made in the same facility as oats with the possibility of cross contamination. I'm sure there are others but I call out these two brands specifically because they are pretty huge in the gluten free community, available everywhere in the United States and make many many products.You might eat their products daily, like I did for a while, and sometimes have a reaction and other times not. But that's the thing about cross contamination...such a small amount can end up in one loaf of bread and not in another, at the same facility, made minutes apart. Cross contamination is accidental. Certified gluten free oats test free from gluten but cause a similar reaction in ultra sensitive people. 

It's a really difficult thing to cut out two brands and all of their products that I have come to rely on over the last 10 years but it must be done if I want to continue to heal.

I encourage others to pay close attention while consuming anything made by these brands if you're hyper sensitive like myself.

I hope that the use of oats in gluten free products dies down a little in the near future, or at least that a label is placed on products declaring that they are made in the same facility as oats.

I have also had reaction to Udi's products and couldn't figure out why, and as early as this morning. The only new food I introduced was Udi's hot dog buns and within 30 minutes of eating one, I got chapped lips and felt so drowsy I had to lie down, and then felt lethargic for several hours. I get this reaction with products that are cross-contaminated. Then I had exactly the same thing to eat later with another brand of gluten-free  bread and felt fine. I will be avoiding Udi's in the future. I have not correlated a similar reaction to Glutino products but I will be paying closer attention now. I have been super careful with my diet but still feeling like I have not eliminated gluten completely. I am a very sensitive celiac, I do well on products below 10ppm only, below 20 ppm is just to much gluten for me.

Scott Adams Grand Master

Welcome to the forum @Glutenfreegurrrl! It is possible they could have a manufacturing issue due to a contaminated ingredient, but this is also unlikely as I believe they are made in a dedicated gluten-free facility, and do regular batch testing. Do you know if you have any issues with xanthan gum or other gums which are often used in gluten-free products? I ask this because some celiacs do have similar reactions to these, but they are gluten-free:

 

MADMOM Community Regular

try canyon bake house products and mission gluten free wraps both taste great and canyon house makes bagels and all different types of bread that are great and i’ve never had a reaction to either/ Target sells both 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

    2. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

    3. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    4. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,255
    • Most Online (within 30 mins)
      7,748

    BeccaLynn
    Newest Member
    BeccaLynn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.