Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Undiagnosed Need Advice

Moogle39
 Share

Recommended Posts

Moogle39 Apprentice
Moogle39
Posted

Hi, I hope it's ok to post about this, I'm a newbie on the forum. I've had IBS for about 15 years, and have had tests for celiac (both blood and biopsy) turn out negative. However, I have a lot of the symptoms including diarrhea, anxiety/mood issues and I don't gain weight well. My Dr. said to try the diet anyways to see if it helps. His P.A. said it could take 2 months to notice it working. Does anyone on here have a similar experience or could give me any advice on doing the diet? It would be amazing if doing this could help me get healthy, and feel better mentally too. Thanks for reading :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Scott Adams Grand Master
Scott Adams
Posted

Do you recall when you were tested whether or not you were on a gluten-free diet beforehand? If so that could be why the tests were negative. You do need to eat gluten daily for several weeks before taking tests for celiac disease.

Also, were the tests zero, or were there antibodies that were measured? I ask because it could be the difference between gluten sensitivity and celiac disease depending on the results. It sounds to me like your doctor thinks you might be gluten sensitive rather than have celiac disease.

More on blood tests:

 

 

Moogle39 Apprentice
Moogle39
Posted
  • Author
1 hour ago, Scott Adams said:

Do you recall when you were tested whether or not you were on a gluten-free diet beforehand? If so that could be why the tests were negative. You do need to eat gluten daily for several weeks before taking tests for celiac disease.

Also, were the tests zero, or were there antibodies that were measured? I ask because it could be the difference between gluten sensitivity and celiac disease depending on the results. It sounds to me like your doctor thinks you might be gluten sensitive rather than have celiac disease.

More on blood tests:

 

 

Thanks for the response. I was probably eating a normal diet when I had the tests. I did have one marker raised on a blood test, so not sure if that showed something or not. Yeah he thinks it's possible it could be an intolerance issue. I tried the diet before, but i fell off the wagon after a few weeks as I may have had symptoms and gave up. But then they said it takes time, maybe 2 months and I've seen posts here from people who have been diagnosed possibly longer. 

So I just started on the diet again, and hope giving it time will show something. My anxiety and mood are actually my main goals. Do you think gluten/wheat intolerance is a real thing? I read some of wheat belly and that was concerning also about the effects of wheat on the body and brain.

Scott Adams Grand Master
Scott Adams
Posted

Yes, gluten intolerance/sensitivity is definitely a real thing, and ~10% of people have it (about 1% have celiac disease).  Here are some scientific studies to back it up:

https://www.celiac.com/search/?&q=NCWS&type=cms_records2&search_and_or=and 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,402
    • Most Online (within 30 mins)
      7,748
    Fatima Terrazas Arellanes
    Newest Member
    Fatima Terrazas Arellanes
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mrs Wolfe
      Cartilage and rib pain.

      By Mrs Wolfe · Posted

      I appreciate the information and links.  
    • Mrs Wolfe
      Cartilage and rib pain.

      By Mrs Wolfe · Posted

      Thank you for the information.   
    • Diana Swales
      Recently qualified Nutritionist looking for support

      By Diana Swales · Posted

      I am also figuring this out.  So how about emailing me at swalesdiana@gmail.com and lets figure this out together
    • Wheatwacked
      I hate to cook!

      By Wheatwacked · Posted

      In 70-year-olds, DHEA (Dehydroepiandrosterone) levels are significantly lower than in young adults, typically around 20% of youthful levels, according to the National Institutes of Health (NIH) | (.gov). This decline is a natural part of aging, with DHEA production decreasing from its peak in the third decade of life. While some studies suggest potential benefits of DHEA replacement in older adults, particularly in women, results are not consistently positive across all studies. 
    • Wheatwacked
      I hate to cook!

      By Wheatwacked · Posted

      Welcome @bold-95.   That's a tough situation.   Understanding DHEA Deficiency in Menopausal Women A major cause of hypothyroid is iodine deficiency.  In the 60's bread had 90 mcg, milk 100 mcg per cup and we used iodized table salt.  A sandwich and glass of milk supplied 300 mcg,  Now in the US bread does not use iodine as dough condition, milk has a bad name and table salt is avoided.  Net reduction from 1970 to 1984 of 50% of iodine intake.   Urinary iodine levels (mg/dL) in the United States, 6-74 years of age NHANES I, 1971-74 Median 32.00 2NHANES III, 1988-91 Median 14.5 NHANES 2000 Median 16.1 There has been a trend for increased prescribing of levothyroxine (LT4) in the United States.  LT4 was the tenth and seventh most commonly prescribed drug based on the number of prescriptions in 2005 and 2006, respectively. From 2008 to 2011 the number of LT4 prescriptions rose from 99 million to 105 million, with LT4 being the second most prescribed medication.1 From 2012 to 2016 the number of annual LT4 prescriptions increased steadily from 112 million to 123 million, with LT4 being the most prescribed medication.2,3 During 2017 and 2018 LT4 was the third most prescribed medication, with 98 million Levothyroxine prescriptions trends may indicate a downtrend in prescribing. DHEA and hypothyroidism are linked, with some evidence suggesting that low DHEA levels may be associated with hypothyroidism.
×
×
  • Create New...