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Trouble finding words


Ldncrad

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Ldncrad Rookie

Has anyone had trouble finding words as a symptom of celiac? On a few occasions, I have found myself able to describe the word I’m looking for, but unable to come up with the word in the moment & it freaks me out! It will usually come to me later, but under pressure, I can’t retrieve it. I have tons of other celiac symptoms along with hashimotos. My doctor didn’t want to retest for celiac, as I had a negative test about 10 years ago.


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cyclinglady Grand Master

Oh my!  Consider getting a new doctor.  Celiac disease can develop at anytime!  As someone with Hashimoto’s (I was diagnosed in 1997), you should be screened periodically, especially when symptoms develop.  Also, you need to see which celiac tests were given to you.  In my case, I test oddly.  If my GI has not ordered the entire celiac panel, my diagnosis would have been missed.  Not to mention that some celiacs (about 10%) are seronegative (that could have been you!).

Your current issue? Possibly Brain fog.    It affects many with autoimmune disorders.   

Do not get stuck in the Hashimoto’s diagnostic box.  Once you have one autoimmune you can develop another (I have three!). Seriously, I think I had celiac disease long before my Hashimoto’s diagnosis.  Once diagnosed with celiac disease, my enlarged thyroid went back to normal size and my nodules disappeared.  Unfortunately, the damage was done and I must take thyroid hormone replacement for the rest of my life.  

If you need to get retested, please make sure you have been consuming gluten for at least 6 to 12 weeks.  

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    • Zuma888
      I didn't ask a doctor about this actually. I did ask several doctors a long time ago and they told me gluten has nothing to do with hashimoto's. One of them told me to do a gluten challenge to test for celiac, but at the time I was in graduate school so couldn't afford to be even more ill than I was. If you have the symptoms, I really don't advise you to do a gluten challenge. It messed me up mentally and physically for months. At the same time, I benefitted from doing the challenge in the sense that it convinced me that all my symptoms were truly from gluten - even stuff like insomnia! So now I am terrified to eat gluten, whereas before I would have a little once in a while and not notice anything dramatic. 
    • Winnie-Ther-Pooh
      I am in a similar situation where I can't feasibly do a gluten challenge but have all the symptoms and I have 2 celiac genes. I'm curious if your doctor advised you to eat as if you had a diagnosis or if they were more dismissive about it. 
    • Zuma888
      Negative, although I had most of the symptoms of celiac disease. I now eat as if I had a diagnosis.
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    • Scott Adams
      While it's always important to approach internal use of essential oils with caution and ideally under the guidance of a qualified professional, your experience highlights the potential of complementary approaches when traditional medicine falls short. Many in the community are also interested in the intersection of natural wellness and gluten-free living, particularly for managing systemic inflammation and its various symptoms, so sharing your story is valuable. Your observation that it may also be helping with bloating is fascinating, as that could point to an overall reduction in inflammation. Thank you for sharing what is working for you!
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