Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Stiffness

charlotte

Recommended Posts

charlotte Newbie
charlotte
Posted

Does anybody know of a condition realted to celiac desease when the individual has stiffness or difficulty moving the knees or legs in the beginning but can move along easily after the initial motion - no pain involved.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tiredofdoctors Enthusiast
tiredofdoctors
Posted

I don't have celiac, just GI, so I'm don't have any knowledge of it personally, nor have I read anything that mentions that. My question would be, how long does the stiffness in your knee last before it goes away? Do you have it in any other joints in your body? Do you have any other autoimmune diseases? That's about my two cents' worth :blink: Sorry I couldn't be more help :ph34r: . . . . Lynne

i canary Rookie
i canary
Posted

Charlotte,

I thought I knew until you said no pain. I have fibromyalgia. I'm stiff as a board at first, but once I get walking I usually can walk it out, but there is pain involved.

Canary

Guest Robbin
Guest Robbin
Posted

I have seen on other posts that swelling and puffiness are a problem for alot of people when glutened. I have FM too, so the stiffness is painful, but maybe if someone doesn't have any other condition with the celiac they would just get the stiffness and swelling? Maybe water retention? How is your blood pressure? (Just throwing out ideas) Take care,

Robbin

DonnaD Apprentice
DonnaD
Posted

I have FM too its quite a common additional diagnosis on this forum, but my pain is upper body,back, neck,shoulders. I'm Gluten intolerant. My sister has the same.

My knees are stiff first thing in the morning and make a crunching noise going up stairs (not down). They feel 'tired ' and my leg upper leg muscels feel weak, rather than pain unless I really overdo it (lots of stairs etc) I'v just had them x-rayed, the technician said that the x-rays ldidn't look like there was any arthritis (although my sister has and is waiting for some surgery) but I have to wait for my Doctor to get the full report. Being gluten-free has helped most of my other symptoms, especially the chronic pain but my knees are still getting slowly worse (and louder!)

My 11to has celiac disease and her knees hurt, creak and swell up but only if she has raw peppers, tomatoes and potatoe chips. (Nighshade veg)

I don't know if this is any help to you Charlotte.

jnifred Explorer
jnifred
Posted

the no pain you mentioned kind of gets me, but sometimes when my Rhuematoid Arthirits flares up it doesn't necessarily hurt, just a hard to move the joint affected. And it always gets better as I use it and as the day goes on. And I have begun to notice that when I get glutened my RA flares up. So it could be along those lines.....

slpinsd Contributor
slpinsd
Posted

hmmmmmmm, so I guess I'm not the only one. I have had problems with my knees feeling really tight in the morning, as with my elbows, but it gets better as I start walking. Now that i think of it, it has mostly gone away since going gluten-free. I guess this is a symptom of getting glutened?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Linda352 Rookie
Linda352
Posted
I have FM too its quite a common additional diagnosis on this forum, but my pain is upper body,back, neck,shoulders. I'm Gluten intolerant. My sister has the same.

Donna, I am so happy to have found your thread as I have the same symptoms..upper back, neck, shoulders. I was diagnosed with disc degeneration in my cervical spine 10 yrs ago and nothing has really helped. After being told that I would have to learn to live with this I lost my faith in the medical profession and started doing my own research. It wasn't until this past summer when I put myself on the South Beach Diet that I discovered how suddenly I was pain free while on Phase 1 of the diet which is very strict. :) This is when I began to learn about the gluten factor. It bugs the heck out of me that doctors don't seem to have a clue about this possibility being a factor in many illnesses or symptoms :angry: . I am not planning on being tested to have this confirmed as I can't see shelling out the money if it might tell me that I'm not when I know I feel much better doing this :rolleyes: I am glad to have found this site this week and to also find someone else who has similar symptoms as myself :) . Just wondering how you got to the point of being diagnosed with having this problem with gluten and how long have you been gluten-free? Do you also find this works good for you? By the way, I am 54. I've just ordered online a couple of gluten-free cookbooks so I can still make some hopefully, decent meals for my DH :lol:

Sincerely, Linda/NJ

jerseyangel Proficient
jerseyangel
Posted

Hi Linda--welcome :) Where in NJ are you from?

I also had a lot of neck and shoulder pain. It was much worse in the morning--easing up only after a shower. It is much improved after being gluten-free. Before, no pain relievers would help and accupuncture also failed to ease it. I also have the same thing in my hips. The knee pain is different--it will come on after exertion, and make it painful to climb stairs, etc. Gluten seems to have no effect on it.

Linda352 Rookie
Linda352
Posted
Hi Linda--welcome :) Where in NJ are you from?

I also had a lot of neck and shoulder pain. It was much worse in the morning--easing up only after a shower. It is much improved after being gluten-free. Before, no pain relievers would help and accupuncture also failed to ease it. I also have the same thing in my hips. The knee pain is different--it will come on after exertion, and make it painful to climb stairs, etc. Gluten seems to have no effect on it.

:D Hi Patti! I live in the southern part of Monmouth County. Where are you located? I used to wake up very stiff in the neck/shoulder area. I also used to sleep with a cervical neck thing as I just couldn't get comfortable without it. The only dr. that has given me satifaction over the years is my chiropractor who I've gone to faithfully for about 5 yrs now. There were times when I didn't think she was doing much for me but I now know that she is as I am not as bad as I used to be. Now I find that I only seem to hurt after I've eaten something that I probably shouldn't have. I'm still learning about all the foods that I shouldn't eat and a lot of times it seems to be trial and error. This is not an easy venture ;) At times I have considered accupuncture but maybe I won't if it didn't help you any. Sorry to hear that the gluten issue doesn't help you with your knee problem. I try to keep active through walking but it's been so cold here lately that it's tough getting out there to do it :P I do Pilates a couple of times during the week to keep myself from getting too stiff all over. I love to garden when the weather is right but I don't like that I haven't been able to do all that I used to do in a day. I'm hoping that if I can get into the groove of this gluten free diet maybe I'll be better for the next gardening season :) Patti, how long have you been gluten free and how did you learn that you had this problem?

Looking forward to corresponding with you and others here. Thanks for the Welcome :) !

Linda/NJ

jnifred Explorer
jnifred
Posted

that is so strange......the back, neck, shoulders thing. I was originally diagnosed with Ankylosing Spondylitis by my first Rhuematologist b/c my back/neck/shoulders only hurt when I would lie down to rest or if I sat too long etc. I also had swelling in a few joints so he thought it could also be RA, which is what I tell people, b/c if I say AS they look at me cross eyed and say HUH?, so after playing with a ton of different meds, we finally went to Enbrel which helped a ton, I still had the neck and shoulder thing though, and so when we moved my new RA doc gave me muscle relaxers to help me sleep at night. Did wonders for me.

So now, I go gluten free about 3-4 months ago. I have noticed that I don't need the muscle relaxers as often, my RA is better, flares are within a week of eating gluten...I am wondering if I have been gluten intolerant this whole time (10 yrs) and just didn't know what to look for. I have known for years that bread made me feel "heavy"...could never eat much, even though I love bread.

I never linked the shoulder/neck/back pain to this until now, and it has been better the last few months. So glad you all posted this....

DonnaD Apprentice
DonnaD
Posted
:D ? I used to wake up very stiff in the neck/shoulder area. I also used to sleep with a cervical neck thing as I just couldn't get comfortable without it. The only dr. that has given me satifaction over the years is my chiropractor who I've gone to faithfully for about 5 yrs now. Now I find that I only seem to hurt after I've eaten something that I probably shouldn't have. I'm still learning about all the foods that I shouldn't eat and a lot of times it seems to be trial and error. This is not an easy venture ;) At times I have considered accupuncture but maybe I won't if it didn't help you any. Sorry to hear that the gluten issue doesn't help you with your knee problem. I try to keep active through walking but it's been so cold here lately that it's tough getting out there to do it :P I do Pilates a couple of times during the week to keep myself from getting too stiff all over. I love to garden when the weather is right but I don't like that I haven't been able to do all that I used to do in a day. I'm hoping that if I can get into the groove of this gluten free diet maybe I'll be better for the next gardening season :) Patti, how long have you been gluten free and how did you learn that you had this problem?

Looking forward to corresponding with you and others here. Thanks for the Welcome :) !

Linda/NJ

Hi Linda, welcome you could not be in a better place!

We could be twins! I had to retire (at 40) from my Accounts Manager position due to my health. I'v also had accupuncture.I have been going to a chiroprator for 15 years he is the only one that ever made me feel better. I have a home gym which helps a bit. I also hate the cold, we are moving to a warmer country this year so my quality of life can improve. I am seeing a new doc tomorrow in London I hope he will look at me as a whole. I have joined the dots so much on this forum in the last few weeks. I joined when my 11yo daughter was Dx celiac by biopsy in November 2005. I knew I had problems with wheat and dairy (York tests) I was stunned to find the link between gluten/neurological problems/digestive issues/chronic fatigue/fibromyalgia/IBS.

I have a beautiful raised bed veg garden, it breakes my heart that i am not up to doing it all myself and that for my health I need to in a warm climate. We are selling our dream Tudor 1575 Cottage, 600yo oak beams, inglenooks fireplaces, that we have spent 2 years renovating for a pool and some sun! I am gutted. This forum is possibly the best thing you will ever discover in your quest for good health.

Take care,

Donna

jerseyangel Proficient
jerseyangel
Posted

Linda--I live in northwest Burlington County. Our weather sure took a cold turn-huh? I love Pilates--I have a Premier XP machine here at home. It really does help with stiffness, and is such a gentle workout. I like to garden, too--we don't have a big yard but I have a raised perinneal bed in the front that I'm proud of. I have to do any outside work in the early AM as I am pretty sensitive to the sun and heat. I hear ya about the lack of energy, but I seem to be slowly getting some back. The only thing is that I'm tired by 7 or so every night! I had been sick for about 20 years but misdiagnosed many times. I had a surgery in 2004, and right after, my GI symptoms got much worse, along with tingling, numbness, brain fog, worstening anemia, severe fatigue and a 15 lb. weight loss. I did some research on my own after seeing a Kineisiologist who told me I should not eat wheat, oats, barley, rye, dairy, corn or soy. I took what I suspected to a gastro. That's when I was finally Dx.

I'm glad you found us here--just let us know how we can help :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,563
    • Most Online (within 30 mins)
      7,748
    Bob Madden
    Newest Member
    Bob Madden
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      gluten-free Oatmeal

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Well said, @Mari!
    • knitty kitty
      Shingles - Could It Be Related to Gluten/ Celiac

      By knitty kitty · Posted

      Hi, @Ginger38, I've had shingles in the past.  I understand how miserable you're feeling.   Not only do i have the chickenpox virus lurking about, I also have the cold sore virus that occasionally flares with a huge cold sore on my lip when stressed or exposed to gluten.  The virus lives dormant in the nerves on the left side of my face.  It causes Bell's Palsy (resulting in drooling).  The cold sore virus is also in my eye.  My eye swells up and my vision is diminished permanently whenever I have a flare, so it's of the utmost importance to keep flares away and treat them immediately if they do happen so I don't lose any more vision.   I take the amino acid supplement L-Lysine.  Lysine messes with the replication of viruses, which helps the body fight them off.   I haven't had an outbreak for several years until this year when exceptionally stressed and contaminated, it flared up again. Lysine has been shown to be beneficial in suppression of viruses like the cold sore virus (a herpetic virus), the chickenpox virus (also a herpetic virus), as well as the HIV virus, and even the Covid virus.   I also take additional Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) because Thiamine has antiviral properties as well.   For pain, a combination of Thiamine (like TTFD or Benfotiamine or Thiamine Hydrochloride), with B12 Cobalamine, and Pyridoxine B6 have been shown to have analgesic properties which relieve pain and neuropathy.    The combination of Thiamine B1, Pyridoxine B6 and Cobalamine B12 really does work to relieve pain.  I take it for back pain from crushed vertebrae in my back.  This combination also works on other pain and neuropathy.   I usually buy a supplement that combines all three and also Riboflavin B2 called EXPLUS online.  However, it's made in Japan and the price with the tariffs added makes it really expensive now.  But the combination of Thiamine B1, Pyridoxine B6 and B12 Cobalamine (and Riboflavin B2) still work even if taken separately.   I can't take Tylenol or ibuprofen because of stomach upsets.  But I can take the vitamin combination without side effects.  However, you can take the three vitamins at the same time as other pain relievers for added benefit.  The vitamins help other pain relievers work better. I hope you will try it.  Hopeful you'll feel better quickly. Interesting Reading: Thiamine, cobalamin, locally injected alone or combination for herpetic itching: a single-center randomized controlled trial https://pubmed.ncbi.nlm.nih.gov/23887347/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ Analgesic and analgesia-potentiating action of B vitamins https://pubmed.ncbi.nlm.nih.gov/12799982/ A Narrative Review of Alternative Symptomatic Treatments for Herpes Simplex Virus https://pmc.ncbi.nlm.nih.gov/articles/PMC10301284/
    • Mari
      My only proof

      By Mari · Posted

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.