Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Stiffness

charlotte

Recommended Posts

charlotte Newbie
charlotte
Posted

Does anybody know of a condition realted to celiac desease when the individual has stiffness or difficulty moving the knees or legs in the beginning but can move along easily after the initial motion - no pain involved.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tiredofdoctors Enthusiast
tiredofdoctors
Posted

I don't have celiac, just GI, so I'm don't have any knowledge of it personally, nor have I read anything that mentions that. My question would be, how long does the stiffness in your knee last before it goes away? Do you have it in any other joints in your body? Do you have any other autoimmune diseases? That's about my two cents' worth :blink: Sorry I couldn't be more help :ph34r: . . . . Lynne

i canary Rookie
i canary
Posted

Charlotte,

I thought I knew until you said no pain. I have fibromyalgia. I'm stiff as a board at first, but once I get walking I usually can walk it out, but there is pain involved.

Canary

Guest Robbin
Guest Robbin
Posted

I have seen on other posts that swelling and puffiness are a problem for alot of people when glutened. I have FM too, so the stiffness is painful, but maybe if someone doesn't have any other condition with the celiac they would just get the stiffness and swelling? Maybe water retention? How is your blood pressure? (Just throwing out ideas) Take care,

Robbin

DonnaD Apprentice
DonnaD
Posted

I have FM too its quite a common additional diagnosis on this forum, but my pain is upper body,back, neck,shoulders. I'm Gluten intolerant. My sister has the same.

My knees are stiff first thing in the morning and make a crunching noise going up stairs (not down). They feel 'tired ' and my leg upper leg muscels feel weak, rather than pain unless I really overdo it (lots of stairs etc) I'v just had them x-rayed, the technician said that the x-rays ldidn't look like there was any arthritis (although my sister has and is waiting for some surgery) but I have to wait for my Doctor to get the full report. Being gluten-free has helped most of my other symptoms, especially the chronic pain but my knees are still getting slowly worse (and louder!)

My 11to has celiac disease and her knees hurt, creak and swell up but only if she has raw peppers, tomatoes and potatoe chips. (Nighshade veg)

I don't know if this is any help to you Charlotte.

jnifred Explorer
jnifred
Posted

the no pain you mentioned kind of gets me, but sometimes when my Rhuematoid Arthirits flares up it doesn't necessarily hurt, just a hard to move the joint affected. And it always gets better as I use it and as the day goes on. And I have begun to notice that when I get glutened my RA flares up. So it could be along those lines.....

slpinsd Contributor
slpinsd
Posted

hmmmmmmm, so I guess I'm not the only one. I have had problems with my knees feeling really tight in the morning, as with my elbows, but it gets better as I start walking. Now that i think of it, it has mostly gone away since going gluten-free. I guess this is a symptom of getting glutened?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Linda352 Rookie
Linda352
Posted
I have FM too its quite a common additional diagnosis on this forum, but my pain is upper body,back, neck,shoulders. I'm Gluten intolerant. My sister has the same.

Donna, I am so happy to have found your thread as I have the same symptoms..upper back, neck, shoulders. I was diagnosed with disc degeneration in my cervical spine 10 yrs ago and nothing has really helped. After being told that I would have to learn to live with this I lost my faith in the medical profession and started doing my own research. It wasn't until this past summer when I put myself on the South Beach Diet that I discovered how suddenly I was pain free while on Phase 1 of the diet which is very strict. :) This is when I began to learn about the gluten factor. It bugs the heck out of me that doctors don't seem to have a clue about this possibility being a factor in many illnesses or symptoms :angry: . I am not planning on being tested to have this confirmed as I can't see shelling out the money if it might tell me that I'm not when I know I feel much better doing this :rolleyes: I am glad to have found this site this week and to also find someone else who has similar symptoms as myself :) . Just wondering how you got to the point of being diagnosed with having this problem with gluten and how long have you been gluten-free? Do you also find this works good for you? By the way, I am 54. I've just ordered online a couple of gluten-free cookbooks so I can still make some hopefully, decent meals for my DH :lol:

Sincerely, Linda/NJ

jerseyangel Proficient
jerseyangel
Posted

Hi Linda--welcome :) Where in NJ are you from?

I also had a lot of neck and shoulder pain. It was much worse in the morning--easing up only after a shower. It is much improved after being gluten-free. Before, no pain relievers would help and accupuncture also failed to ease it. I also have the same thing in my hips. The knee pain is different--it will come on after exertion, and make it painful to climb stairs, etc. Gluten seems to have no effect on it.

Linda352 Rookie
Linda352
Posted
Hi Linda--welcome :) Where in NJ are you from?

I also had a lot of neck and shoulder pain. It was much worse in the morning--easing up only after a shower. It is much improved after being gluten-free. Before, no pain relievers would help and accupuncture also failed to ease it. I also have the same thing in my hips. The knee pain is different--it will come on after exertion, and make it painful to climb stairs, etc. Gluten seems to have no effect on it.

:D Hi Patti! I live in the southern part of Monmouth County. Where are you located? I used to wake up very stiff in the neck/shoulder area. I also used to sleep with a cervical neck thing as I just couldn't get comfortable without it. The only dr. that has given me satifaction over the years is my chiropractor who I've gone to faithfully for about 5 yrs now. There were times when I didn't think she was doing much for me but I now know that she is as I am not as bad as I used to be. Now I find that I only seem to hurt after I've eaten something that I probably shouldn't have. I'm still learning about all the foods that I shouldn't eat and a lot of times it seems to be trial and error. This is not an easy venture ;) At times I have considered accupuncture but maybe I won't if it didn't help you any. Sorry to hear that the gluten issue doesn't help you with your knee problem. I try to keep active through walking but it's been so cold here lately that it's tough getting out there to do it :P I do Pilates a couple of times during the week to keep myself from getting too stiff all over. I love to garden when the weather is right but I don't like that I haven't been able to do all that I used to do in a day. I'm hoping that if I can get into the groove of this gluten free diet maybe I'll be better for the next gardening season :) Patti, how long have you been gluten free and how did you learn that you had this problem?

Looking forward to corresponding with you and others here. Thanks for the Welcome :) !

Linda/NJ

jnifred Explorer
jnifred
Posted

that is so strange......the back, neck, shoulders thing. I was originally diagnosed with Ankylosing Spondylitis by my first Rhuematologist b/c my back/neck/shoulders only hurt when I would lie down to rest or if I sat too long etc. I also had swelling in a few joints so he thought it could also be RA, which is what I tell people, b/c if I say AS they look at me cross eyed and say HUH?, so after playing with a ton of different meds, we finally went to Enbrel which helped a ton, I still had the neck and shoulder thing though, and so when we moved my new RA doc gave me muscle relaxers to help me sleep at night. Did wonders for me.

So now, I go gluten free about 3-4 months ago. I have noticed that I don't need the muscle relaxers as often, my RA is better, flares are within a week of eating gluten...I am wondering if I have been gluten intolerant this whole time (10 yrs) and just didn't know what to look for. I have known for years that bread made me feel "heavy"...could never eat much, even though I love bread.

I never linked the shoulder/neck/back pain to this until now, and it has been better the last few months. So glad you all posted this....

DonnaD Apprentice
DonnaD
Posted
:D ? I used to wake up very stiff in the neck/shoulder area. I also used to sleep with a cervical neck thing as I just couldn't get comfortable without it. The only dr. that has given me satifaction over the years is my chiropractor who I've gone to faithfully for about 5 yrs now. Now I find that I only seem to hurt after I've eaten something that I probably shouldn't have. I'm still learning about all the foods that I shouldn't eat and a lot of times it seems to be trial and error. This is not an easy venture ;) At times I have considered accupuncture but maybe I won't if it didn't help you any. Sorry to hear that the gluten issue doesn't help you with your knee problem. I try to keep active through walking but it's been so cold here lately that it's tough getting out there to do it :P I do Pilates a couple of times during the week to keep myself from getting too stiff all over. I love to garden when the weather is right but I don't like that I haven't been able to do all that I used to do in a day. I'm hoping that if I can get into the groove of this gluten free diet maybe I'll be better for the next gardening season :) Patti, how long have you been gluten free and how did you learn that you had this problem?

Looking forward to corresponding with you and others here. Thanks for the Welcome :) !

Linda/NJ

Hi Linda, welcome you could not be in a better place!

We could be twins! I had to retire (at 40) from my Accounts Manager position due to my health. I'v also had accupuncture.I have been going to a chiroprator for 15 years he is the only one that ever made me feel better. I have a home gym which helps a bit. I also hate the cold, we are moving to a warmer country this year so my quality of life can improve. I am seeing a new doc tomorrow in London I hope he will look at me as a whole. I have joined the dots so much on this forum in the last few weeks. I joined when my 11yo daughter was Dx celiac by biopsy in November 2005. I knew I had problems with wheat and dairy (York tests) I was stunned to find the link between gluten/neurological problems/digestive issues/chronic fatigue/fibromyalgia/IBS.

I have a beautiful raised bed veg garden, it breakes my heart that i am not up to doing it all myself and that for my health I need to in a warm climate. We are selling our dream Tudor 1575 Cottage, 600yo oak beams, inglenooks fireplaces, that we have spent 2 years renovating for a pool and some sun! I am gutted. This forum is possibly the best thing you will ever discover in your quest for good health.

Take care,

Donna

jerseyangel Proficient
jerseyangel
Posted

Linda--I live in northwest Burlington County. Our weather sure took a cold turn-huh? I love Pilates--I have a Premier XP machine here at home. It really does help with stiffness, and is such a gentle workout. I like to garden, too--we don't have a big yard but I have a raised perinneal bed in the front that I'm proud of. I have to do any outside work in the early AM as I am pretty sensitive to the sun and heat. I hear ya about the lack of energy, but I seem to be slowly getting some back. The only thing is that I'm tired by 7 or so every night! I had been sick for about 20 years but misdiagnosed many times. I had a surgery in 2004, and right after, my GI symptoms got much worse, along with tingling, numbness, brain fog, worstening anemia, severe fatigue and a 15 lb. weight loss. I did some research on my own after seeing a Kineisiologist who told me I should not eat wheat, oats, barley, rye, dairy, corn or soy. I took what I suspected to a gastro. That's when I was finally Dx.

I'm glad you found us here--just let us know how we can help :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,545
    • Most Online (within 30 mins)
      7,748
    WAY
    Newest Member
    WAY
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.