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Vitamin Deficiency

sparkles

By sparkles
in Coping with Celiac Disease

Recommended Posts

sparkles Contributor
sparkles
Posted

Anyone out there experience vitamin deficiency???? When I was first diagnosed with celiac disease, my B12 was really low so I started shots. I quit after a year because I moved and changed docs. I need to add that I also have diabetis and diabetic neuropathy. I saw a new neurologist last fall and she felt that I also might have dietary neuropathy (new to me), checked the vitamin levels that new doc had drawn and wondered why I was not back on the shots.....so went back on shots and then in January on gluten-free vitamins to get the B complex vitamins up to normal range. In Dec, I started having pain and numbness in my tongue, Ear-Nose-Throat doc thought that this might also be related to vitamin B complex deficiency. I have been on B12 shots since Oct and vitamins since January and the only difference I am noticing is that my urine is now a neon yellow. According to the nurse this is from too much B complex in my system. I am wondering since nature of the celiac disease is malabsorbtion, are the B12 shots and other vitamins just going through me. The doc felt that the shots would be absorbed since they are shot right into body but I am wondering about the other vitamins. Also I have tried really hard to follow celiac diet for 4 years and have not knowingly cheated. I felt really great right after going gluten-free but lately old symptoms of headaches, depression, stomach pain, more neuropathy problems are returning and new problems like skin rashes and tongue pain and benign mass on my thyroid have emerged..... I hate to blame everything on celiac disease but it all seems so inter-related. Anyone else experience anything like this??????

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let-the -sun-in Newbie
let-the -sun-in
Posted

Hi I too have neuropathy and i was taking 1000mcs of b12 every day and mulity vits . i was hoping that with the increase that it would go but it didnt, after 5 months i just take the multi vit now. i dont think once you get neuropathy that it goes away, i wish it did it drives me crazy at times. if you are having the shots then you should be absorbing it , if you think the you might not be absorbng the others maybe you could get it in liquid form instead. so it gets into your system quicker. good luck

Jen H Contributor
Jen H
Posted

Hi,

I had some blood tests for a physical shortly after my diagnosis and my calcium, vitamin D, and magnesium levels were all low. Since then I found out I have osteoporosis and take supplements for it.

bradshank Newbie
bradshank
Posted

howdy,

i've been wrestling with vitamin deficiency too- i'm now taking:

iron: bisglycinate 300 mg/day po (not constipating like ferrous)

folic acid 5 to 10 mg/day po

calcium 5 to 10 g/day

standard multivitamin

when i first saw the dosages i was intimidated, but the info comes from Merck?

Open Original Shared Link

so, i tried what they recommended, BUT SWITCHED the iron from ferrous to bisglycinate (Solgar Vitamin and Herb). this helped the irritation from the ferrous iron.

anyway, i hope this helps?

b

2tired Apprentice
2tired
Posted
Hi,

I had some blood tests for a physical shortly after my diagnosis and my calcium, vitamin D, and magnesium levels were all low. Since then I found out I have osteoporosis and take supplements for it.

My vitamin D level has been way too low for almost a year now. I wasn't diagnosed with Celiacs until Nov. 05. I have been on 50,000 units of Vit. D weekly until this mth and my dr. dropped it to once mthly. My body is still not absorbing it. My dr. is still not sure what to do.

beelzebubble Contributor
beelzebubble
Posted
My vitamin D level has been way too low for almost a year now. I wasn't diagnosed with Celiacs until Nov. 05. I have been on 50,000 units of Vit. D weekly until this mth and my dr. dropped it to once mthly. My body is still not absorbing it. My dr. is still not sure what to do.

try spending half an hour in the sun, maybe?

elisabet Contributor
elisabet
Posted
Anyone out there experience vitamin deficiency???? When I was first diagnosed with celiac disease, my B12 was really low so I started shots. I quit after a year because I moved and changed docs. I need to add that I also have diabetis and diabetic neuropathy. I saw a new neurologist last fall and she felt that I also might have dietary neuropathy (new to me), checked the vitamin levels that new doc had drawn and wondered why I was not back on the shots.....so went back on shots and then in January on gluten-free vitamins to get the B complex vitamins up to normal range. In Dec, I started having pain and numbness in my tongue, Ear-Nose-Throat doc thought that this might also be related to vitamin B complex deficiency. I have been on B12 shots since Oct and vitamins since January and the only difference I am noticing is that my urine is now a neon yellow. According to the nurse this is from too much B complex in my system. I am wondering since nature of the celiac disease is malabsorbtion, are the B12 shots and other vitamins just going through me. The doc felt that the shots would be absorbed since they are shot right into body but I am wondering about the other vitamins. Also I have tried really hard to follow celiac diet for 4 years and have not knowingly cheated. I felt really great right after going gluten-free but lately old symptoms of headaches, depression, stomach pain, more neuropathy problems are returning and new problems like skin rashes and tongue pain and benign mass on my thyroid have emerged..... I hate to blame everything on celiac disease but it all seems so inter-related. Anyone else experience anything like this??????

How is your folat after taking b-complex,I mean does she take any blood test to see how much of the vitamins enter your blood stream?

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ravenwoodglass Mentor
ravenwoodglass
Posted
Hi I too have neuropathy and i was taking 1000mcs of b12 every day and mulity vits . i was hoping that with the increase that it would go but it didnt, after 5 months i just take the multi vit now. i dont think once you get neuropathy that it goes away, i wish it did it drives me crazy at times.

Was the B12 you were taking sublingual? This is absorbed by the mucous membranes and bypasses the intestines completely. Don't loose hope with the neuropathies, if they were caused by the celiac they most likely will heal, it just takes a long time. Welll over 6 months gluten-free for me, possibly shorter or longer time for others. Celiac is not the only cause for neuropathies, diabetes and excessive alcohol intake are just a couple other things that will cause them. The neuropathies are also one of the first signs I have been glutened, have you checked everything for gluten? Cosmetics, toiletries, pet foods, art supplies, cleaning products, toasters? Do you consume grain based distilled alcohols? Although 'okay' (ie. non-reactive) for some of us for others a gluten reaction will still occur.

let-the -sun-in Newbie
let-the -sun-in
Posted
Was the B12 you were taking sublingual? This is absorbed by the mucous membranes and bypasses the intestines completely. Don't loose hope with the neuropathies, if they were caused by the celiac they most likely will heal, it just takes a long time. Welll over 6 months gluten-free for me, possibly shorter or longer time for others. Celiac is not the only cause for neuropathies, diabetes and excessive alcohol intake are just a couple other things that will cause them. The neuropathies are also one of the first signs I have been glutened, have you checked everything for gluten? Cosmetics, toiletries, pet foods, art supplies, cleaning products, toasters? Do you consume grain based distilled alcohols? Although 'okay' (ie. non-reactive) for some of us for others a gluten reaction will still occur.

hi ravenwoodglass

I was taking the sublingual and i take the time release ones too, but on my last blood test all my levels where right. I watch everything i put in my mouth i dont eat it unless i feel 100% sure, i cook at home, also i do notice when i have an occasional glass of wine maybe once a week it does increase it alot. i dont consume any other type of alcohols. As for cleaning products am not sure , my tolities are all neurtrigena and also my make up. my deodrant says potatoe starch so i know thats safe. i do have dogs and there is deffinatly gluten but i must wash my hands 100 times a day, its become an obsession that i dont get glutened i wont even let my husband touch any of my food because twice i have caught him handleing bread then go touch some of mine. so i dont know if i am getting any gluten . I was hoping i was on top of it all maybe am not then if i still suffer with it, i know that its not as agressive as it used to be but i still have it alot. The more physical i am the more it gets agressive i thought i would be stuck with it but if theys hope i will be so pleased . thanks for your responce

ravenwoodglass Mentor
ravenwoodglass
Posted
hi ravenwoodglass

As for cleaning products am not sure , my tolities are all neurtrigena and also my make up.

I actually check cleaning products, especially dish soap. I use either Dawn or Dermassage and only arm and hammer soaps and dryer sheets. You may want to call and ask about each Neutrogenia product, I called about one of their shampoos and some are safe but many are not. Some have posted about a few of their products so a search might bring up something but I know I feel better if I call myself. It seems so daunting at times. It takes a long time for some of us to heal and I hope this gets better for you as time goes by.

Jen H Contributor
Jen H
Posted

My vitamin D level has been way too low for almost a year now. I wasn't diagnosed with Celiacs until Nov. 05. I have been on 50,000 units of Vit. D weekly until this mth and my dr. dropped it to once mthly. My body is still not absorbing it. My dr. is still not sure what to do.

My nutritionist suggested that I start drinking Tropicana with Calcium and Vitamin D. She said the vitamin D helps with absorbing calcium. I'm seeing an endocrinologist about my osteoporosis in 2 weeks and will ask him if my Vitamin D levels have normalized. If I get any advice, I'll share it with you.

happy4dolphins Enthusiast
happy4dolphins
Posted

HI, I too have been vit D deff since Nov. 2005 and have been taking 50,000 ius of vit d once a week. I think it also depends on where you live. It's not un common to be vit d deff if you are living in the upper portions of the US/Candada, etc.

Nicole

  • 3 weeks later...
ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

Vitamin B-12, Folic Acid and Pantothenic Acid shots have helped me a lot with many of my ailments. I'm going in for another shot tomorrow -- once a week is good for me.

Robix Apprentice
Robix
Posted

I get the vitamin b-cocktail shots - goes directly into your muscles, then into your bloodstream also by-passing your intestines. I keep reading about people doing these weekly - please check with your doctors.

I have been doing these for 14 years now, about every 3 to 4 weeks and I try to time these with onset of my period - find this is what works best for me and my levels test adequately this way. My boyfriends (haven't had that many, but in 14 years more than a few!!!) come to the doctor to learn how to administer then I get them at home and don't have to go to the doctor for my shots.

However the weekly dosage is only supposed to last until your levels come up, then only every 3 to 4 weeks to stabilize. It is possible to overdose on B12 - so please check with your doctors to make sure you are not getting too much - too much B12 can make you sicker. When I was particularly exhausted lately (ta-da! Can you say Celiac?!!!) I asked my pharmacist if it was possible that the shots were not working and could I do more, and he said absolutedly NOT and that taking more would be dangerous (REALLY trust my pharmacist, more than any doctor) impossible for a shot of B12 not to hit bloodstream and my exhaustion was no doubt due to something else (TA-DA! Celiac!).

I also have too many digestive problems to take iron supplements in pill form (lets not even go there!) so I take Floradix (an extract of iron from prunes) and its more expensive but very easy to take and no affect on digestion (very small dose so won't its not like drinking prune juice).

Good luck to all of you - health and heart,

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