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Carla20

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Carla20 Newbie

My girl is a little over 2 and was diagnosed a few months ago.
She went thru a long period of being undiagnosed snd was in a lot of pain. She’s feeling better physically now and was able to see a dr by a virtual appointment but what can I do to help her talk and communicate with me more? The dr was helpful but developmentally I want to make sure I’m doing the most to help her thrive. 
Sometimes she gets upset and will hurt herself. I don’t know if it’s the migraine that some celiac patients get or she’s frustrated. Thank you  


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Scott Adams Grand Master

So I assume that her diet is 100% gluten-free now, but am not sure what you mean when you say that she sometimes gets upset and hurts herself. Does she sneak gluten? Please explain.

Carla20 Newbie

She is only a bit over 2 so she can’t sneak gluten but at that age can’t tell me what’s wrong so she cries out or might want to hit herself in the face out of frustration to me more like “don’t you get what’s bothering me?”

Awol cast iron stomach Experienced
6 minutes ago, Carla20 said:

She is only a bit over 2 so she can’t sneak gluten but at that age can’t tell me what’s wrong so she cries out or might want to hit herself in the face out of frustration to me more like “don’t you get what’s bothering me?”

If you are concerned about her verbal communication expression you can ask your Dr if she should be evaluated by a speech therapist. At two they are still emerging, but if your Dr hasn't mentioned a referral she is progressing as expected. Most public school district will evaluate them before or early in  kindergarten.

 

Scott Adams Grand Master

Since you are new to this be sure that her diet is 100% gluten-free, and avoid all cross-contamination if you or others in your family are not gluten-free. Gluten is a hidden ingredient in many foods, so it's important that you fully understand how to ensure her diet is not still causing her pain. This article may be helpful:

 

cyclinglady Grand Master

Check the CDC guidelines for child development.  My nephew was not verbal at two.  By three he was diagnosed with autism.  His PED never caught it, but the family did.  Early intervention is critical.  

knitty kitty Grand Master

Carla20, 

I used Baby Sign Language with my son when he was little.  No problems, just he was very smart and trying to communicate and I got tired of trying to guess and asking twenty questions.  I was the one who was getting frustrated.  It really works!  You'll be amazed at how quickly kids grasp sign language.

There's tons of videos on YouTube.  Here's one to get you started.

 

There's tons more websites with more information.  

It really works and you will feel so much better giving your little one tools she can use that you will understand.

Knitty Kitty

On 7/4/2020 at 1:27 PM, Carla20 said:

My girl is a little over 2 and was diagnosed a few months ago.
She went thru a long period of being undiagnosed snd was in a lot of pain. She’s feeling better physically now and was able to see a dr by a virtual appointment but what can I do to help her talk and communicate with me more? The dr was helpful but developmentally I want to make sure I’m doing the most to help her thrive. 
Sometimes she gets upset and will hurt herself. I don’t know if it’s the migraine that some celiac patients get or she’s frustrated. Thank you  

 


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    • trents
      Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
    • Celiacpartner
      Thanks so much for the responses. I will urge him to go for further investigation. To be 48yrs old and develop a new allergy.. ugh, As if celiac disease isn’t enough! 
    • trents
      This does not seem to be an anaphylactic response but I agree it would be wise to seek allergy-food sensitivity testing. You might look into ALCAT food sensitivity testing.
    • Rogol72
      @Celiacpartner, I agree with Scott. We have a food festival yearly in the town I live in, with artisan food stalls everywhere. I spoke to the owner of one of the artisan burger stalls, enquiring if the burgers were gluten-free when I said I was Coeliac ... he said he had a serious anaphylactic allergy to fish himself. He possibly carries an epi-pen or two everywhere he goes. I would go see an allergist as soon as possible as suggested.
    • Scott Adams
      After years of stable management, developing new symptoms to historically safe foods like nuts and fish strongly suggests a secondary issue has developed. It is highly unlikely to be a new gluten issue if the foods themselves are certified gluten-free. The most probable explanations are a new, separate food intolerance (perhaps to a specific protein in certain nuts or fish) or a true IgE-mediated food allergy, which can develop at any age. The symptoms you describe—cramps and the urge to vomit—can be consistent with either. It is crucial he sees an allergist for proper testing (like a skin prick or blood test) to identify the specific culprit and rule out a serious allergy, as reactions can sometimes worsen with repeated exposure.
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