Not A Good Day

[CMCM]

I have been so careful, so I know I have not had gluten or dairy. But I've felt awful all day so far, with several episodes of nausea, cramping and D (including one at the market where I had to almost run for the bathroom!).

So all I ate yesterday besides my usual grapefruit, eggs, tea, veggies, was:

1. Thai Kitchen noodles w/green onions....nothing weird in them, just rice noodles and soy oil and some tiny packet of spices, but it was labeled dairy and gluten free

2. Kinnikinnick animal crackers....I admit it, I ate too many because they were great

I noticed the #1 ingredient was sugar, and I suspect I don't do well with sugar.

3. Half a Kinnikinnick bagel

4. One Kinnikinnick donut

I'm probably answering my own question as I look at all this....too much rice and sugar, that's got to be it. But what a reaction I got. And even on days where I've just had ONE thing, such as a half bagel only, I still think it bothers me.

I've really got to get organized with the SCD diet, I think. I don't know what else to do. I almost feel worse now that I'm gluten-free/DF than I did before when I was eating this stuff!

This is really discouraging....the idea that I don't even seem able to handle goodie substitutes, that I can only eat a few bland things....

[cgilsing]

I'm sorry you don't feel good! I know it's late in the year, but the flu is really bad still too......maybe you getting sick?

[Lisa]

Citris is hard on my tummy.

PS. I want that pup.

[Mango04]

I don't know why but Kinnickinnik bagels always make me sick. They do contain a lot of odd-sounding ingredients.

I also sometimes react to Thai Kitchen stuff. For me I believe it's the soy protein in those products that gives me a "glutened" type of reaction. I've noticed a definite trend on this board that involves people getting "glutened" by gluten-free products that contain soy protein.

I definitely have to keep my fun gluten-free tasty packaged items to a minimun or I react.

Hope you feel better.

[key]

I have finally come to the conclusion that diet soda and coffee are not right for me. i don't eat them and I don't have C and IBS symptoms. I swear at this point I am not ever drinking them at all. They were giving me heartburn and stomach aches, etc. I know what you mean by not feeling better. I started feeling better right away gluten-free, then four months later I swear I felt worse. I had borderline test results and thought this weekend, well maybe I don't have celiac disease after all. So ate the wheat and had horrible D for two days, bone pain, legs ached, stomach aches, nausea, bloating. THe food I ate while eating wheat went right through me undigested. Worse then when I was eating it. I get so mad at myself for doing this, but when you truelly feel as if you aren't getting better gluten-free and you don't have conclusive test results, it is VERY hard! I am feeling better gluten-free and caffeine free though. I am thinking I have leaky gut and probably caused by the caffeine and soda. Don't know if you have any caffeine, but this is just an idea. It seems to be working for me. THank goodness. I feel like I am 90 years old some days and I am just 31 y.o.! I am determined to get well and stay well from now on, IF IT KILLS ME!! I don't want to be on any drugs. I quit the prilosec today and so far so good.

MOnica

[CMCM]

I don't know why but Kinnickinnik bagels always make me sick. They do contain a lot of odd-sounding ingredients.

I also sometimes react to Thai Kitchen stuff. For me I believe it's the soy protein in those products that gives me a "glutened" type of reaction. I've noticed a definite trend on this board that involves people getting "glutened" by gluten-free products that contain soy protein.

I definitely have to keep my fun gluten-free tasty packaged items to a minimun or I react.

Hope you feel better.

I'm thinking the rice (multi-weird ingredient) baked things just do not agree with me, period. I've been mildly bothered by everything I tried, but I was thinking it was that I over-indulged with the cookies, or perhaps it's the rice? I don't know, but today was the worst.

As for soy, I just KNOW that I react to it. I got tested at Enterolab for soy, and fully expected it to come back positive, but it didn't. So go figure. Of course, I don't deliberately eat soy at all...no tofu, no soy sauce which is a guaranteed cramp and D producer, so when I got tested at Enterolab I hadn't had any soy for simply ages. I wonder if that could account for the non-reaction???? In any case, stuff like tuna which has soy in it will upset me, I can't eat any chinese food w/soy because that makes me sick, it just seems so darn obvious my body does not like soy.

And no.....I'm not sick w/flu or anything. This is just my usual bad reaction, except this time it wasn't from dairy or gluten.

[jerseyangel]

I don't know if this will help, but I was having the exact same symptoms as you in mid December. Up until then, I had been doing pretty well (since June). Around that time, I was baking Christmas cookies and for the first time was using a rice/tapioca/potato starch mix. I was having nausea, cramping and D daily. I eventually narrowed it down to the tapioca flour. When I stopped using it, I felt better. Since then, I have also cut out things made with rice flour and eat rice no more than once or twice a month. This has made a difference, also.

[CMCM]

I don't know if this will help, but I was having the exact same symptoms as you in mid December. Up until then, I had been doing pretty well (since June). Around that time, I was baking Christmas cookies and for the first time was using a rice/tapioca/potato starch mix. I was having nausea, cramping and D daily. I eventually narrowed it down to the tapioca flour. When I stopped using it, I felt better. Since then, I have also cut out things made with rice flour and eat rice no more than once or twice a month. This has made a difference, also.

I don't have the cookie packages any more, but I checked both the bagel and the donut bag, and tapioca starch was the 2nd or 3rd ingredient, plus a lot of other stuff. I have never been a big rice eater....despite the fact that it is supposed to not be a problem for most people, I've always had this kind of 6th sense about not eating it much, so I don't. I have trouble with potatoes, too. Maybe I just can't handle starch of any kind, probably sugar too. I think I just have to do without any "bread-cookie etc." substitutes and just stick with plain meats, veggies & fruites.

I supposed I just went overboard and figured, well, if the gluten and dairy is out I"ll do fine with it! Not so, apparently, at least not right now.

Thanks for the heads up on tapioca flour. I bet it's in the K-toos and Animal crackers too!

[Lollie]

I have finally come to the conclusion that diet soda and coffee are not right for me. i don't eat them and I don't have C and IBS symptoms. I swear at this point I am not ever drinking them at all. They were giving me heartburn and stomach aches, etc. I know what you mean by not feeling better. I started feeling better right away gluten-free, then four months later I swear I felt worse. I had borderline test results and thought this weekend, well maybe I don't have celiac disease after all. So ate the wheat and had horrible D for two days, bone pain, legs ached, stomach aches, nausea, bloating. THe food I ate while eating wheat went right through me undigested. Worse then when I was eating it. I get so mad at myself for doing this, but when you truelly feel as if you aren't getting better gluten-free and you don't have conclusive test results, it is VERY hard! I am feeling better gluten-free and caffeine free though. I am thinking I have leaky gut and probably caused by the caffeine and soda. Don't know if you have any caffeine, but this is just an idea. It seems to be working for me. THank goodness. I feel like I am 90 years old some days and I am just 31 y.o.! I am determined to get well and stay well from now on, IF IT KILLS ME!! I don't want to be on any drugs. I quit the prilosec today and so far so good.

MOnica

Good Luck! I quit prilosec 2 months ago.....you might have a bad week with over acid production but, once that is over, no problem....at least for me!

Lollie

[CMCM]

After not eating most of the day, I had a can of Amy's low fat gluten free split pea soup....it was pretty good, I was surprised actually. And a few Mary's gone Crackers, which aren't bad, especially if you dip them into the soup. So far so good, but I guess tomorrow's the test (or tonight). But it's about 6 hours later and I feel great, so I'm hopeful. I used to absolutely love Campbell's split pea with ham soup, made with milk. But oh, it gave me such a belly ache. Amy's wasn't as good, and it had a different flavor of course, but it was still pretty good. I've found 2 Amy's soups so far that are gluten AND dairy free--the other was something like "southwestern vegetable" I think. I wonder if Amy's has any other? My local store is kind of limited in variety.

[jenvan]

Carole-

Have you only been gluten-free since your diagnosis in January? If so, I would expect some of these symptoms to continue. 6 wks or so isn't long enough for many folks to really see results. And it can take a healthy body some time to adjust to a new diet anyway. I suggest keeping a food/symptom journal for several weeks and I'm sure you will begin to notice some patterns and if there are some offending foods/ingredients for you. Hope things settle down soon!

[aikiducky]

I want to second what Jen said, and I think you're on the right track with the veggies-meat-and-fruit idea. Give your digestive system a rest!

Pauliina

[CMCM]

Carole-

Have you only been gluten-free since your diagnosis in January? If so, I would expect some of these symptoms to continue. 6 wks or so isn't long enough for many folks to really see results. And it can take a healthy body some time to adjust to a new diet anyway. I suggest keeping a food/symptom journal for several weeks and I'm sure you will begin to notice some patterns and if there are some offending foods/ingredients for you. Hope things settle down soon!

I went fairly strictly gluten/casein free on Nov. 25, indulged in some stuff around Christmas (not a lot, though), was fairly good until my diagnosis came in on Jan. 18. Then I was alternately good and bad, and did a lot of cheating (son's birthday on Jan. 19...ate a ton of cake). So no, I haven't been totally gluten free all that time. Feb. 25 was the day I ate some Sara Lee coffee cake, which just killed me with pain, so I'm counting from Feb. 26 when I truly and seriously embarked on this, reading all labels and zero cheating, zero desire to cheat at this point. I don't miss anything, I just don't want the pain and upset any more. So we're looking at 10 days gluten/casein free at this point. At this point, I just need to figure out what upsets me. Could be the tapioca starch in the gluten-free items I was having.

Meanwhile, after a terrible day yesterday, today has been great. I've been so careful and have eaten only things which don't bother me, and small amounts: Scrambled eggs, 1/2 grapefruit & tea for breakfast, Lara bar after my gym workout, 1/4 c. of my just-made coconut milk yogurt with strawberries in it (well, first time I've made this, so I hope it doesn't bother me), home made chicken vegetable soup for dinner, 1/4 c. or so of my just-made crockpot applesauce. So far so good. Everything feels good, nothing hurts, but now I wonder if C is setting in. A day with no D, nothing at all, is strange. So far not bothersome, though. I think I'll order that psyllium though, because I think C can become a problem.

[aikiducky]

You know, 10 days after a glutening a lot of things that normally won't bother me will give me trouble. For me it's also typical to first have D for a while (after a glutening) and then to have C for a couple weeks, then finally everything gets back to normal. I usually count on three weeks of not feeling back to normal, and I have a rule for myself that I'm not allowed to panic before the three weeks are over.

Pauliina

[shellhoo]

I am sorry you are having a hard time. Glutenfree packaged products like bagels, do not sit well with me either. I really have to make things from scratch. the only thing that does not bother me at all is the kinnickinnick donuts.But i can only eat one at a time. I bought some animal crackers from them, and I hope they don't bother me, cause when i was little, I loved those boxed ones. As for the thai kitchen stuff, as long as I don't eat a lot at once, I am fine. If I eat too much in one sitting, I have C. I think it is best to stick to fresh stuff that we make as much as we can.

[key]

Lollie,

Yeah, it has been four days since no Prilosec and I am fine, but I haven't touched caffeine and I know if I did, I would be having problems. It doesn't matter how much caffeine either, even one diet soda and bam! I had only been taking the Prilosec for about three weeks, but felt I would never get off of it. I wouldn't have if I hadn't given up my daily fixes!

Are you caffeine free or are you just not bothered by heartburn anymore?

Carole,

I have felt gross after eating too much of the Kinnikinnick products. It is very strange. IT seems like some of the flour combinations don't agree with me very well. I can eat a whole one of their mini pizza's though and also there english muffins. I am not sure if it is just a coincidence. One time I made cookies with rice flours, etc and felt aweful. I really think for me though it has been the sodas and caffeine, because my tummy is much happier so far without them and feeling so good already. If they don't bother you though, then there is no point in giving that up. You may not even drink them though.

HOpe you figure it all out.

Monica

[CMCM]

You know, 10 days after a glutening a lot of things that normally won't bother me will give me trouble. For me it's also typical to first have D for a while (after a glutening) and then to have C for a couple weeks, then finally everything gets back to normal. I usually count on three weeks of not feeling back to normal, and I have a rule for myself that I'm not allowed to panic before the three weeks are over.

Pauliina

Wow, well that's interesting about a 10 day time frame. I guess I have never considered that...my reactions are fairly quick...within a day for the worst of it, and then I guess I always figured it was over and something else might be bothering me. Or perhaps....and does this make sense???.....after a major gluten episode maybe the residual effect of that causes intolerance to a whole bunch of things which might not bother me if I hadn't been glutened. What do you all think?

[aikiducky]

I don't know what exactly causes it, I just know I do better if I eat carefully for a while after a glutening. My major reaction is also over relatively quickly, I feel awful for one-two days and after that I can almost forget about it, except if I start to experiment with new foods that is.

Maybe it's because the anti-gluten reaction that we get is in effect like having an inflammation in your intestines. If you have a stomach bug, for example, lots of foods might also bother you, right?

Another thing that took me a while to figure out was that I often have another flare-up of reactions 7 days after a glutening. So I get glutened, I feel sick (day 1 or 2), then I start to do better, almost forget I was glutened, and seven days after BAM I'm sick again. It used to totally freak me out because of course I thought I'd been glutened again, but it's very consistent and always happens. It feels like some kind of a delayed reaction. Usually it also means that I feel much much better the day after that (day 8), then I just have to wait until my stools get back to normal (week 2 and 3).

Now that I have figured it out I just count on being under the weather on day 7 and try to arrange my life accordingly. And try to not get glutened in the first place, of course.

The long time frame is one of the reasons it's such a bad idea to cheat. It really truly isn't over in just one day. I think it's one of the reasons people start to doubt the diet, they have accidents too often and don't realize how long the reaction really lasts.

Anyway, didn't mean to turn this into a sermon! I hope you're feeling better!

Pauliina