Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What I've Learned So Far About Myself...

Linda352

By Linda352
in Coping with Celiac Disease

Recommended Posts

Linda352 Rookie
Linda352
Posted

Hello All! Well, I've been gluten free for about 2 months now and have really been feeling so much better but not complete. I haven't been tested by any doctors but just doing my own elimination diet to see what might be causing me to be in so much pain. Drs told me it's arthritus and I will have to learn to live with it...They don't know me very well :rolleyes: Anyway, through my own research and learning about food intolerances so far I've discovered so much about how my body has changed since entering the Menopausal phase of my life. This week I decided to stop all alcohol consumption, including wine (this is such a bummer) to see if I wouldn't notice any more positive changes and after only 3 days I am practically pain free which I thought I would never feel again :D I just wanted to share in case anyone else has been suffering in a similar way. I know each individual seems to suffer differently than another and it totally amazes me how foods that we are made to believe are "healthy" for us aren't necessarily so. I hope each and everyone of you are able to figure out your food culprits as I have as it's well worth it even though some may be your favs :) Have a beautiful day!

Linda/NJ

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nevadan Contributor
Nevadan
Posted

Linda,

Thanks for the post with your experience. Loss of wine would be a real bummer :) What else did you eliminate? If you add any of these back without consequences, please post. I also have what appears to be "arthritis" which comes and goes and so far doesn't correlate with any food elimination I've tried, including wine.

George

Linda352 Rookie
Linda352
Posted
  • Author
Linda,

Thanks for the post with your experience. Loss of wine would be a real bummer :) What else did you eliminate? If you add any of these back without consequences, please post. I also have what appears to be "arthritis" which comes and goes and so far doesn't correlate with any food elimination I've tried, including wine.

George

Hi George....I have also cut back on my sugar consumption. I rarely eat any baked goodies anymore, however since today is my b'day one of my DD's brought over a flourless chocolate cake yesterday which did have lots of sugar in it and it did not affect me at all. Aside from this I really hadn't had any sugar since last summer. I do think that this has also been a plus in how I've been feeling. I eat a lot of salads and veggies and try my best to not eat any junk food. My arthritus (upper spine area) is my only reason for going gluten-free. I don't have any of the other symptoms that others here are struggling with. It's pretty easy for me to be strict with my food intake as long as I don't go anywhere :P Also in regards to my arthritus I've been taking Glucosamine with MSM for a few years now and just recently also added a supplement called Celadrin which I had read that it works well together with the Gluc/MSM. So I don't know if it's the diet or the Celadrin which are making me feel better....or both. As long as I notice an improvement I'm for anything that works so I will continue to do as I am doing and hopefully will continue to feel better each day. Have you tried any glucosamine supplements or do you take any presc. meds for your arthritus?

Linda

jerseyangel Proficient
jerseyangel
Posted

Happy birthday, Linda :) Glad to hear you're figuring things out and feeling better. It takes time--I'm 9 months into it, and have finally figured out what I should and should not be eating--unless, of course, something changes! I know there's always that possibility during this long healing process, but when I look back at where I was a year ago, I have to say I'm so much better. Your cake sounds yummy :D

Linda352 Rookie
Linda352
Posted
  • Author
Happy birthday, Linda :) Glad to hear you're figuring things out and feeling better. It takes time--I'm 9 months into it, and have finally figured out what I should and should not be eating--unless, of course, something changes! I know there's always that possibility during this long healing process, but when I look back at where I was a year ago, I have to say I'm so much better. Your cake sounds yummy :D

Thanks Patti for your kind wishes :) Yes my cake was quite deliceous! Glad you are feeling much better after being gluten-free for as long as you have. I hope I can keep it going as well as you have. I still have yet to venture out to a restaurant or anywhere else to eat. As long as I'm home I'm good B)

Linda

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin. In the early 1900s, refined white flour replaced whole grains, and people began...
    2. Scott Adams
      - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted...
    3. JoJo0611
      - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      CT with contrast.

      Thank you.
    4. deanna1ynne
      - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased int...
    5. cristiana
      - cristiana replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott. Have manufacturers ever said why that should be the case?
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,438
    • Most Online (within 30 mins)
      7,748
    rednecksurfer
    Newest Member
    rednecksurfer
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Scott Adams
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Scott Adams · Posted

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
      CT with contrast.

      By JoJo0611 · Posted

      Thank you. 
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
    • cristiana
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By cristiana · Posted

      Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott.  Have manufacturers ever said why that should be the case?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.