Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Quick Question For Those On Scd:

lorka150

Recommended Posts

lorka150 Collaborator
lorka150
Posted

Hi there,

I am seriously thinking about doing this, especially since reading all the recent threads. My one main question is how immediate did you guys see results? In that, I mean 'symptoms' going away. For example, rememeber when you first went gluten-free and felt great after about 2 weeks (then a nice solid stand-still for months?)...

The reason I ask, is because I literally have a coffee addiction. I love coffee. I drink so much coffee. It would be really hard to give up. And yes, I realize this is my health and that I should sacrifice and what not.

Anyway, I am thinking that if I did this diet for a little bit and was seeing results, it would clearly give me the incentive to go hardcore for the year. Because I could do without coffee to test it out.

I know this sounds silly.

But I am really just wondering.

I feel like a fool so please don't berate me. :unsure:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kbtoyssni Contributor
kbtoyssni
Posted

I'm a little confused. Most coffees are gluten free so you'd still be able to drink it on the diet.

If you're asking about how quickly you will start to feel better after cutting out gluten, it really depends on the person. I felt great for the first two weeks, then started to feel yucky again, then slowly started to improve. It's supposed to take your intestines up to six months to heal. I'm at six months right now and feel pretty good, but at first I was accidently glutening myself quite frequently so that would probably put my progress back some.

Rachel--24 Collaborator
Rachel--24
Posted
I'm a little confused. Most coffees are gluten free so you'd still be able to drink it on the diet.

She was asking about the Specific Carbohydrate Diet...which is basically for people who are still having food intolerances and other problems after going gluten-free.

I've only been on the diet 1 week today but I have noticed improvement. I have more energy and my mood and spirits are much better but thats about it so far. I'm definately sticking to the diet as I think it will help but I'm expecting slow improvements rather than drastic changes like what I got from going gluten-free. I was much more ill at that time so eliminating gluten and all processed foods and sugar made a huge immediate difference.

kimjoy24 Apprentice
kimjoy24
Posted

Before I discovered my gluten intolerance, I went on the SCD and noticed that the majority of my digestive issues disappeared in just a week. And I tend to be a pessimist about such things, so I'm not exaggerating about my personal success with the diet. I had tried so many other diets for IBS and other ailments and none of them had the profound and speedy results that the SCD had. It is very, very difficult to maintain over long periods of time. It did make going gluten-free a lot easier for me though, because the gluten-free diet offers so much more variety than the SCD! I don't think there's any magic with the diet, it just makes sense that eating pure, natural foods with as little processing and additives as possible will be easier for your gut to digest.

lorka150 Collaborator
lorka150
Posted
  • Author

Thanks for your replies. Right now, all I can really tolerate are about ten foods, literally. I am fine with eating a small palette of foods and having patience with this, so I am not doubtful at my ability to do it. I am going to try and get the book out of the library to fully understand it.

Nancym Enthusiast
Nancym
Posted

It took me about 2 weeks, probably because I skipped the intro and introduced my challenging foods right away. I also didn't quite the coffee because I have a major habit. I'm weaning myself onto decaf and intend to quit... soonish... probably. But my intestines seem to be ok with the coffee. I've been on it for about 2 months now and very gradually trying foods. It appears that chocolate and almonds are giving me trouble.

lorka150 Collaborator
lorka150
Posted
  • Author

i thought decaf stuff wasn't allowed?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dlp252 Apprentice
dlp252
Posted

Lorka, you're right, in the book she says no coffee not even decaf. Fortunately for me I haven't been drinking coffee since I found out I was casein intolerant...can't have coffee without my half-n-half, lol...there's just no point. :D

Interestingly I talked to a friend who I haven't talke to in a long time and as we were catching up I was explaining my current situation with Gluten-free Casein-free and how I was going to try this diet because I was still having intestinal issues. She says "Is that the one where you make your own yogurt?". Turns out her sister-in-law went on it and apparently it really, really helped her. I've just started it today, so I'll be able to report back soon I hope! :D

lorka150 Collaborator
lorka150
Posted
  • Author
Lorka, you're right, in the book she says no coffee not even decaf. Fortunately for me I haven't been drinking coffee since I found out I was casein intolerant...can't have coffee without my half-n-half, lol...there's just no point. :D

my mom swears by Silk Creamer to replace her cream in her coffee (she is also casein free with me). I know soy isn't an option because of the scd, but just wanted to let you know... For later.

Nancym Enthusiast
Nancym
Posted

I could swear in the book it says weak coffee is ok. It does say that on her web site: Open Original Shared Link

corinne Apprentice
corinne
Posted

I've been on the SCD for 6 weeks and have had no D for 4. The improvement in D was rapid; the improvement in gas and cramping have been slow and steady.

Caffeine is a stimulant and will make your gut more active hence increase D, cramping etc. So if you can, it would be a good idea to cut out coffee, chocolate etc. for a while until things heal up.

dlp252 Apprentice
dlp252
Posted
I could swear in the book it says weak coffee is ok. It does say that on her web site: Open Original Shared Link

Wow, maybe it was specific to decaf and instant because of the processes involved. Wow...course I still can't drink it without my half-n-half (or even Silk), lol.

danikali Enthusiast
danikali
Posted

I thought chocolate was illegal and should be eliminated all together for the whole year...even cocoa powder.

Rachel--24 Collaborator
Rachel--24
Posted

Chocolate is illegal

dlp252 Apprentice
dlp252
Posted
I could swear in the book it says weak coffee is ok. It does say that on her web site: Open Original Shared Link

Yep, you're right. I re-read chapters 9 and 10 last night and sure enough weak coffee is okay. It was specifically decaf stuff and intant coffee she says isn't good because of the processing. I think I've been illegal yesterday especially...I had two cups of decaf tea. Grrr. :D

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      12

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      I found some articles that illustrate the immune reaction to casein and gluten. Bovine milk caseins and transglutaminase-treated cereal prolamins are differentially recognized by IgA of celiac disease patients according to their age https://pubmed.ncbi.nlm.nih.gov/19290628/ Gliadin and Casein Metabolism: Synthesis of Gliadomorphin and...
    2. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      1

      Second chance

      Ijmartes71 I son't think you are crazy by any psycoligical s=defination but you are obsessive. you may have considerable brain fog , a problem that affects celiacs and many other people. . With this obsession you have abd being braun dogged you arw not abke to take any advice people are giving you to help you. To take advice you need to reduce your anxieties...
    3. cristiana
      - cristiana replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      12

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      Just to say that I too was hesitant to come off dairy products completely @dsfraley. Milk, yoghurt and soft cheeses definitely caused bloating. This bloating gave me rib and pelvic pain, and I remember the pain was so horrible at times it was almost a sick feeling., kind of like the sort of aches you get with flu. Milk, yoghurt and soft cheeses also...
    4. trents
      - trents replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      12

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      Yes, that is the suggestion.
    5. Wheatwacked
      - Wheatwacked replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      12

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      Anyway, I have no problem with grass fed milk other than the price. Maybe I should move to Ireland or New Zealand. They're the only countries that don't feed grains to their cows to increase milkfat and milk volume. A side note: I just came back trom the vascular surgeon about the scan of my carotid arteries done last week. A year ago I had over ...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,562
    • Most Online (within 30 mins)
      7,748
    Hannah Kelch
    Newest Member
    Hannah Kelch
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      By knitty kitty · Posted

      I found some articles that illustrate the immune reaction to casein and gluten. Bovine milk caseins and transglutaminase-treated cereal prolamins are differentially recognized by IgA of celiac disease patients according to their age https://pubmed.ncbi.nlm.nih.gov/19290628/   Gliadin and Casein Metabolism: Synthesis of Gliadomorphin and Casomorphin and Their Biological Consequences https://www.researchgate.net/publication/397908713_Gliadin_and_Casein_Metabolism_Synthesis_of_Gliadomorphin_and_Casomorphin_and_Their_Biological_Consequences   Effects of milk containing only A2 beta casein versus milk containing both A1 and A2 beta casein proteins on gastrointestinal physiology, symptoms of discomfort, and cognitive behavior of people with self-reported intolerance to traditional cows’ milk https://pmc.ncbi.nlm.nih.gov/articles/PMC4818854/#:~:text=Results,lactose tolerant and intolerant subjects.   Casomorphins and Gliadorphins Have Diverse Systemic Effects Spanning Gut, Brain and Internal Organs https://pmc.ncbi.nlm.nih.gov/articles/PMC8345738/   Brain Opioid Activity and Oxidative Injury: Different Molecular Scenarios Connecting Celiac Disease and Autistic Spectrum Disorder https://pmc.ncbi.nlm.nih.gov/articles/PMC7407635/  
    • Mari
      Second chance

      By Mari · Posted

      Ijmartes71 I  son't think you are crazy by any psycoligical s=defination but you are obsessive. you may have considerable brain fog  , a problem that affects celiacs and many other people. . With this obsession you have abd being braun dogged you arw not abke to take any advice people are giving you to help you. To take advice you need to reduce your anxieties abd think more clearly. .Stop taking your herbs for at least one week because some of them will have side ellectsif you take them too long. You can add them back if you don't notice any good changes. Be more careful about being strictly gluten free.  
    • cristiana
      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      By cristiana · Posted

      Just to say that I too was hesitant to come off dairy products completely @dsfraley.  Milk, yoghurt and soft cheeses definitely caused bloating.  This bloating gave me rib and pelvic pain, and I remember  the pain was so horrible at times it was almost a sick feeling., kind of like the sort of aches you get with flu.   Milk, yoghurt and soft cheeses also gave me diarrhea, but I noted I could still eat small amounts of hard cheese like cheddar without any issues. Re: milk, my gastroenterologist told me at that time that I could just by lactofree products, and should be fine, but when my gut was still very damaged they went right through me regardless. Thankfully I am able to tolerate milk very well again, although I have noted that too much of it can have a slightly laxative effect. The other thing that made me feel off were heavy iron supplements, which contributed to bloating and diarrhea.  In the end a GP told me to take ferrous gluconate, which is a much gentler supplement, with water an hour before breakfast in the morning.  That was helpful.  If your son is supplementing  (which needs to be under medical supervision as too much iron can cause issues) Floravital fruit syrup is another alternative, but make sure you don't buy Floradix as it contains gluten. Lastly, all oats, soya products and certain pulses also made my stomach sore.  Apart from the oats (which need to be certified 'pure' aka gluten free ones) I was able to eat these things again some months after adopting a gluten-free diet. I would say keeping a food diary might be worth a try, noting any negative symptoms following eating.  Patterns start to emerge which might otherwise be difficult to identify.
    • trents
      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      By trents · Posted

      Yes, that is the suggestion.
    • Wheatwacked
      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      By Wheatwacked · Posted

      Anyway, I have no problem with grass fed milk other than the price.  Maybe I should move to Ireland or New Zealand.  They're the only countries that don't feed grains to their cows to increase milkfat and milk volume. A side note: I just came back trom the vascular surgeon about the scan of my carotid arteries done last week.  A year ago I had over 90% stenosis in the right artery and 80% in the left.  Tcar procedure done in the right with a stent.  The results today were right side downgraded to Moderate stenosis and the surgeon did not expect to see as much improvement on the left. (untouched). I must be doing something right.  Recheck in six months.   Mucosal reactivity to cow's milk protein in coeliac disease This paper proves that cassein is the protein in cow's milk is the trigger but the study did not differentiate as grass fed milk.  I haven't found any studies specific to grassmilk. The study does not differentiate alpha or beta cassein.  Google says: some clinicians speculate that grain-based proteins could potentially pass into the milk, though scientific studies typically find no detectable gluten or gliadin fragments in bovine milk regardless of the cow's diet. So given alpha cassein as the trigger, grass fed A2 cassein; thought to be easier to digest and less likely to trigger the specific inflammatory pathways associated with standard commercial dairy; plus the omega 6:3 ratio of grain fed milk is 5.8:1 vs grass fed ratio of 1:1, grass fed milk is less inflammatory.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.