Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Quick Question For Those On Scd:


lorka150

Recommended Posts

lorka150 Collaborator

Hi there,

I am seriously thinking about doing this, especially since reading all the recent threads. My one main question is how immediate did you guys see results? In that, I mean 'symptoms' going away. For example, rememeber when you first went gluten-free and felt great after about 2 weeks (then a nice solid stand-still for months?)...

The reason I ask, is because I literally have a coffee addiction. I love coffee. I drink so much coffee. It would be really hard to give up. And yes, I realize this is my health and that I should sacrifice and what not.

Anyway, I am thinking that if I did this diet for a little bit and was seeing results, it would clearly give me the incentive to go hardcore for the year. Because I could do without coffee to test it out.

I know this sounds silly.

But I am really just wondering.

I feel like a fool so please don't berate me. :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kbtoyssni Contributor

I'm a little confused. Most coffees are gluten free so you'd still be able to drink it on the diet.

If you're asking about how quickly you will start to feel better after cutting out gluten, it really depends on the person. I felt great for the first two weeks, then started to feel yucky again, then slowly started to improve. It's supposed to take your intestines up to six months to heal. I'm at six months right now and feel pretty good, but at first I was accidently glutening myself quite frequently so that would probably put my progress back some.

Rachel--24 Collaborator
I'm a little confused. Most coffees are gluten free so you'd still be able to drink it on the diet.

She was asking about the Specific Carbohydrate Diet...which is basically for people who are still having food intolerances and other problems after going gluten-free.

I've only been on the diet 1 week today but I have noticed improvement. I have more energy and my mood and spirits are much better but thats about it so far. I'm definately sticking to the diet as I think it will help but I'm expecting slow improvements rather than drastic changes like what I got from going gluten-free. I was much more ill at that time so eliminating gluten and all processed foods and sugar made a huge immediate difference.

kimjoy24 Apprentice

Before I discovered my gluten intolerance, I went on the SCD and noticed that the majority of my digestive issues disappeared in just a week. And I tend to be a pessimist about such things, so I'm not exaggerating about my personal success with the diet. I had tried so many other diets for IBS and other ailments and none of them had the profound and speedy results that the SCD had. It is very, very difficult to maintain over long periods of time. It did make going gluten-free a lot easier for me though, because the gluten-free diet offers so much more variety than the SCD! I don't think there's any magic with the diet, it just makes sense that eating pure, natural foods with as little processing and additives as possible will be easier for your gut to digest.

lorka150 Collaborator

Thanks for your replies. Right now, all I can really tolerate are about ten foods, literally. I am fine with eating a small palette of foods and having patience with this, so I am not doubtful at my ability to do it. I am going to try and get the book out of the library to fully understand it.

Nancym Enthusiast

It took me about 2 weeks, probably because I skipped the intro and introduced my challenging foods right away. I also didn't quite the coffee because I have a major habit. I'm weaning myself onto decaf and intend to quit... soonish... probably. But my intestines seem to be ok with the coffee. I've been on it for about 2 months now and very gradually trying foods. It appears that chocolate and almonds are giving me trouble.

lorka150 Collaborator

i thought decaf stuff wasn't allowed?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dlp252 Apprentice

Lorka, you're right, in the book she says no coffee not even decaf. Fortunately for me I haven't been drinking coffee since I found out I was casein intolerant...can't have coffee without my half-n-half, lol...there's just no point. :D

Interestingly I talked to a friend who I haven't talke to in a long time and as we were catching up I was explaining my current situation with Gluten-free Casein-free and how I was going to try this diet because I was still having intestinal issues. She says "Is that the one where you make your own yogurt?". Turns out her sister-in-law went on it and apparently it really, really helped her. I've just started it today, so I'll be able to report back soon I hope! :D

lorka150 Collaborator
Lorka, you're right, in the book she says no coffee not even decaf. Fortunately for me I haven't been drinking coffee since I found out I was casein intolerant...can't have coffee without my half-n-half, lol...there's just no point. :D

my mom swears by Silk Creamer to replace her cream in her coffee (she is also casein free with me). I know soy isn't an option because of the scd, but just wanted to let you know... For later.

Nancym Enthusiast

I could swear in the book it says weak coffee is ok. It does say that on her web site: Open Original Shared Link

corinne Apprentice

I've been on the SCD for 6 weeks and have had no D for 4. The improvement in D was rapid; the improvement in gas and cramping have been slow and steady.

Caffeine is a stimulant and will make your gut more active hence increase D, cramping etc. So if you can, it would be a good idea to cut out coffee, chocolate etc. for a while until things heal up.

dlp252 Apprentice
I could swear in the book it says weak coffee is ok. It does say that on her web site: Open Original Shared Link

Wow, maybe it was specific to decaf and instant because of the processes involved. Wow...course I still can't drink it without my half-n-half (or even Silk), lol.

danikali Enthusiast

I thought chocolate was illegal and should be eliminated all together for the whole year...even cocoa powder.

Rachel--24 Collaborator

Chocolate is illegal

dlp252 Apprentice
I could swear in the book it says weak coffee is ok. It does say that on her web site: Open Original Shared Link

Yep, you're right. I re-read chapters 9 and 10 last night and sure enough weak coffee is okay. It was specifically decaf stuff and intant coffee she says isn't good because of the processing. I think I've been illegal yesterday especially...I had two cups of decaf tea. Grrr. :D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    2. - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    3. - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

    4. - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

    5. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Blood Test for Celiac wheat type matters?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,139
    • Most Online (within 30 mins)
      7,748

    kathleen apodaca
    Newest Member
    kathleen apodaca
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
    • Jmartes71
      I also noticed I get debilitating migraines when I smell gluten, wheat and its not taken seriously when it affects one in every way.Im still begging to properly be heard.I also noticed tolerance level is down the drain with age and life changes. I have been told by incompetent medical that im not celiac or that sensitive. Diagnosed in 1994 by gi biopsy gluten-free ever since along with other lovely food allergies. Prayers
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.