Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Quick Question For Those On Scd:

lorka150

Recommended Posts

lorka150 Collaborator
lorka150
Posted

Hi there,

I am seriously thinking about doing this, especially since reading all the recent threads. My one main question is how immediate did you guys see results? In that, I mean 'symptoms' going away. For example, rememeber when you first went gluten-free and felt great after about 2 weeks (then a nice solid stand-still for months?)...

The reason I ask, is because I literally have a coffee addiction. I love coffee. I drink so much coffee. It would be really hard to give up. And yes, I realize this is my health and that I should sacrifice and what not.

Anyway, I am thinking that if I did this diet for a little bit and was seeing results, it would clearly give me the incentive to go hardcore for the year. Because I could do without coffee to test it out.

I know this sounds silly.

But I am really just wondering.

I feel like a fool so please don't berate me. :unsure:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kbtoyssni Contributor
kbtoyssni
Posted

I'm a little confused. Most coffees are gluten free so you'd still be able to drink it on the diet.

If you're asking about how quickly you will start to feel better after cutting out gluten, it really depends on the person. I felt great for the first two weeks, then started to feel yucky again, then slowly started to improve. It's supposed to take your intestines up to six months to heal. I'm at six months right now and feel pretty good, but at first I was accidently glutening myself quite frequently so that would probably put my progress back some.

Rachel--24 Collaborator
Rachel--24
Posted
I'm a little confused. Most coffees are gluten free so you'd still be able to drink it on the diet.

She was asking about the Specific Carbohydrate Diet...which is basically for people who are still having food intolerances and other problems after going gluten-free.

I've only been on the diet 1 week today but I have noticed improvement. I have more energy and my mood and spirits are much better but thats about it so far. I'm definately sticking to the diet as I think it will help but I'm expecting slow improvements rather than drastic changes like what I got from going gluten-free. I was much more ill at that time so eliminating gluten and all processed foods and sugar made a huge immediate difference.

kimjoy24 Apprentice
kimjoy24
Posted

Before I discovered my gluten intolerance, I went on the SCD and noticed that the majority of my digestive issues disappeared in just a week. And I tend to be a pessimist about such things, so I'm not exaggerating about my personal success with the diet. I had tried so many other diets for IBS and other ailments and none of them had the profound and speedy results that the SCD had. It is very, very difficult to maintain over long periods of time. It did make going gluten-free a lot easier for me though, because the gluten-free diet offers so much more variety than the SCD! I don't think there's any magic with the diet, it just makes sense that eating pure, natural foods with as little processing and additives as possible will be easier for your gut to digest.

lorka150 Collaborator
lorka150
Posted
  • Author

Thanks for your replies. Right now, all I can really tolerate are about ten foods, literally. I am fine with eating a small palette of foods and having patience with this, so I am not doubtful at my ability to do it. I am going to try and get the book out of the library to fully understand it.

Nancym Enthusiast
Nancym
Posted

It took me about 2 weeks, probably because I skipped the intro and introduced my challenging foods right away. I also didn't quite the coffee because I have a major habit. I'm weaning myself onto decaf and intend to quit... soonish... probably. But my intestines seem to be ok with the coffee. I've been on it for about 2 months now and very gradually trying foods. It appears that chocolate and almonds are giving me trouble.

lorka150 Collaborator
lorka150
Posted
  • Author

i thought decaf stuff wasn't allowed?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dlp252 Apprentice
dlp252
Posted

Lorka, you're right, in the book she says no coffee not even decaf. Fortunately for me I haven't been drinking coffee since I found out I was casein intolerant...can't have coffee without my half-n-half, lol...there's just no point. :D

Interestingly I talked to a friend who I haven't talke to in a long time and as we were catching up I was explaining my current situation with Gluten-free Casein-free and how I was going to try this diet because I was still having intestinal issues. She says "Is that the one where you make your own yogurt?". Turns out her sister-in-law went on it and apparently it really, really helped her. I've just started it today, so I'll be able to report back soon I hope! :D

lorka150 Collaborator
lorka150
Posted
  • Author
Lorka, you're right, in the book she says no coffee not even decaf. Fortunately for me I haven't been drinking coffee since I found out I was casein intolerant...can't have coffee without my half-n-half, lol...there's just no point. :D

my mom swears by Silk Creamer to replace her cream in her coffee (she is also casein free with me). I know soy isn't an option because of the scd, but just wanted to let you know... For later.

Nancym Enthusiast
Nancym
Posted

I could swear in the book it says weak coffee is ok. It does say that on her web site: Open Original Shared Link

corinne Apprentice
corinne
Posted

I've been on the SCD for 6 weeks and have had no D for 4. The improvement in D was rapid; the improvement in gas and cramping have been slow and steady.

Caffeine is a stimulant and will make your gut more active hence increase D, cramping etc. So if you can, it would be a good idea to cut out coffee, chocolate etc. for a while until things heal up.

dlp252 Apprentice
dlp252
Posted
I could swear in the book it says weak coffee is ok. It does say that on her web site: Open Original Shared Link

Wow, maybe it was specific to decaf and instant because of the processes involved. Wow...course I still can't drink it without my half-n-half (or even Silk), lol.

danikali Enthusiast
danikali
Posted

I thought chocolate was illegal and should be eliminated all together for the whole year...even cocoa powder.

Rachel--24 Collaborator
Rachel--24
Posted

Chocolate is illegal

dlp252 Apprentice
dlp252
Posted
I could swear in the book it says weak coffee is ok. It does say that on her web site: Open Original Shared Link

Yep, you're right. I re-read chapters 9 and 10 last night and sure enough weak coffee is okay. It was specifically decaf stuff and intant coffee she says isn't good because of the processing. I think I've been illegal yesterday especially...I had two cups of decaf tea. Grrr. :D

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to wellthatsfun's topic in Gluten-Free Recipes & Cooking Tips
      1

      heaps of hope!

      Your post nails the practical reality of living well with a celiac diagnosis. The shift from feeling restricted to discovering a new world of cooking—whether through a supportive partner making gluten-free spanakopita and gravy, or learning to cook for yourself—is exactly how many people find their footing. It turns a medical necessity into a chance to bui...
    2. Scott Adams
      - Scott Adams replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Fruits & Veggies

      You are experiencing a remarkable recovery by addressing core nutrient deficiencies, yet you've uncovered a deeper, lifelong intolerance to fruits and vegetables that appears to be a distinct issue from celiac disease. Your experience points strongly toward a separate condition, likely Oral Allergy Syndrome (OAS) or a non-IgE food intolerance, such as salicylate...
    3. Scott Adams
      - Scott Adams replied to yellowstone's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Cold/flu or gluten poisoning?

      Your satiation is challenging and a common dilemma for those with celiac disease or non-celiac gluten sensitivity: distinguishing between a routine viral illness and a reaction to gluten exposure. The overlap in symptoms—fatigue, malaise, body aches, and general inflammation—makes it nearly impossible to tell them apart in the moment, especially with a h...
    4. Scott Adams
      - Scott Adams replied to hjayne19's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Celiac Screening

      Your situation highlights a difficult but critical crossroads in celiac diagnosis. While your positive blood test (a high TTG-IgA of 66.6) and dramatic improvement on a gluten-free diet strongly point to celiac disease, the gastroenterologist is following the formal protocol which requires an endoscopy/biopsy for official confirmation. This confirmation is...
    5. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Related Issues & Disorders
      2

      New issue

      Your experience of being medically dismissed for decades, despite a clear celiac diagnosis since 1994, is unacceptable. It is a tragic common thread in our community that the systemic failure to understand celiac disease leads to a cascade of other diagnoses—like SIBO, IBS, depression, and now the investigation of MS or meningioma—while the core autoimmune con...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,090
    • Most Online (within 30 mins)
      7,748
    LVanderbeck12
    Newest Member
    LVanderbeck12
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      heaps of hope!

      By Scott Adams · Posted

      Your post nails the practical reality of living well with a celiac diagnosis. The shift from feeling restricted to discovering a new world of cooking—whether through a supportive partner making gluten-free spanakopita and gravy, or learning to cook for yourself—is exactly how many people find their footing. It turns a medical necessity into a chance to build kitchen skills, eat more whole foods, and actually enjoy the process. Your point that the basics—knife skills, food safety, and experimenting with spices—are all you really need is solid, helpful advice. It’s a good reminder that the diagnosis, while a pain, doesn’t have to stop you from eating well or having fun with food.
    • Scott Adams
      Fruits & Veggies

      By Scott Adams · Posted

      You are experiencing a remarkable recovery by addressing core nutrient deficiencies, yet you've uncovered a deeper, lifelong intolerance to fruits and vegetables that appears to be a distinct issue from celiac disease. Your experience points strongly toward a separate condition, likely Oral Allergy Syndrome (OAS) or a non-IgE food intolerance, such as salicylate or histamine intolerance. The instant burning, heart palpitations, and anxiety you describe are classic systemic reactions to food chemicals, not typical celiac reactions. It makes perfect sense that your body rejected these foods from birth; the gagging was likely a neurological reflex to a perceived toxin. Now that your gut has healed, you're feeling the inflammatory response internally instead. The path forward involves targeted elimination: try cooking fruits and vegetables (which often breaks down the problematic proteins/chemicals), focus on low-histamine and low-salicylate options (e.g., peeled pears, zucchini), and consider working with an allergist or dietitian specializing in food chemical intolerances. 
    • Scott Adams
      Cold/flu or gluten poisoning?

      By Scott Adams · Posted

      Your satiation is challenging and a common dilemma for those with celiac disease or non-celiac gluten sensitivity: distinguishing between a routine viral illness and a reaction to gluten exposure. The overlap in symptoms—fatigue, malaise, body aches, and general inflammation—makes it nearly impossible to tell them apart in the moment, especially with a hypersensitive system. This ambiguity is a significant source of anxiety. The key differentiator often lies in the symptom pattern and accompanying signs: gluten reactions frequently include distinct digestive upset (bloating, diarrhea), neurological symptoms like "brain fog," or a specific rash (dermatitis herpetiformis), and they persist without the respiratory symptoms (runny nose, sore throat) typical of a cold. Tracking your symptoms meticulously after any exposure and during illnesses can help identify your personal patterns. Ultimately, your experience underscores the reality that for a sensitive body, any immune stressor—be it gluten or a virus—can trigger a severe and similar inflammatory cascade, making vigilant management of your diet all the more critical. Have you had a blood panel done for celiac disease? This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Celiac Screening

      By Scott Adams · Posted

      Your situation highlights a difficult but critical crossroads in celiac diagnosis. While your positive blood test (a high TTG-IgA of 66.6) and dramatic improvement on a gluten-free diet strongly point to celiac disease, the gastroenterologist is following the formal protocol which requires an endoscopy/biopsy for official confirmation. This confirmation is important for your lifelong medical record, can rule out other issues, and is often needed for family screening eligibility. The conflicting advice from your doctors creates understandable anxiety. The challenge, of course, is the "gluten challenge"—reintroducing gluten for 4-6 weeks to make the biopsy accurate. Since your symptoms resolved, this will likely make you feel unwell again. You must weigh the short-term hardship against the long-term certainty of a concrete diagnosis. A key discussion to have with your GI doctor is whether, given your clear serology and clinical response, would be getting a diagnosis without the biopsy.
    • Scott Adams
      New issue

      By Scott Adams · Posted

      Your experience of being medically dismissed for decades, despite a clear celiac diagnosis since 1994, is unacceptable. It is a tragic common thread in our community that the systemic failure to understand celiac disease leads to a cascade of other diagnoses—like SIBO, IBS, depression, and now the investigation of MS or meningioma—while the core autoimmune condition is neglected. The constant, severe flu-like symptoms and new neurological concerns are absolutely valid and warrant serious investigation for connections to celiac-related autoimmunity or complications like refractory disease. It is enraging that you must fight so hard to be heard. While I don't have a medical answer about MS or meningioma links, your instinct is correct: relentless symptoms require a specialist who understands celiac disease beyond the gut. Regarding the California proclamation, it is a symbolic advocacy effort; reaching out to the women mentioned may provide supportive community, but your advocacy with your local representative is the most direct action. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.