Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Quick Question For Those On Scd:


lorka150

Recommended Posts

lorka150 Collaborator

Hi there,

I am seriously thinking about doing this, especially since reading all the recent threads. My one main question is how immediate did you guys see results? In that, I mean 'symptoms' going away. For example, rememeber when you first went gluten-free and felt great after about 2 weeks (then a nice solid stand-still for months?)...

The reason I ask, is because I literally have a coffee addiction. I love coffee. I drink so much coffee. It would be really hard to give up. And yes, I realize this is my health and that I should sacrifice and what not.

Anyway, I am thinking that if I did this diet for a little bit and was seeing results, it would clearly give me the incentive to go hardcore for the year. Because I could do without coffee to test it out.

I know this sounds silly.

But I am really just wondering.

I feel like a fool so please don't berate me. :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kbtoyssni Contributor

I'm a little confused. Most coffees are gluten free so you'd still be able to drink it on the diet.

If you're asking about how quickly you will start to feel better after cutting out gluten, it really depends on the person. I felt great for the first two weeks, then started to feel yucky again, then slowly started to improve. It's supposed to take your intestines up to six months to heal. I'm at six months right now and feel pretty good, but at first I was accidently glutening myself quite frequently so that would probably put my progress back some.

Rachel--24 Collaborator
I'm a little confused. Most coffees are gluten free so you'd still be able to drink it on the diet.

She was asking about the Specific Carbohydrate Diet...which is basically for people who are still having food intolerances and other problems after going gluten-free.

I've only been on the diet 1 week today but I have noticed improvement. I have more energy and my mood and spirits are much better but thats about it so far. I'm definately sticking to the diet as I think it will help but I'm expecting slow improvements rather than drastic changes like what I got from going gluten-free. I was much more ill at that time so eliminating gluten and all processed foods and sugar made a huge immediate difference.

kimjoy24 Apprentice

Before I discovered my gluten intolerance, I went on the SCD and noticed that the majority of my digestive issues disappeared in just a week. And I tend to be a pessimist about such things, so I'm not exaggerating about my personal success with the diet. I had tried so many other diets for IBS and other ailments and none of them had the profound and speedy results that the SCD had. It is very, very difficult to maintain over long periods of time. It did make going gluten-free a lot easier for me though, because the gluten-free diet offers so much more variety than the SCD! I don't think there's any magic with the diet, it just makes sense that eating pure, natural foods with as little processing and additives as possible will be easier for your gut to digest.

lorka150 Collaborator

Thanks for your replies. Right now, all I can really tolerate are about ten foods, literally. I am fine with eating a small palette of foods and having patience with this, so I am not doubtful at my ability to do it. I am going to try and get the book out of the library to fully understand it.

Nancym Enthusiast

It took me about 2 weeks, probably because I skipped the intro and introduced my challenging foods right away. I also didn't quite the coffee because I have a major habit. I'm weaning myself onto decaf and intend to quit... soonish... probably. But my intestines seem to be ok with the coffee. I've been on it for about 2 months now and very gradually trying foods. It appears that chocolate and almonds are giving me trouble.

lorka150 Collaborator

i thought decaf stuff wasn't allowed?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dlp252 Apprentice

Lorka, you're right, in the book she says no coffee not even decaf. Fortunately for me I haven't been drinking coffee since I found out I was casein intolerant...can't have coffee without my half-n-half, lol...there's just no point. :D

Interestingly I talked to a friend who I haven't talke to in a long time and as we were catching up I was explaining my current situation with Gluten-free Casein-free and how I was going to try this diet because I was still having intestinal issues. She says "Is that the one where you make your own yogurt?". Turns out her sister-in-law went on it and apparently it really, really helped her. I've just started it today, so I'll be able to report back soon I hope! :D

lorka150 Collaborator
Lorka, you're right, in the book she says no coffee not even decaf. Fortunately for me I haven't been drinking coffee since I found out I was casein intolerant...can't have coffee without my half-n-half, lol...there's just no point. :D

my mom swears by Silk Creamer to replace her cream in her coffee (she is also casein free with me). I know soy isn't an option because of the scd, but just wanted to let you know... For later.

Nancym Enthusiast

I could swear in the book it says weak coffee is ok. It does say that on her web site: Open Original Shared Link

corinne Apprentice

I've been on the SCD for 6 weeks and have had no D for 4. The improvement in D was rapid; the improvement in gas and cramping have been slow and steady.

Caffeine is a stimulant and will make your gut more active hence increase D, cramping etc. So if you can, it would be a good idea to cut out coffee, chocolate etc. for a while until things heal up.

dlp252 Apprentice
I could swear in the book it says weak coffee is ok. It does say that on her web site: Open Original Shared Link

Wow, maybe it was specific to decaf and instant because of the processes involved. Wow...course I still can't drink it without my half-n-half (or even Silk), lol.

danikali Enthusiast

I thought chocolate was illegal and should be eliminated all together for the whole year...even cocoa powder.

Rachel--24 Collaborator

Chocolate is illegal

dlp252 Apprentice
I could swear in the book it says weak coffee is ok. It does say that on her web site: Open Original Shared Link

Yep, you're right. I re-read chapters 9 and 10 last night and sure enough weak coffee is okay. It was specifically decaf stuff and intant coffee she says isn't good because of the processing. I think I've been illegal yesterday especially...I had two cups of decaf tea. Grrr. :D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

    2. - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    3. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,914
    • Most Online (within 30 mins)
      7,748

    Momxiety
    Newest Member
    Momxiety
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.