Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Shampoo & Conditioner

Wisconsin woman
 Share

Recommended Posts

Wisconsin woman Newbie
Wisconsin woman
Posted

I seem to still be having some gluten exposure after 2 years of painstaking change in diet. A PA suggested looking at shampoo and conditioner products.  Is that really scientifically proven to have impact?  I  use lovely botanical products, but the companies are not labelled gluten-free.  Is there any truth that this is a source of exposure?  I am not eating them.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

There are more than a few forum contributors that will swear they have reactions to the external application of health and beauty aids containing gluten. I am not sure it has been scientifically proven or even really studied yet.

plumbago Experienced
plumbago
Posted

I agree. Unless your use of definite gluten-containing products is excessive, I tend not to assign much blame to cosmetic products. What makes you think you are continuing to have exposures? Have you been eating out much? How do you respond to milk products?

Wisconsin woman Newbie
Wisconsin woman
Posted
  • Author
48 minutes ago, plumbago said:

I agree. Unless your use of definite gluten-containing products is excessive, I tend not to assign much blame to cosmetic products. What makes you think you are continuing to have exposures? Have you been eating out much? How do you respond to milk products?

one of my antibody numbers has not zeroed out yet. 2 of the three others have.  So deeper investigation of where I am being exposed.  I have no rashes nor GI symptoms.  

trents Grand Master
trents
Posted
(edited)

So you are asymptomatic?

Are you still eating out?

Are you using processed foods and if so are they just labeled "Gluten Free" or are they labeled "Certified Gluten Free?"

Edited by trents
plumbago Experienced
plumbago
Posted
(edited)
54 minutes ago, Wisconsin woman said:

one of my antibody numbers has not zeroed out yet. 2 of the three others have.  So deeper investigation of where I am being exposed.  I have no rashes nor GI symptoms.  

It was 10 years ago that I was initially tested. Of those tests (ttg-IgA; gliadin peptide IgG; and gliadin peptide IgA) none had a range of 0. At the time, for the tests I had, you should aim for less than 7 (I did not meet that mark). In addition, my D3 and B12 were low, so too ferritin (though that continues to be low now and again).

Edited by plumbago
cyclinglady Grand Master
cyclinglady
Posted
1 hour ago, Wisconsin woman said:

one of my antibody numbers has not zeroed out yet. 2 of the three others have.  So deeper investigation of where I am being exposed.  I have no rashes nor GI symptoms.  

It can take up to a year or longer for antibodies to resolve.  Just stay the course.  Do not get hung up on the numbers.  As long as they are not going up, you are fine!  
 

Know that  the antibodies tests were designed to help diagnose celiac disease and not really to monitor it.  But it is the non-evasive tool in the tool box, so doctors use it.  My DGP IgA was elevated the day of my repeat endoscopy (five years after diagnosis) which showed complete healing.  I kept thinking I had a gluten exposure.  I was wrong!  I was doing everything right.  
 

Use your shampoo and conditioner.  Do not wash you head up aside down which is what my curly-hair kid does to set her curls.   You can swallow shampoo then or maybe fall down in the shower.  😆So I buy her products that do not contain gluten ingredients.  

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Wisconsin woman Newbie
Wisconsin woman
Posted
  • Author
41 minutes ago, trents said:

So you are asymptomatic?

Are you still eating out?

Are you using processed foods and if so are they just labeled "Gluten Free" or are they labeled "Certified Gluten Free?"

HA! Who eats out....Actually I am a very dedicated organic food, home cooked meals from scratch person.  I guess not always "certified gluten-free". I use the gluten-free scanner app to check products in the store. My store bought foods are chips, crackers, cereals, noodles, condiments, a few sauces.

 

AnonyousCda Contributor
AnonyousCda
Posted

I support going all gluten-free soaps and shampoo/conditioner. So basically shopping at organic grocery/nutritional stores ($$). 

Scott Adams Grand Master
Scott Adams
Posted

Yes, I agree, since there are so many that are now labelled "gluten-free," why not just go with one that you can be sure won't cause you any issues?

moog8 Rookie
moog8
Posted
On 10/23/2020 at 12:44 AM, Wisconsin woman said:

I seem to still be having some gluten exposure after 2 years of painstaking change in diet. A PA suggested looking at shampoo and conditioner products.  Is that really scientifically proven to have impact?  I  use lovely botanical products, but the companies are not labelled gluten-free.  Is there any truth that this is a source of exposure?  I am not eating them.

Hi! I had a pretty sever reaction to a shampoo i bought recently. I noticed lots of old symptoms come back, i couldn't work out why I felt so ill as I hadn't eaten out or anything processed, iI don't eat any grains either so it was confusing. Then I saw it on my new shampoo....Wheat Germ. I didn't use it again after that and it took me maybe a week for all symptoms to go , but the acute ones went within a day or two. Most other products i use i either make self, i use olive oil infused with herbs for moisturiser, I use Weleda toothpaste etc...I hadn't really thought about shampoo in all these years, which is odd! without realising though I hadn't been using one containing gluten before that for a while, but looking back it could have been making me feel bad on a few different occasions in the pst ten years!!. 

moog8 Rookie
moog8
Posted
On 10/23/2020 at 12:44 AM, Wisconsin woman said:

I seem to still be having some gluten exposure after 2 years of painstaking change in diet. A PA suggested looking at shampoo and conditioner products.  Is that really scientifically proven to have impact?  I  use lovely botanical products, but the companies are not labelled gluten-free.  Is there any truth that this is a source of exposure?  I am not eating them.

Oh also, i'm using Rahua shampoo and conditioner- I read up about true gluten free shampoos- I avoid grain in products as well. Its really lovely, if expensive but I'm wiling to pay the price to be safe!

Wisconsin woman Newbie
Wisconsin woman
Posted
  • Author
5 hours ago, moog8 said:

Oh also, i'm using Rahua shampoo and conditioner- I read up about true gluten free shampoos- I avoid grain in products as well. Its really lovely, if expensive but I'm wiling to pay the price to be safe!

I have ordered a shampoo and conditioner (Desert Essence)  that are labeled gluten-free. Not too pricey. I contacted the company of my current shampoos and they responded that there are no gluten ingredients in their formulation but they are not certain that there aren't derivatives in the mix.  Whatever that means. This all makes me want to eat cookies....which are easy to bake gluten-free!.

moog8 Rookie
moog8
Posted
1 hour ago, Wisconsin woman said:

I have ordered a shampoo and conditioner (Desert Essence)  that are labeled gluten-free. Not too pricey. I contacted the company of my current shampoos and they responded that there are no gluten ingredients in their formulation but they are not certain that there aren't derivatives in the mix.  Whatever that means. This all makes me want to eat cookies....which are easy to bake gluten-free!.

the derivatives thing has been becoming clearer to me recently! I learnt that almost all vitamin C or ascorbic acid, in products is derived from Corn, a lot of the time GMO corn- I avoid corn as I react to it. I have to be careful of supplements too as a lot of "citrates" are corn derived and also the capsules contain derivatives of many things. Im glad you found a shampoo you can use! yes, cookies! I'm very thankful i can still eat cookies! If you ever want a nice chocolate cake recipe, check out the chocolate olive oil cake recipe online by nigella lawson, its SOO good.

lizza johnson Newbie
lizza johnson
Posted
On 10/23/2020 at 5:14 AM, Wisconsin woman said:

I seem to still be having some gluten exposure after 2 years of painstaking change in diet. A PA suggested looking at shampoo and conditioner products.  Is that really scientifically proven to have impact?  I  use lovely botanical products, but the companies are not labelled gluten-free.  Is there any truth that this is a source of exposure?  I am not eating them.

That was the first thought in my mind when I first diagnosed with celiac.I chuckled and chuckled about "gluten-free shampoo." Then I used a sample bottle of shampoo I got from somewhere last week. And in awful itchy, painful scabs, the skin on my scalp broke out! They haven't healed all the way yet, my scalp still itches, and it drives me nuts! I'll never use random shampoo ever again. It seems like this horrible condition is progressing to the extent that I am disturbed by things that were okay before.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,622
    • Most Online (within 30 mins)
      7,748
    Veronica27
    Newest Member
    Veronica27
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      CVS (Cyclic vomiting syndrome)

      By trents · Posted

      Be aware that putting your child on a gluten free diet ahead of an official celiac diagnosis will invalidate any attempt to arrive at an official diagnosis. If at some point in time after commencing a gluten free diet you wish to have your child tested for celiac disease, he/she would need to go back to eating normal amounts of gluten for weeks/months leading up to the testing date. And it is often the case that once gluten has been withdrawn for a significant amount of time, the reactions are much stronger when going back on it.
    • Marky0320
      CVS (Cyclic vomiting syndrome)

      By Marky0320 · Posted

      I'm investigating the possibility of having celiac disease. My kid has Coffins Lowery syndrome, a rare form of Austism, and constantly has these CVS episodes. We suspect it could be related to Gluten sensitivity or celiac. We just started the diet last week, and we'll keep an eye on any improvements.
    • Alibu
      Waiting on biopsy after positive bloodwork, but also not really believing this is real

      By Alibu · Posted

      @Scott Adams thank you again!  You definitely 100% get it!!  It's so helpful to know that what I'm going through is normal and part of the process. My endoscopy just got scheduled for June 10 (I'm going to be traveling or else they could have gotten me in earlier) so I have 2 more weeks of eating gluten.  I'm assuming I should just go to the endoscopy and start going gluten free as soon as it's done?  Or should I wait for the biopsy to come back just in case they have to repeat something?  
    • trents
      I am wondering if my symptoms are Celiac Disease related..

      By trents · Posted

      Welcome to the forum, @NightRaven92! The symptoms you describe definitely align with celiac disease or at least NCGS (Non Celiac Gluten Sensitivity). That, and the family history of celiac disease, certainly warrant being tested for it. The first stage of diagnosis involves blood tests looking for antibodies that are more or less specific to celiac disease. If the blood antibody testing is positive, there is usually a second level diagnostic procedure for confirmation involving an endoscopy/biopsy of the small bowel lining, looking for the damage caused by celiac disease. So, when you go to your appointment, I would suggest approaching your doctor this way to simplify the experience: 1. For six weeks I have been experiencing stomach cramps, diarrhea, feverishness, headaches and joint pain when I consume wheat products. 2. I have relatives with celiac disease and other autoimmune disorders such as Hashimoto's thyroid disease. 3. I would like to be tested for celiac disease. Would you be willing to order the TTG-IGA antibody test and a total IGA test? TTG-IGA stands for "Tissue Transglutaminase Immunoglobulin A". Total IGA is also known as "Immunoglobulin A (IgA) test" (Note: the TTG-IGA is the "centerpiece" of celiac antibody testing. There are others but this one is the most important and the most popular one with physicians. But is also very important to have total IGA checked since if you are IGA deficient, it will produce artificially lower TTG-IGA scores and possible false negatives for this one and other IGA antibody tests as well.) It's very important that you not begin cutting back on gluten consumption before the antibody test blood draw.
    • NightRaven92
      I am wondering if my symptoms are Celiac Disease related..

      By NightRaven92 · Posted

      Hey so on June 18th next month,I made an appointment next month with my doctor,because I think what could be causing my symptoms,is related to Celiac Disease. Here is my symptoms & stuff..so anyway autoimmune disease runs on my mom's side of the family. My grandma has an autoimmune disease related to her thyroid,& my aunt has Celiac Disease. I have been having my symptoms for almost 6 weeks now,from what I have noticed anyway. My symptoms are:Stomach pain/cramping,chronic diarrhea,I will feel feverish out of nowhere,I get alot of headaches & pain in my joints,& I noticed that literally after I consume anything with gluten in it,I will get nausea,sick to my stomach,pain in my abdomen & around my stomach,& not to mention the diarrhea that can often come out as very painful afterwards,if I consume gluten foods. I have not felt well in what feels like forever & that's of course why I made a dr appointment. Anyway I could really use some advice on this & how I could maybe bring my symptoms up with my dr without confusing her too much..thanks in advance..
×
×
  • Create New...