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Worthless Doctors

DJFL77I
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DJFL77I Experienced
DJFL77I
Posted

Had a blood test done like 3 weeks ago to check my anti body levels after being gluten free for like 4.5 months...  

still haven't gotten a call about results...  even after leaving 2 messages... 

I already have my results online but still.... not everyone gets their results online...

Doctors are completely worthless chit these days

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Scott Adams Grand Master
Scott Adams
Posted

Well, many are under a lot of stress lately, and not used to practicing medicine during a pandemic. 

What were the results?

DJFL77I Experienced
DJFL77I
Posted
  • Author

decent enough i guess..  antibody level dropped from 100+ down to 13...

thyroid function normal..

blood work all normal besides my liver enzyms still being off..  which i suppose has still not normalized yet because of the celiac since i've already had every test in the book done on it in the past all negative..........    and Dr did say that was very common with celiac..

 

Scott Adams Grand Master
Scott Adams
Posted

Yes, liver issues are fairly common, and if related, can go away on a gluten-free diet. Here are the articles we have on the topic:

https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/liver-disease-and-celiac-disease/ 

DJFL77I Experienced
DJFL77I
Posted
  • Author

well the nurse finally called...

said celiac disease is still active ( obviously )......  continue strict gluten free diet..  ( obviously )

now the Dr wants me to get a MRI of my abdomen even though I already had a CT scan of my entire abdomen earlier this year with my previous Dr... before the endoscopy..

joy..

Scott Adams Grand Master
Scott Adams
Posted

Oh well, at least you're hopefully now on the mend! Best to know and deal with it. After a while the diet will be second nature, and you will be happy to have your health.

DebJ14 Enthusiast
DebJ14
Posted
On 12/11/2020 at 4:59 PM, DJFL77I said:

well the nurse finally called...

said celiac disease is still active ( obviously )......  continue strict gluten free diet..  ( obviously )

now the Dr wants me to get a MRI of my abdomen even though I already had a CT scan of my entire abdomen earlier this year with my previous Dr... before the endoscopy..

joy..

Try a totally grain free diet and do not eat any commercially prepared gluten-free food.  Even though they say they are gluten-free, they are still allowed to contain 20ppm.  A gluten-free cookie here, a gluten-free pretzel there and a bowl of gluten-free Cereal and the gluten adds up fast.  I found that going grain free was what finally allowed my gut and skin to heal.  I only use almond and coconut flour.

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DJFL77I Experienced
DJFL77I
Posted
  • Author

I'm not concerned about the antibody levels..   they dropped significantly..  they don't necessarily have to reach 0 in 5 months...   I did eat out 4 times at dedicated gluten free places during those months.. so who knows if i got some contamination somewhere... 

anyway, i have the MRI on Dec 24'th at 6 am..   Merry Christmas to me!

frieze Community Regular
frieze
Posted

DJ, what is the MRI for?

DJFL77I Experienced
DJFL77I
Posted
  • Author

I think he wants to see my liver again because of the elevated enzymes.. theyr not super high but they've always been a bit elevated since diagnoses.. and always ALT.. other one is always normal or just barely elevated..

My previous Dr already took all the tests related to liver though and everything was negative.. and my previous ct scan saw nothing wrong with liver..

Pretty sure it's still the Celiac causing it..

 

  • 2 weeks later...
DJFL77I Experienced
DJFL77I
Posted
  • Author

So I got my MRI results today..   they compared it to the previous CT scan i had back in May..

He said the MRI looks excellent..  Liver, Gallbladder, Pancreas look good...

 

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      Shingles - Could It Be Related to Gluten/ Celiac

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      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
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      By trents · Posted

      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
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      GI DX celiac despite neg serology and no biopsy

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      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
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      Shingles - Could It Be Related to Gluten/ Celiac

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      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
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      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
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