Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What does this sound like?


Austintll

Recommended Posts

Austintll Newbie

Basically my history is that I DID receive some gluten antibody tests (IGG or similar) years ago. They were slightly elevated when I used ranges online but basically I was told it was nothing and I clearly didn’t have celiac. I have not got bloodwork in years and I don’t foresee doing it any time soon unfortunately.

 

I have had a ton of issues with different foods over the years, getting progressively worse. It has been a huge learning curve. 
 

What I’m most curious about is my symptoms and if they sound similar to anyone else:

main:

Ataxia?( I HAVE ALWAYS felt just a bit off balance, it makes me almost constantly somewhat nauseous) - I might go as far as to say my vision sometimes goes in and out of focus (just got new prescription and astigmatism addressed so this could be related to ataxia? Not sure)

brain fog(no motivation and RARELY feel clear headed...like I’m always in a blur. I WANT deep inside to be going out and doing stuff but I often lay in bed despite a ton of physical energy.) - I always maintain a great physique however I am in the gym 4 days a week maintaining 205-210lbs with 6 pack abs!

indigestion/cramping

bloating/constipation/incomplete voiding bowels (I used to have a LOT of issues with voiding completely, to put it softly.) 

for now those are the main ones but the first two I would describe as debilitating because I used to be a very motivated and goal driven person.

Heart: after certain foods I will receive a massive increase in perceived heartbeat(palpitations. I am not sure if it is ACTUALLY elevated, usually 70-85 still when I’ve checked it) - this usually gives me a very anxious feeling

feeling of doom/depression- I guess you could say this ties in to the brain fog. Essentially it is as I describe it a feeling that I will have something bad occur. Cant describe better.

diet:

I have completely cut out gluten/dairy for the better part of two months. Massive improvements! I was doing great and rarely fell off. 
since I have been bulking at the gym, I usually eat 20-25 servings of oats (yes I eat 4000 calories from oats lol I walk 10+ miles a day for my job). On top of that I eat chicken thighs/olive oil for my fats and protein. At first I used regular oats, but last two weeks I have tried gluten free oats. 
 

the past month my symptoms have not really seen an improvement, I have either stalled or regressed to be honest.

SO: I am curious as to if these are relatable to someone else? I can imagine the oats were ok for a while but for one reason or another I am now having issues. 
A giveaway for me is how corn and rice effect me, I know wheat, rice, corn, AND OATS contain some forms of gluten, if not gliadin.

 

BASICALLY I just want to know if anyone sees Ataxia as a main symptom to glutening?? I feel as that symptom causes me to just feel in a very distraught mood, and it mixes with brain fog to give me a greatly depressed mood!

I would like any opinions lol

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

About 10% of celiacs react to even gluten free oats like they do wheat, barley and rye. Eliminating oats is where I would go next if I were you. Have you tried buckwheat? It's not wheat at all but related to rhubarb. Delicious and more nutritious than oats. Takes about 10 minutes to cook. If you're interested, make sure you purchase buckwheat that is gluten free, i.e., not cross contaminated. Amazon advertises gluten-free buckwheat.

All the ataxia, brain fog symptoms you describe are quite often listed as symptoms of celiac sufferers on this forum.

By the way, Austin. Welcome!

Austintll Newbie
6 minutes ago, trents said:

About 10% of celiacs react to even gluten free oats like they do wheat, barley and rye. Eliminating oats is where I would go next if I were you. Have you tried buckwheat? It's not wheat at all but related to rhubarb. Delicious and more nutritious than oats. Takes about 10 minutes to cook. If you're interested, make sure you purchase buckwheat that is gluten free, i.e., not cross contaminated. Amazon advertises gluten-free buckwheat.

All the ataxia, brain fog symptoms you describe are quite often listed as symptoms of celiac sufferers on this forum.

By the way, Austin. Welcome!

Awesome. Thanks for the idea I will have to figure out a substitute for a way to get 5000 calories a day without oats(so easy to use)! I will probably give buckwheat a try too. Wonder can I blend that up in some milk like I did oats? It looks to be the same amount of calories but I mind have to shell out quite a bit $$$ more than oats for that. Nothing is too expensive for good health though.

trents Grand Master

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Midwesteaglesfan replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Going for upper endoscopy today

    2. - Scott Adams replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Going for upper endoscopy today

    3. - Scott Adams replied to Cecile's topic in Related Issues & Disorders
      4

      Symptoms

    4. - Midwesteaglesfan replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Going for upper endoscopy today

    5. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      My Journey Continues some notes

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,188
    • Most Online (within 30 mins)
      7,748

    TBH
    Newest Member
    TBH
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Midwesteaglesfan
      Her results only showed greater then 100 which over 10 is considered positive.  But American standards still recommend the endoscopy to confirm.  And the Dr explained to us both the European and American standards and asked us what we wanted to do.  We figured since it’s still recommended here, do the endoscopy so Insurance can’t argue anything in the future regarding it
    • Scott Adams
      My daughter also has it, and it's much better to discover it early. What was the positive level for her test? If she has over 10x that level, and you have celiac disease, I'm not sure if a biopsy is necessary to diagnose her. In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children!    
    • Scott Adams
      I forgot to mention that I also had to avoid eggs for a few years after initially going gluten-free, but could eat duck eggs without issues. Fresh duck eggs can often be found in Asian markets (be sure they are fresh eggs, because they sell various kinds of duck eggs that look the same like salted eggs, eggs with embryos inside, etc.), farmer's markets, and I was surprised to see Costco now selling fresh duck eggs.
    • Midwesteaglesfan
      UPDATE:  here I am a couple months past my full diagnosis and going gluten free.  I’ve been feeling a lot better.  More energy, joint pain has gone down a lot.  Haven’t really had the headaches and migraines I’ve had for years.   My daughter(age 17) has had some symptoms which we thought were something else, but with my diagnosis I said,  have the dr test her for celiacs.  Her antibodies came back as greater then 100.  So she is scheduled for her endoscopy and going to be joining me on this journey.
    • xxnonamexx
      I have increased my vitamin intake Vitamin B Complex plus 2 Thiamax, NeuroMag, Benfotiamine with breakfast. I continue reading and watching gluten free items that I eat. Breakfast is Bobs Redmill gluten-free oatmeal with Chobani zero sugar yogurt a banana and blueberries. Lunch since im at a deli gluten-free is hard to come by so I stick with turkey with gluten-free Promise bread. Dinner varies like gluten-free pasta, tacos, chicken, sausage, meat etc. rice or take out from gluten-free places. I have decided to stay away from gluten-free pizza as I feel I felt weird with it unless its store bought frozen. I am going to try to make my own gluten-free bread, Bagels. I have been good with baking gluten-free treats like cookies, muffins. Snacks if its not fruit, veggies I grab a protein bar or chocolate guilty pleasure reeses, hersheys, York PP. I am going to start to use my fitness pal app to track what I eat and note when I feel off to see if I can pinpoint if a trend of a certain gluten-free food is a culprit. I noticed once in a while I feel a little bloated, gassy that I think is from the pizza so I am going to avoid it and continue narrowing it down. I have been doing very well and I have learned even if you think you are doing everything 100% gluten-free eating it can sneak in without you knowing. This year is more traveling which im afraid of but have already looked into gluten-free places in Nashville which they have and back to Aruba I went last year and have the gluten-free places already selected. Most restaurants I have been to have been very helpful with what to stay away from to avoid CC. If a place states they don't have any gluten-free the I stick with a salad or when I took my kids to breakfast as much as I miss the breakfast this place serves I played it safe with yogurt and a fruit bowl so at least my kids were happy to go there again. Local farmers market has great gluten-free items that I treat myself to like different types of breads, baked goods. My journey continues...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.