Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Diagnosed Celiac- Test Results ?


Degas24

Recommended Posts

Degas24 Newbie

My daughter was diagnosed with celiac at age 7.  She is now 17.  Her levels were tested a year ago and they were off the charts.  So she met with a nutritionist again and has been doing better. Her primary doctor retested her IgA levels.  A year ago it was 52 mg/dl. Now it is 46 mg/dl. It say normal range is 61-386 mg/dl.  It is a Friday and her doctor is gone for the weekend and I just want to know what this means?  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

It points to the likelyhood that she is doing well with her efforts to eat gluten free.

Do you have any other antibody numbers. IgA is not the only indicator and may not be the best one for evaluating celiac disease.

Scott Adams Grand Master

I agree, they normally do a ttg test as well, is that the only test that was done?

Degas24 Newbie
10 hours ago, Scott Adams said:

I agree, they normally do a ttg test as well, is that the only test that was done?

Her current TTIgA is 241.5 CU (was 545.5 CU in 2019).

12 hours ago, trents said:

It points to the likelyhood that she is doing well with her efforts to eat gluten free.

Do you have any other antibody numbers. IgA is not the only indicator and may not be the best one for evaluating celiac disease.

Her current TTIgA is 241.5 CU (was 545.5 CU in 2019).

Scott Adams Grand Master

On the ttIgA does it show the markers for normal, and the high mark? Each lab seems to have their own scale, so it would be helpful to have this. 

DJFL77I Experienced

Normal ttg is like 0 to 3 isn't it.

DJFL77I Experienced

My ttg was 120ish at diagnosis.. they were tested again at 6 months in December and were at 11.

0 - 3 was marked as normal so it needs to come down a little more but I'm expecting that to take no more than a month or so.. I get it tested again in April...  Eating only fresh foods.. only packaged stuff I was eating is almond butter, Lara bar with 2 ingredients, Greek yogurt, some vanilla icecream, 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Degas24 Newbie
On 1/15/2021 at 1:20 PM, Scott Adams said:

On the ttIgA does it show the markers for normal, and the high mark? Each lab seems to have their own scale, so it would be helpful to have this. 

It says that <20 is normal.

Scott Adams Grand Master

The new protocol is that if someone scores 10x the celiac disease level, then they can be diagnosed with the blood test alone, however, not all doctors are following this. I would just make sure that she's not cheating on her diet, as that can happen with teenagers. My daughter is a perfect example of this!

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,040
    • Most Online (within 30 mins)
      7,748

    whotgrips44
    Newest Member
    whotgrips44
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'm not sure if you found what other here have posted on oral thrush, but this might be helpful: https://www.celiac.com/search/?q="Oral thrush"&quick=1&updated_after=any&sortby=relevancy
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • trents
      Welcome to the forum, @JulieRe! You would do well to get checked for a candida infection of the gut. Yeast thrives on carbs so you might also look into a low carb diet. These kinds of things seem to be more common in the celiac community than in the general population. There is a growing body of evidence that the development of celiac disease is rooted in unhealthy gut biome conditions. It's good that you are getting that red spot on your tongue checked out soon. It's likely related to the thrush but I would also not rule out a neoplasm which you would certainly want to catch early.
    • cassondracm01
      Hi there! I have very similar dermatitis herpetiformis responses. The only thing that helps is dissolving a Benadryl pill and rubbing that on the painful itchy spots that arise on my knees, scalp, elbows. I have been working with a nutritionist who also has celiac we narrowed down to me only getting we certified gluten-free products - which I try the best I can. But then I have found products that use guar gum and other additive gums I have reactions as well. It was my plant based milk. I had to switch to Elmhurst it’s just nuts and milk- most of the time.   I hope that’s helpful! I’ll keep following:) we seem to have very similar reactions! 
    • JulieRe
      Hi,  My name is Julie and I am new to the forum.  I have been diagnosed with Celiac disease since 2006.  I follow a strict gluten free diet. In July I was diagnosed with oral thrush.  I had swollen lips, and my tongue was very red towards the front.  I also had a weird taste in my mouth and very dry mouth despite drinking lots of fluids.  I went to Urgent care and was prescribed fluconazole oral tablets for 5 days and it essentially cleared up.  Has anyone else had this happen?  It was so strange.  The doctor thought the thrush was from my mouth guard I wear at night.  Although my cleaning process had not changed. Also today I noticed an abnormal red spot on my tongue.  No other symptoms.  I will be calling my dentist.  But am curious if anyone has had trouble with yeast in their gut. Thanks Julie
×
×
  • Create New...