Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How will accidental glutening impact healing and long term health?


Kyleweber

Recommended Posts

Kyleweber Rookie

Hi everyone,

I have been eating gluten free for about a month since being diagnosed with celiac. Despite being vigilant in reading labels, researching brands, and not taking any risks (no eating out or eating anything prepared by anyone but me), I've felt the symptoms of being glutened a few times now.

I have a lot of questions around how much contamination and gluten it takes to negate a gluten free diet. If I get contaminated once a month will my small intestine still heal? Or is that enough to undo any healing? How much impact will accidental glutening have on my long term health? Can I afford to trust gluten free food at a restaurant when there's a teenager in the kitchen focused more on flirting with the hostess than they are about gluten contamination?

Please don't confuse this with me saying I want to have cheat days or be lax in my gluten-free eating. Right now I have no sense of what constitutes a risk and whether or not it's worth taking. When I feel a symptom I can't help but feel like I'm taking years off my life.

I appreciate any insight you have. Thanks!



 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Hi Kyle,

I don't think you'll lose years of life by slip ups here and there.  The problem with frequent slip ups is the immune system never gets a chance to completely settle down and stop making antibodies against gluten.   Personally i wouldn't trust most restaurants for the first 6 months.  It is much safer to trust your own cooking, and generally cheaper.

Kyleweber Rookie
2 hours ago, GFinDC said:

Hi Kyle,

I don't think you'll lose years of life by slip ups here and there.  The problem with frequent slip ups is the immune system never gets a chance to completely settle down and stop making antibodies against gluten.   Personally i wouldn't trust most restaurants for the first 6 months.  It is much safer to trust your own cooking, and generally cheaper.

Thanks for the advice and response! 

Scott Adams Grand Master

If you can't avoid eating out, consider GliadinX (a sponsor here), or another AN-PEP based enzyme. This may help mitigate small amounts of cross-contamination that can happen in restaurants.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - DebD5 replied to Bebygirl01's topic in Related Issues & Disorders
      26

      How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?

    2. - DebD5 replied to ohmichael's topic in Super Sensitive People
      12

      Curious if I should quit my job

    3. - DebD5 replied to annirosex's topic in Related Issues & Disorders
      2

      Dealing with celiac and menstrual cycle

    4. - DebD5 replied to Katiexox's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Advice please

    5. - DebD5 replied to StevieP.'s topic in Related Issues & Disorders
      5

      Fodzyme


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,637
    • Most Online (within 30 mins)
      7,748

    Alice 6
    Newest Member
    Alice 6
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DebD5
      I would like to say you saved me. I’ve been so sick the last few years, celiac since 1997. And reading your post about the other glutens/grains that can be sensitive to celiacs, is the only thing that has ever helped me. Since going off a carbohydrates/grains, even gluten-free ones, My chronic pain is  85% better. I’m actually losing weight which, that’s a long story but was impossible. I definitely am like you. Thank you so very much for posting. For some of celiacs I do believe this is the magic key. 
    • DebD5
      I 100% believe if you were sticking gluten items, especially flour, and breathed it in you could be glutened. I’m a celiac for almost 30 years. For the first ten years as a celiac I’d help my polish family make pierogis at Christmas time. I would only cook them at the stove and I didn’t touch anything with my hands using spoons. But the flour is in the air. And I’d get violently ill for 1-2 weeks after the last few years I did it. Wearing a back is a great suggestion and washing your clothes and showering when you get home. Good luck. And I’m so sorry your parents are emotionally supporting you. 
    • DebD5
      Have you had your thyroid checked? I was diagnosed at 24 with celiac. Lost my period permanently at 32. Found out six months after I lost my period that I had 1 ovary with 1 follicle. I had a child already but wanted more. Ended up having two more children with one ovary and one follicle. But my doctors theories are if I would have gotten my thyroid checked sooner and fixed through medication, maybe things would look different. Who knows. I only share my experience so you question your doctors and advocate. Always see an endocrinologist for thyroid care fyi. Actually always see the specific Dr for your specific ailments. I’d also consider seeing a gynecologist that specializes in female hormones/menopausal symptoms. Early ovarian failure happens in celiacs so I read  on the celiac disease center in Chicago website. 
    • DebD5
      This. Scott said it beautifully. Document and start a trial gluten-free diet. I can also recommend an inflammation dietitian I saw last summer if interested. She’s the only one who helped me on a path to healing through an elimination diet. Which is tricky with your little one. But I completely trust her, she’s very expensive though. I figured out I’m sensitive to so many things and follow a gluten-free diet religiously. Just had an upper and lower endoscopy/colonoscopy and zero signs of celiac disease so they said. I’m a celiac since 1997. But my 33 yr old daughter is very gluten intolerant since 20 yrs old. 
    • DebD5
      I so appreciate you talking about this. Honestly I’m so sick the most part of the last 15 years, I’m going to cross reference your list with my own. Celiac since 24 yrs old diagnosed in 1997. I just saw a specific celiac GI specialist at the celiac disease center in Chicago and when I told her all the food reactions I was having she said she believed me but there was no clinical evidence to support my reactions(I felt so unseen, she recommended I see a gut psychologist, what the heck). I react with severe body aches to bloating and dizziness to exhaustion:  most lectins except berries and low lectin veg, no eggs, no nightshade veg, no dairy, all carbohydrates including no gluten-free carbs or grains, though a little coconut flour seems ok now, need to test other non grains, certain alcohols that say gluten-free but looking into their process further I get horribly sick if distilled through a gluten grain example Costco vodka….. Because I had an upper and lower GI in 1997(I was 24 and 84#s) and my GI doc came back with celiac disease, this new doc suggested I may not be a celiac. Is running some blood test. Omg. I can’t even. I’m so beyond frustrated. 
×
×
  • Create New...