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Celiac and Behcet's correlations?


Ayesha Williams

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Ayesha Williams Newbie

Hello,

Has anyone that has Celiac also been diagnosed and/or explored Behcet's Disease relationships?

Part of a 3 generation diagnosis of Celiac.


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Scott Adams Grand Master

A couple of years ago we did an article summarizing a study on this which found no connection:

 

Ayesha Williams Newbie
7 minutes ago, Scott Adams said:

A couple of years ago we did an article summarizing a study on this which found no connection:

 

Hello,

Thank you for the quick response. It is curious and thank you for the article.  We live in a very rural area, the San Luis Valley in CO,

that did not readily know about Celiac, much less Behcets. We are researching as best we can on our side for an appropriate diagnosis so we can treat my Celiac teen who has all the Behcets symptoms and more. Appreciate the insight.

aw

Scott Adams Grand Master

From your post it looks like he has celiac disease, and I assume that he's been on a gluten-free diet. It might make sense to re-check his diet to make sure he's staying gluten-free and not getting any cross contamination, for example if you eat outside your home. Teenagers are also known to be more likely to cheat on their diets due to peer pressure issues.

Posterboy Mentor
On 2/18/2021 at 12:33 PM, Ayesha Williams said:

Hello,

Has anyone that has Celiac also been diagnosed and/or explored Behcet's Disease relationships?

Part of a 3 generation diagnosis of Celiac.

Ayesha,

It is more likely you would be diagnosed with LUPUS which has been known to show up in Celiac's...

I might try to write a longer  explanation later....

But this to just to get your started in the right direction...

Amino Acids IV has been shown to treat Behcet's disease.

See this research entitled "Behçet's disease (syndrome) with myalgia and its response to intravenous amino acids: a case series

https://pubmed.ncbi.nlm.nih.gov/21812911/

Here is research on the connection to Lupus and Celiac disease

Entitled "Adult celiac disease followed by onset of systemic lupus erythematosus"

https://pubmed.ncbi.nlm.nih.gov/18223501/

I wrote a Posterboy blog post explaining why LUPUS happens in Celiac disease maybe it  will help you to read it...

This rather lengthy but good article shows how slow enzyme activity (IE Genetic defects) control and trigger Genetic diseases....

Entitled "High-dose vitamin therapy stimulates variant enzymes with decreased coenzyme binding affinity (increased Km): relevance to genetic disease and polymorphisms"

It is notable that approx. 50 genetic diseases can be treated with high dose Vitamins....

If the research on Behcets disease and Amino Acid IV is correct the above article explains why this is so!

Your Co-Factor system has locked up available enzymes.....leading to sores and ulcers.

I had angular cheiltisis (Leaky Lips) once.....and for years I struggled to find the cause trigger...

And it turns out I was low  in Riboflavin AKA Vitamin B2 all that time....the condition is AKA Pellagra Sine Pellagra...

Skin lesions like those experienced in Behcet's is a "tale tale" sign of Pellagra Sine Pellagra" but all the doctors could tell me to do....was stop licking my lips so much!

I wrote about my experience so others' could be helped too!

Search for the Posterboy and read some of my blog post's and I think you will find at least one helpful, Lord willing.

I hope this is helpful but it is not medical advice.

2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included.

Posterboy by the Grace of God,

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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