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Help with test results

KL07
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KL07 Newbie
KL07
Posted

Hey

So I'm new to figuring out if I have Celiac or not. Im 27 year old female and for a good 10 years now my general gut health and health in general has been poor, i constantly feel tired; bloated; stomach problems and so on. Ive been admitted to hospital twice over server gastroenteritis where i've end up on drip all day with insane dehydration, each time having to reintroduce food into my diet and with that becoming intolerant to some things. Looking on the Celiac website I defo have a lot of the symptoms and done there question test and it said i should be tested, even spoke to my friend who has it and we have a lot of similarities 

Recently i've had blood tests done and on my first set it said I didn't have Celiac with my TTIgA coming back as <0.7u/ml and I had very low iron so i went on iron supplement tablets for 4 weeks, plus the doctor said my B12 is in the low range of normal. I told the Doctors that I hadn't been eating Gluten as much as i should have (done my research after the test they never told me this before) so he said have another one in 5 weeks (which i don't think was enough time) and it's come back saying that i'm negative again but my TTIgA is still coming back as <0.7u/ml does this mean I have a Low IgA deficiency? Trying to research this is very confusing! Also my Iron has now gone back up but its now in the low range of normal whatever that means same as my B12. The doctors aren't going to do anymore and said i should just try not eating gluten for a while, but i feel like i definitely have Celiac if not maybe non Celiac Gluten intolerance. but my doctors wont help me anymore.

I have been feeling the same if not worse since eating more Gluten over the last 5 weeks and I just don't know what the next step is. If anyone has any advice or can answer any of my questions i be very greatful!

Thanks

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trents Grand Master
trents
Posted

Welcom KL07 to the forum!

Yes, you have many symptoms of celiac disease. Before the blood antibody test you should be eating the equivalent of a slice of wheat bread daily for 6-8 weeks. Sounds like you have not had a "full" celiac blood panel done yet, just partial. The most targeted antibody test for celiac disease is the TTG test but it is the least sensitive. That's why you should have a full panel done. The other IGA tests are less specific but more sensitive. Yes, the problem could be low IGA levels which will skew the test results. https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/

 

If you are not getting cooperation from your doctors then you can order a home celiac disease test kit for about $100 USD. https://www.imaware.health/at-home-blood-test/celiac-disease-screening

Scott Adams Grand Master
Scott Adams
Posted

Welcome to the forum! Is there a chance that you could post the full blood test results here, along with the high marker/cut off for celiac disease? This info could be very helpful to better understand your results.

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