Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Joint disease and gluten intolerance.

Юлия
 Share

Recommended Posts

Юлия Newbie
Юлия
Posted

Hello everyone. I wonder if there are people on the site who were diagnosed with arthritis or spondyloarthropathy and these diseases were the result of gluten intolerance.

  • Scott Adams changed the title to Joint disease and gluten intolerance.
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mbrookes Community Regular
mbrookes
Posted

I have arthritis. In fact, I just had a shoulder replaced. Mine seems to have nothing to do with Celiac. Mine is a result of the joints just wearing out. I am 76, so that is to be expected.

ekh Newbie
ekh
Posted

I had joint pain from the age of 6 until I was diagnosed with probable Celiac at age 40 (1978). Interesting that the joint pain and stomach problems went away after going off Gluten.  My diagnoses prior to the "probable Celiac" was either Lupus or Rheumatoid Arthritis.   The Dr.'s did not want me to go  back on gluten so Celiac could be confirmed through biopsies, I was that sick!

I am now almost 83 and some pain has returned but more because of age than ingesting gluten.  We live in a retirement community and, fortunately, the chefs are aware of the problems for many of us if we ingest gluten!   

Scott Adams Grand Master
Scott Adams
Posted

Welcome to the forum @ekh, and it's great to hear that there are retirement communities that offer gluten-free meals. We ran an article back in 2016 which made the prospect of finding gluten-free food for those in full care facilities to be rather difficult:

 

GFinDC Veteran
GFinDC
Posted

Sometimes people who are intolerance to nightshades can have joint pain.  Nightshades we eat are potatoes, peppers, eggplant and tomatoes.  Cutting those out of your diet may help with pain in joints.  For me it took over a month for the joint pain to go away.  But it did, so goodbye potatoes!

ekh Newbie
ekh
Posted

Since my mother was  allergic to potatoes, I try not to eat anything in the nightshade family very often.  Many people with joint pain can clear that up by staying away from the nightshade family, so very happy that it worked for you!  I am quite allergic to soy and fortunately the chefs here help me avoid that, especially since I experienced a (scary for them) allergic reaction soon after we moved in!   In the past, when giving workshops on allergies/celiac and gluten problems I have asked people what is your favorite food that you will not/cannot live with out?  Remove that from your diet for a month and  then reintroduce it into your diet and ascertain what happens.  Interesting to hear people's responses!

By the way the pain I now experience is due to pinched nerves, I am avoiding surgery if at all possible!

 

   

wellman crazy cat lady Newbie
wellman crazy cat lady
Posted

I had symptoms of celiac from the age of 18 months, but was never correctly diagnosed, poisoning myself with gluten for over 50 years. I figured it out at age 53, when a niece and a nephew were diagnosed. I went gluten free, and very quickly my GI symptoms cleared up completely. However, in my opinion, the damage to my joints, bone on bone arthritis at age 50, was caused by the undiagnosed/ untreated celiac. This is osteoarthritis, not rheumatoid, and there is no family history of anyone having severe arthritis at this young of an age. I have other problems, that I also suspect of being caused by the untreated celiac- a severe reflux, severe "sleep" apnea (my throat collapses when I am relaxed, not even asleep), two hernias and crappy lungs - all examples of lack of integrity of tissues in the body. There is no way to prove it, of course. But that is my suspicion. Oh, and from the age of 53 to now, 63, with my celiac treated,  I grew wisdom teeth up top. I never had more than tiny particles of calcium up top, and nothing on the bottom. Now I have full grown wisdom teeth. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

Not sure about the apnea, lungs and hernias being linked to long term exposure to gluten but the other problems you mention are statistically linked to undiagnosed celiac disease. You and I were diagnosed at about the same age and looking back over my life there were some symptoms I experienced even as a child. But when I was about 37 yr. old there was laboratory evidence of celiac disease because of idiopathic elevation of liver enzymes. It took 13 more years to find out what caused that and the culprit was celiac disease. It is a shame that there is not more awareness in the medical community about celiac disease and it takes so long for many to get it diagnosed. It's better than it used to be but not that much.

GodsGal Community Regular
GodsGal
Posted
On 5/13/2021 at 2:03 PM, Юлия said:

Hello everyone. I wonder if there are people on the site who were diagnosed with arthritis or spondyloarthropathy and these diseases were the result of gluten intolerance.

I have not been diagnosed with it myself, but I do have a friend that was diagnosed with rheumatoid arthritis related to gluten intolerance.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. PixieSticks
      - PixieSticks replied to PixieSticks's topic in Super Sensitive People
      2

      Working in a kitchen with gluten?

      Hi yes! I was diagnosed 10 years ago through a biopsy. I’ve been gluten free ever since but no one I’m around is gluten free. I sometimes wore a surgical mask in the kitchen. but I believe particles were still getting through. I’ll definitely look into n95 instead. thanks for the reply.
    2. BoiseNic
      - BoiseNic replied to BoiseNic's topic in Dermatitis Herpetiformis
      11

      Skinesa

      Ya I used to react to iodine, but it doesn't bother me anymore after strict adherence to a gluten-free diet for many years now. I am happy to report that for the first time ever in my life, a probiotic formula is not making me break out, but actually seems to be helping. The strains in this formula have been specifically tested to help with skin issues. It...
    3. knitty kitty
      - knitty kitty replied to Whyz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Feeling ill

      @Whyz, I take a combination of Thiamin (Benfotiamin), B12 Cobalamine and Pyridoxine B6 for my pain and headaches. Really works well without hurting the digestive tract. Riboflavin B2 also helps with migraines. Most newly diagnosed people have vitamin and mineral deficiencies. Check with your doctor and nutritionist. If you follow the updated...
    4. Scott Adams
      - Scott Adams replied to Brianne03's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Advantages vs. Disadvantages of having an official Celiac diagnosis

      I don't believe that existing life insurance policies require such notifications--health checks are typically done before such policies are obtained. I believe it would primarily affect any new policy you get, and perhaps any policy renewal.
    5. Scott Adams
      - Scott Adams replied to Whyz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Feeling ill

      You could go gluten-free now, and then start eating lots of gluten for at least 2 weeks before your endoscopy--just be sure to tell your doctor about this beforehand. If your symptoms go away on a gluten-free diet, it is further evidence of celiac disease and/or non-celiac gluten sensitivity. Approximately 10x more people have non-celiac gluten sensitivity...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,530
    • Most Online (within 30 mins)
      7,748
    AnnmarieR
    Newest Member
    AnnmarieR
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • PixieSticks
      Working in a kitchen with gluten?

      By PixieSticks · Posted

      Hi yes! I was diagnosed 10 years ago through a biopsy. I’ve been gluten free ever since but no one I’m around is gluten free. I sometimes wore a surgical mask in the kitchen. but I believe particles were still getting through. I’ll definitely look into n95 instead. thanks for the reply. 
    • BoiseNic
      Skinesa

      By BoiseNic · Posted

      Ya I used to react to iodine, but it doesn't bother me anymore after strict adherence to a gluten-free diet for many years now. I am happy to report that for the first time ever in my life, a probiotic formula is not making me break out, but actually seems to be helping. The strains in this formula have been specifically tested to help with skin issues. It is gluten and dairy free also. 
    • knitty kitty
      Feeling ill

      By knitty kitty · Posted

      @Whyz, I take a combination of Thiamin (Benfotiamin), B12 Cobalamine and Pyridoxine B6 for my pain and headaches.  Really works well without hurting the digestive tract.  Riboflavin B2 also helps with migraines.  Most newly diagnosed people have vitamin and mineral deficiencies.  Check with your doctor and nutritionist.   If you follow the updated gluten challenge guidelines, you can wait until two weeks (minimum) before your appointment, then eat lots of gluten, like six slices of gluten containing bread or "name your poison".   Here's the Updated Gluten Challenge Guidelines: Recommended intake of gluten should be increased to 10 grams of gluten per day for at least two weeks. Or longer. While three grams of gluten will begin the immune response, ten grams of gluten is needed to get antibody levels up to where they can be measured in antibody tests and changes can be seen in the small intestine.   Keep in mind that there are different amounts of gluten in different kinds of bread and gluten containing foods.  Pizza crust and breads that are thick and chewy contain more gluten than things like cake and cookies.   References: https://www.beyondceliac.org/celiac-disease/the-gluten-challenge/ And... Evaluating Responses to Gluten Challenge: A Randomized, Double-Blind, 2-Dose Gluten Challenge Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7878429/?report=reader  "In our study, limited changes in Vh:celiac disease (villi height vs crypt depth - aka damage to the small intestine)  following 14-day challenge with 3 g of gluten were observed, in accordance with Sarna et al.  While the 3 g dose was sufficient to initiate an immune response, as detected by several biomarkers such as IL-2, the 10 g dose was required for enteropathy within the study time frame. Based on our data, we would suggest that gluten challenge should be conducted over longer durations and/or using doses of gluten of ≥ 3 g/day to ensure sufficient histological change can be induced." Keep us posted on your progress!
    • Scott Adams
      Advantages vs. Disadvantages of having an official Celiac diagnosis

      By Scott Adams · Posted

      I don't believe that existing life insurance policies require such notifications--health checks are typically done before such policies are obtained. I believe it would primarily affect any new policy you get, and perhaps any policy renewal.
    • Scott Adams
      Feeling ill

      By Scott Adams · Posted

      You could go gluten-free now, and then start eating lots of gluten for at least 2 weeks before your endoscopy--just be sure to tell your doctor about this beforehand. If your symptoms go away on a gluten-free diet, it is further evidence of celiac disease and/or non-celiac gluten sensitivity.  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.  
×
×
  • Create New...